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  • #16
    I'm takin' UDA to prevent gallostones and to improve liver stress due to all these medication. I've quickly discovered an UDA benefit, it softens the stools, ameliorating bowel routine.
    I take less Oxyb. now so It can't be the problem. I've to pay more attention on dietary regimen, for example to reduce gas discomfort I started a sort of FODMAP diet, reducing the consumption of wheat and many other vegetables.
    T4 AIS A since 07/05/2017

    "We lie the best when we lie to ourselves."

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    • #17
      Neuropathic pain- incease 300 mg a day- 4-7 days before increasing.
      Oxybutynin- we have stopped using as much due to warning about dementia but that is a very low dose and we start at % mg three times a day and increase if needed to 30 mg daily or the long acting form. WE use Trospium 20 mg daily or twice a day instead. Or Mirgabetron 50-100 mg daily(monitor for high blood pressure).
      If having spasticity ( spasms/increased tone )we use Baclofen( or Tizanadine). Both may make you sleepy at first but after 2 weeks then usually subsides ) Stretching 3 x a day is highly recommended. For meds-Both start low and slowly increase. Lorazepam only if needed.

      Not sure what some of the other meds are. High protein, Vitamin C and concentrated cranberry to prevent UTI's and a multivitamin to make sure you get requirements.
      CWO
      The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

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      • #18
        Originally posted by SCI-Nurse View Post
        oxybutynin can result in constipation also pbr
        Along with other options, I was offered Oxybutynin for my bladder by my specialist Dr.
        No information was supplied about possible side effects on eyesight, especially if there is any family history of Glaucoma.
        And there is a history.
        Also inhibits the bodies ability to regulate temperature. Among other side effects.
        Nothing is without risks but being fully informed is beneficial before granting consent to administer.
        Fortunately I was able to opt for intermittent cath.

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        • #19
          Originally posted by SCI-Nurse View Post
          If having spasticity ( spasms/increased tone )we use Baclofen( or Tizanadine). Both may make you sleepy at first but after 2 weeks then usually subsides ) Stretching 3 x a day is highly recommended. For meds-Both start low and slowly increase. Lorazepam only if needed..
          CWO
          I have abdominal spasticity and, even if it helps to mantain a decent muscle tone in that area, i would try to control the spasticity with electrostimulation. Could be a decent solution?
          T4 AIS A since 07/05/2017

          "We lie the best when we lie to ourselves."

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          • #20
            Quick update of my therapy/regimen.

            I've increased the dose of pregabalin and started the reduction of lorazepam (low dose addiction with bad symptoms), gradually switching to a benzos with longer half life, then gradually reduce this too.

            Testosterone Propionate 30mg E2D
            Pregabalin 150mg 2 x day
            Valproic acid 500mg 2 x day
            Oxybuthinin occasional use only
            Apixaban 2,5mg 2 x day
            Vitamin C 100mg in the morning
            Lorazepam 2,25mg pre-bed
            Bromazepam 1,5mg pre-bed

            I've also changed my bowel regimen. I do transanal irrigation, with Peristeen, E3D. Bromazepam causes severe costipation, while lorazepam seemed mild from this point of view, I suppose the difference depends on the half-life.
            I suppose the difference depends on the half-life.
            T4 AIS A since 07/05/2017

            "We lie the best when we lie to ourselves."

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