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    Weird sensations

    I've recently been getting strange sensations from the waist down. I can feel that my legs exist, I couldn't before. Also I have this strange sensation that comes and goes in my penis. And anus as well I can feel pressure there. I've been told that it's not neuropathic pain. It doesn't hurt or bother me. Should I be encouraged by all these strange sensations? Btw I'm C6 Inc. One year post.

    #2
    Sensory return like this is not uncommon. It sounds like you may have anterior cord syndrome, which is an incomplete type of SCI that can allow some preservation of posterior columns in the cord. The posterior columns provide sensory tracts for pressure, vibration, and some position sense. It appears you have some "sacral sparing" due to this.

    Have you had a recent SCI neurologic examination (formerly called the ASIA exam)?? This is highly recommended at one year post injury.

    (KLD)
    The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

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      #3
      Last time I had an exam was in may and I was Asia B.
      I can also tell when someone is stretching my leg Orr when they're spreading my legs wide.

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        #4
        I don't think that it's ACS I've been reading about it. I was C4 first now I'm C7 right side, C6 left.

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          #5
          Originally posted by Gladiator View Post
          I don't think that it's ACS I've been reading about it. I was C4 first now I'm C7 right side, C6 left.
          Why not? You sound pretty classic. Anterior Cord Syndrome (also called Anterior Spinal Artery Syndrome) is the most common incomplete pattern, and occurs nearly exclusively in those with cervical injuries, especially from hyperflexion trauma. What was your mechanism of injury?

          (KLD)
          The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

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            #6
            Originally posted by SCI-Nurse View Post
            Why not? You sound pretty classic. Anterior Cord Syndrome (also called Anterior Spinal Artery Syndrome) is the most common incomplete pattern, and occurs nearly exclusively in those with cervical injuries, especially from hyperflexion trauma. What was your mechanism of injury?

            (KLD)
            Car Accident.
            Could this just be normal return of sensation?

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              #7
              P.s. I was labeled complete for about 3-4 months.

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                #8
                Do people with cervical inuries and ACS never recover their trunk muscles?

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                  #9
                  Anterior cord syndrome is characterized by preservation of posterior column (ie, sensory) function as above. It is rare to have preservation or return of motor function below the level of injury in ACS, but you are still new to the injury, and some motor return is still also possible...often for more than 24 months post injury.

                  (KLD)
                  The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

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                    #10
                    I started recovering my trunk muscles and I've been told that this is very good progress considering I have an upper cervical injury. Would stem cells help in regaining more function/sensory at this time? Or should I wait for more time to pass?

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                      #11
                      There are no legitimate stem cell therapies for humans with SCI at this time.

                      It is unusual to get back trunk muscles first in an injury like yours, but there is no way to determine if you will continue to get motor return or not.

                      (KLD)
                      The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

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                        #12
                        Lets hope for the best. Im always optimistic.

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                          #13
                          Im working hard as i can to get my trunk muscles back to a 100%

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                            #14
                            Anyone else with similar sensations? And if they ever transformed into something?

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                              #15
                              Sensations are very hard to compare. There were times with me that I felt sensations and then it was followed up with some type of return. But honestly, I have strange sensations all the time so it's hard to tell. Two days after surgery my legs started to feel lighter. I took that as a good sign even though I still couldn't move or feel them. At in-patient therapy I told the PT's I thought it felt like my legs were trying to move even though they couldn't. They were very skeptical but the next morning on the therapy table they put skates on me to remove gravity and I was able to move my legs.

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