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    New T11

    Hi everyone,

    Just wanted to say hello. I've been looking around for about a week and decided to finally join. Sick of searching through youtube videos and websites to get the same general information. I was hurt snowboarding a few months ago and landed myself with a T-11 Asia B SCI.

    I'm trying to get a handle on all of this but it just seems to be to much. I'm sick of people telling me what I need to do, when I need to do it, and how. I appreciate everyone trying to help but it seems because my friends and family have google searched SCI they are suddenly experts. I know they are trying to help, but its just making me frustrated.

    Did anyone else have/had this problem?

    #2
    Who hasn't? It was harder of some of my family and friends than me.

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      #3
      Exactly! Sorry I was kind of in a bad mood earlier! Just a discouraging day with friends and family lol. I usually have a positive outlook but it was just to much today!

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        #4
        understandable, only a few months in, it can be a bit overwhelming. Where you from?

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          #5
          The UP of Michigan, pretty much the middle of nowhere!

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            #6
            Hi there, Welcome
            So are you at home, did you go to a rehab center? If you really dig through this site, then you can become an SCI expert, and tell your family and friends whats really up. Take care, and keep writing.
            T12L1 Incomplete Still here This is the place to be 58 years old

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              #7
              Hi Sam. Learning how to live now will be a very steep learning curve.

              As you have probably gathered, every injury and ability is very individual. The best advice I can give is not to let anyone (even dr's and therapists) tell you what you can't do. Listen to what others have done and what they've had trouble with, try things for yourself, and then decide what is beyond your ability/energy level/time constraints. etc

              I figured that ANYTHING is possible, it's just a matter of whether it's worth the time, energy, or money that it would take to do it.

              Also since you have a very recent injury you may still get a lot of return if you work with things. Some things I had to work on for months before I strengthened muscles or figured a way to accomplish what I wanted to do.

              Mainly...don't give up, no matter how frustrating things seem.

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                #8
                Hi Sam.

                Welcome. "Knowledgeable" AB friends and family can be irritating especially when they haven't walked in our shoes (of course, neither do we).
                TM 2004 T12 incomplete

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                  #9
                  Thanks for the encouragement everyone! I'm currently finishing up inpatient rehab, should be going home by next Friday according to my doctor. I'm really excited, but scared at the same time! It will be the first time my husband and I will truly be alone with this which is very very scary. I'm not sure how I will handle being away from the nurses 24/7 care, but hopefully I will be awesome

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                    #10
                    UP of Michigan and a snowboarder; did the accident happen at Mt. Bohemia, perchance?

                    Family, friends and acquaintances will do all sorts of annoying and sometimes hurtful things not because they want to hurt or annoy you, but because they don't know the perfect way to deal with it (but they're trying). I try to think back to how little I understood about SCI before I got hurt, and that helps me not fault them for their mistakes. I'm pretty sure I'd be reacting the same way if it were someone else.

                    One of my favorites, and I'm sure you'll encounter it, is when you take the time to explain to someone what happened to you and then the other person just goes on and on about how they cracked a vertebrae ten years ago and it really really hurts, though he never damaged any nerves...
                    L2 incomplete with a pretty bad limp since 10/31/2011.

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                      #11
                      Going home is scary, but it is also a relief from all the hospital stuff. They throw much at you , so quick in rehab. You'll learn most of what you do in rehab is not neccessary and you'll have to learn what works for YOU. In rehab, they are always sticking you and probing you with crap to see what works and you're more lie a test subject than a person, going home you can try different things in a more "normal" and relaxing environment. If you wearing the "turtle shell", learning to do as much as you can with that thing on can be difficult since it restricts some of your movement. Make sure you get up and exercise, at your level, pushups in the chair will go a long way quick and help with transfers. Laying in bed too much will make you weaker, so it's important that you work on gettin up and sitting more and more every day. One thing I've learned with SCI, you get weaker much more quicker than you get stronger. For those who are really active and workout, do adaptive sports and such, I read somewhere, for every week you don't exercise, it takes three weeks to get back what you lost. I'm guilty of having no real routine, but I can tell when I slack, it bites me in the ass.
                      When you get the brace off and get good at transfers, I really suggest finding a sport, like handcycling or something. Also, if you're a snow lover, you can always sit ski next winter. Anything you can do to get out of the chair is somewhat of a freedom to what has happened.

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                        #12
                        I try to be patient I just feel like after 3 months I need privacy again lol. It wasn't Bohemia, although I have snowboarded there several times It was actually just a local sledding hill that my friends and I went to at night after a few beverages. Went off a homemade jump, tried to avoid one of my friends that had wiped out, and smacked into the woods eventually rolling into a tree.

                        I think I have been pretty decent about being understanding, I'm normally a very patient person and I don't know why all of the sudden everyone's tiniest movements are making me mad. Like I said, I think once I get back home and have privacy again and can't start to feel as normal as possible, I will regain my patience.

                        shveddy - Haha that has happened to me already! My friend brought his girlfriend and I told him everything that I messed up, and she looked at me and went on for a good twenty minutes about how she separated her elbow when she was in high school from a game of softball. I tried really hard to be sympathetic, but truth is I wanted to slap her!

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                          #13
                          jschism - Thanks for all the good words I was very active before I was hurt, use to run 5 miles every morning and snowboarded almost daily as an instructor! My husband is the same way so I don't think I will lack any motivation in exercising as soon as the turtle shell is off! I'm just trying to think of ways I will be able to keep up with him. I'm really interested in trying out handcycling as soon as I am able! I also am really excited to try sit-skiing!

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                            #14
                            Originally posted by Sam.I.Am View Post
                            jschism - Thanks for all the good words I was very active before I was hurt, use to run 5 miles every morning and snowboarded almost daily as an instructor! My husband is the same way so I don't think I will lack any motivation in exercising as soon as the turtle shell is off! I'm just trying to think of ways I will be able to keep up with him. I'm really interested in trying out handcycling as soon as I am able! I also am really excited to try sit-skiing!
                            Give it time, he won't be able to keep up with you. I also suggest getting into a pool. I just started after 4 yrs. and this is something I should have been doing in rehab. I'm a t-11
                            Last edited by jschism; 20 Apr 2012, 11:49 AM. Reason: add

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                              #15
                              We have a pool at our house which I was actually wondering about. Here we have a lift to get me in and out, but I can't imagine how much those cost and probably wouldn't install one at our house anyway. How do you get in? Do you need help or are you able to go in alone? We only have a ladder and no steps so there isn't a way to really get myself up the ladder as of now.

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