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NEW.... C1/2 lesion/contusion.... answers??

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  • NEW.... C1/2 lesion/contusion.... answers??

    Hi.
    Given all the internet hunting, hours on my back and on medications- I truly can't find any answers.

    I was stuck accidentally in the spinal cord with a needle. I lost entire use of my right side and swalling for 2hrs with a DRASTIC drop in b/p, most slowly came back and I was sent home therafter at the hospital I stayed for 2 weeks, on decadron and ALOT of other meds.

    I am in a LARGE amount of pain, on pain patches and take dilaudid 4mg every 4hrs. I have lost sensation, occassional loss of swalling that comes back minutes later, AGONISING pain, right arm and leg weakness and numbness. I can use them some, but only a few times until the pain takes over. I live on ice as well and dont do much but PT 3xs a week still.

    I am going for another MRI soon, the pain has increased and I get these horrid massaive 'jolt' sensations through my body.

    I am told I am lucky, considering I am alive, and typing, with the area of injury I have. I am seeing a therapist as well, as I have a hard time daily grasping anything.

    There are MANY other symptoms and quiestions, but my biggest one is, CAN THIS GET WORSE??? I mean, given where it is, and what I still have lost? I can't find any information, except about why I have these jolts, and similar things of that nature. My dr only gives me 'It takes time, I dont know" and useless things like that, which dont help me make it thru each day. Because its so biga lesion (cuz I was home wihtout treatment for 3 days before they told me to goto the hospital) I dont understand.

    Hi, and thanks. Any help. reading matierial or similar is greatly appreciated. I dont last long upright due to pain and feeling unwell at times, so, I spend alot of time on my laptop in bed.

    Last edited by rosieC12; 02-22-2012, 08:21 PM.

  • #2
    Hi Rosie,

    You're moving and breathing independently, so I would say you're quite lucky in those regards (I'm a C1-2 on a vent, paralyzed from my neck down). I can't speculate on your condition, but I wish you well.

    God bless.
    Wheelchair users -- even high-level quads... WANNA BOWL?

    I'm a C1-2 with a legit 255 high bowling game.

    Comment


    • #3
      Thanks for responding Bill, it really means alot. This makes me feel so out of place and alone, and I cannot fathom the emotional toll given what a C1/2 injury has brought you considering what I feel just how I am with the above. Its mind baffling to say the least. What happened in regards to your injury if you don't mind my asking?
      After a history of not being able to walk for over a year myself, from something ELSE years ago and barely finding the might to fight through it, (which I did) this now, just totally blows me away, and kills me inside.

      You think after going through something so major, you've fought the only true 'battle' for your lifetime and everything else is 'cake' in comparison- and then I got walloped again.

      Thanks again. I am so happy to hear from someone with a similar area injury, and I am in shell shock still I think, given the true comparisons of what this injury does time and time again to people. or let alone, how it is I dont have what soooo many others do with a c1/2....

      HOW do you bowl (I havent since the 1st injury I had prior to this) I usedto love bowling.

      Comment


      • #4
        !!

        Excuse me , but this must be two different PLANETS.... how do you bowl....!

        Comment


        • #5
          Originally posted by arnenorway View Post
          Excuse me , but this must be two different PLANETS.... how do you bowl....!
          Bowl would be correct. Check the link above.

          To the original poster: I'd get a lawyer if ou were injured with a needle, no?
          Get involved in politics as if your life depended on it, because it does. -- Justin Dart

          I shall not tolerate ignorance or hate speech on this site.

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          • #6
            HI, and yes. Thank you again so much Bill.

            Comment


            • #7
              Originally posted by rosieC12 View Post
              Thanks for responding Bill, it really means alot. This makes me feel so out of place and alone, and I cannot fathom the emotional toll given what a C1/2 injury has brought you considering what I feel just how I am with the above. Its mind baffling to say the least. What happened in regards to your injury if you don't mind my asking?
              After a history of not being able to walk for over a year myself, from something ELSE years ago and barely finding the might to fight through it, (which I did) this now, just totally blows me away, and kills me inside.

              You think after going through something so major, you've fought the only true 'battle' for your lifetime and everything else is 'cake' in comparison- and then I got walloped again.

              Thanks again. I am so happy to hear from someone with a similar area injury, and I am in shell shock still I think, given the true comparisons of what this injury does time and time again to people. or let alone, how it is I dont have what soooo many others do with a c1/2....

              HOW do you bowl (I havent since the 1st injury I had prior to this) I usedto love bowling.
              Rosie,

              I think most of your questions about me and/or my life as a C1-2 are answered on my website here:

              http://www.lookmomnohands.net/My_Ful...ort_Groups.htm

              God bless.
              Wheelchair users -- even high-level quads... WANNA BOWL?

              I'm a C1-2 with a legit 255 high bowling game.

              Comment


              • #8
                Originally posted by arnenorway View Post
                Excuse me , but this must be two different PLANETS.... how do you bowl....!
                arnenorway,

                About bowling, here's our YouTube video:

                http://www.youtube.com/watch?v=Y4i6DaLYmic

                And the video on our website's homepage has more explanation and a brief interview with me:

                http://www.ikanbowler.com/

                For more info and some "history" see the thread in my signature please.

                But let's try to keep this thread geared to the original poster's situation.

                God bless all.
                Wheelchair users -- even high-level quads... WANNA BOWL?

                I'm a C1-2 with a legit 255 high bowling game.

                Comment


                • #9
                  hi Rosie,

                  Can i ask how did you accidentally got a needle in the spinal? C1-C2 is a bad place to have an injury...I am not happy to hear that someone else has an injury in the same as me...everyone is different, bodies react different..I wish you well...I don't have any advise other maybe just hang in there
                  Love & Light WhiteAngel. Low Grade Astrocytoma Spinal Cord Tumour, C-1 to T-6 surgery back in 1970 @ age 4-1/2 with Brain Stem Cyst, Kyphosis, Scoliosis, Heading down the quadriplegia road. For my story and more please visit: http://whiteangel0.blogspot.com/p/my-story_06.html http://home.swiftdsl.com.au/~whiteangel

                  Comment


                  • #10
                    Hi rosieC12,
                    I am C1/C2 also. You are very early in your recovery. While it is impossible to know what your future will bring, I think that it isvery likely that some of your symptoms will improve and possibly disappear. I have been very fortunate in my recovery. Immediately after my accident the doctors struggled to keep me alive. I had a temporary pacemaker for a week and was on a vent for a month. I was also just about completely paralysed from the neck down for a few days. Now, about 2 years post SCI, I can walk 10 miles and ride a mountain bike. The jolts you describe sounds like a sensation that I had for a couple of weeks. I had no spasticity early on, but when the paralysis left the spasticity appeared. It has improved some over time. I have read that this is common. Neuropathic pain is not one of my problems, but I have seen posts on this forum that say that it can get worse. I also had a bad problem with blood pressure, but I hardly ever notice it now. I wish you the best of luck and hope that this is a short detour into the twilight zone of SCI.
                    C1/C2 walking quad, SCI from 4/2010

                    Comment


                    • #11
                      Hi, and thanks so much for your post Cajun.

                      I had another MRI a few weeks ago- my pain is still fairly high levels, the jolts and jumping at times can be 10 in a row when trying to relax or so once I am relaxed and trying to sleep, or literally relax from being up too much.
                      My lesion shrunk some, and I have some sensation in a few spots I didn't have before. The weakness and down the right side is prevalent, and moreso the more I am up or try to do anything. I drop things constantly! The jumps are the worst and I dread relaxing at times. I have been SOO tired it's ridiculous but my dr says its expected between the constant pain and the medications I'm on, some days, total with naps I sleep 16hrs. Other days, due to the pain and discomfort, I am lucky if I get 2hrs.

                      I still have ALOT of pain at the point of injury, and my entire head moreso the right. Ihave improvement but truly expected more than what I have. I am amazed at your recovery! I have read that usually the most healing and best you can get is usually by 6 months- but given your story I see healing did continue past that point for you to get to where you are today. Simply amazing indeed I am very happy for you- so do you have any sensation loss, or certain motor loss - what do you have residual from you injury?

                      I see mine are 'changing' so to speak. My arm is like it's fake to me. The only reason I feel anything isn't from that hand, but from the point I am touching, I do get alot o neuropathy, and burning at times,constant pain but like INNER pain not surface type pain.

                      I also just realized I have weakness as well on my right side stomach and rib cage as I tried (unsuccessfully of course) to do a crunch due to this nice gut and love handles I have developed thanks to the strong steroids as well as lack of full mobility - I can only be up about 2hrs- 3 is pushing it- 4 I'm shot and taking anotherpain pill. But when I tried to do the crunch I realized I cannot when trying to rely on the right side muscles. It was upsetting to find out another part that doesnt work.

                      I'm 4 months in now, and just learned that one- so- its kinda back to the drawing board emotionally in a way. IDK. Just really hard. I have a psychotherapist now thankfully. I am having a rough time with this.

                      Thanks again so much for your response, I'm sorry it took so long for me to respond I didn't know i had a post on my thread. Have a great day- and I am very glad to hear about your recovery!
                      Last edited by rosieC12; 03-22-2012, 08:31 AM. Reason: needed breaks/ paragraphs too hard to read

                      Comment


                      • #12
                        Hi White so sorry I just saw your post. It was done in a medical setting, really that's all I can say regarding it. I'm sure you understand why

                        Thanks for the support- this is a very hard thing to go through, and emotionally even worse. I have so much respect for all those who are dealing with, or have gone through this, as I realize and notice how 'lucky' I am, even though being in my shoes at times, it truly doesn't feel like 'luck' at all. With the levels of pain and so many things going on or that are wrong, there is many a time I wonder which would have been a better outcome- truly.



                        Thanks.

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                        • #13
                          Thanks Bill !
                          Impressing bowling there

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