Announcement

Collapse
No announcement yet.

New t12

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • New t12

    I sustained a t12 fracture 3 months ago, along with swelling and bruising of the cord. I was told by my surgeon and neurologist that recovery can take up to 12 months. After that I can evaluate where I'm at, and thats as good as I'll get. Can anyone attest to that??

    The surgeon said that extensive PT is very important at this time. I am currently going to FL Hospital Sports Rehabilitation for that.

    I continue to have trouble with my bladder and bowels. I'm seeing a nurse there who is doing biofeedback with me. Has anyone experienced any success with that?

    I am currently using a cane and when wearing sneakers I have a leg brace that lifts my foot because I'm dealing with a dropped right foot. Anybody relate??

    I have an Electronic Stimulation Device that I use twice daily on my right leg hoping that it will help with the dropped foot. I live in FL and i want to wear sandals when it gets warmer....Hope?! I absolutely love going to the beach...

    I'm hoping and praying to recover as much as I can to live the way I used to...very independent, great career, driving my car, cooking, cleaning my house, etc..

    Anyone...please..
    Life is what happens to you while you're busy making other plans. -- John Lennon

  • #2
    Goodness, I can relate to all those things! I was injured 15 months ago in a tornado. I broke my L1 and L5 which have now been replaced by metal. It's been a long road. I was in a wheelchair for five months and then have made a progression to walker, crutches, canes and now, hiking poles.

    My drop foot has cleared up on both feet and I no longer wear AFOs. I can drive my car without hand controls but had to give up my beloved manual for an easier automatic.

    B&B has also improved and is almost back to normal.

    It is a long road and your doctors are correct that physical therapy will be very important for you. Not only can they help you strengthen what you have but they can also help you refine your gait, build stamina and make adaptions until your recovery is complete.

    When will that happen? No one knows. The fact that you are up and walking with a cane in such a short time is remarkable. Keep working hard and give yourself time to heal.

    As for the sandals...well, I've put my crocodile stilleto boots in a box in the closet. Just couldn't bear to look at them any more. Maybe someday I'll be able to bring them out again. For now, I'm happy to get into a pair of sketchers and be up on the treadmill.

    Be happy with the recovery that you have so far. Be grateful for every day...every minute of life. Vow to live your life well, no matter what your abilities. Find ways to enjoy your days while you recover.

    Comment


    • #3
      Very wise Truly!

      Lip 26.... Glad you found this forum and sorry you need to be here. There are alot of people that can share their experiences with you but the thing that becomes very evident is that each one is unique. Just because CC member A regained B&B function in 5 months does not mean that CC member B will even though their injuries are very similiar.

      You are very lucky to have regained what you have so far and hopefully you will get it all back. I just like Truly's advice stressing gratitude. I have read so many posts about people who drive themselves crazy because they cannot get back to "like they used to be!" Keep being grateful for every bit of progress you make day to day. Not gauging yourself against how you "used to be" but gauging today against yesterday!!! Progress gets you there and an attitude of gratitude makes the ride a bit smoother.

      Truthfully at 3 months post injury you are still VERY early in the process.

      Glad you found us here and please understand there are no stupid questions. You will find alot of understanding and compassion here from those that have lived or are living what you are.

      I know I have not answered your specific questions because I cannot answer most of them but I hope some of this helps.

      Grange
      L1 Complete - Injury 3/12/06 - Grateful to be alive!!!!

      Comment


      • #4
        One other observation and bit of shared experience. Not all PT facilities are equal especially when it comes to SCI. A sports physical therapist might do great working out the kinks after a bad day on the basketball court but they may not know dodlesquat about rehabbing an SCI. I would encourage you to find a place that specializes in SCI. It can make a big difference!!! Hopefully the facilities you are using now are well versed in rehabbing SCI!
        L1 Complete - Injury 3/12/06 - Grateful to be alive!!!!

        Comment


        • #5
          cant a person with your level and duration of injury get in the geron trial?
          (sorry, I don't have all the facts and figures)
          "That's not smog! It's SMUG!! " - randy marsh, southpark

          "what???? , you don't 'all' wear a poop sac?.... DAMNIT BONNIE, YOU LIED TO ME ABOUT THE POOP SAC!!!! "


          2010 SCINet Clinical Trial Support Squad Member
          Please join me and donate a dollar a day at http://justadollarplease.org and copy and paste this message to the bottom of your signature

          Comment


          • #6
            Man o man are you lucky. Hey welcome to CCC. The reason I say that you are lucky is because you apparently only had swelling a bruising of your spinal cord. If you study the SCI on this site, you can start to see a pattern. Just shocking the spinal card is about the easiest SCI to get over, compared to having bones shoved in to it. Thats why you are up and about so soon. That being said its still a very difficult injury to get over. When you go to physical therapy, that should be your ease days. In other words workout at home far harder. Just keep at it, Make exercise your job for now. Look back at how far you have come, and try to just live one day at a time
            T12L1 Incomplete Still here This is the place to be 58 years old

            Comment


            • #7
              Thank you all,
              Flying -- Is there such a thing as doing too much to early in the game?
              Isn't rest really important to healing as well?

              If you don't mind Truly and Grange, how old are you? male/female?
              Life is what happens to you while you're busy making other plans. -- John Lennon

              Comment


              • #8
                Originally posted by LIP26 View Post
                I sustained a t12 fracture 3 months ago, along with swelling and bruising of the cord. I was told by my surgeon and neurologist that recovery can take up to 12 months. After that I can evaluate where I'm at, and thats as good as I'll get. Can anyone attest to that??

                The surgeon said that extensive PT is very important at this time. I am currently going to FL Hospital Sports Rehabilitation for that.

                I continue to have trouble with my bladder and bowels. I'm seeing a nurse there who is doing biofeedback with me. Has anyone experienced any success with that?

                I am currently using a cane and when wearing sneakers I have a leg brace that lifts my foot because I'm dealing with a dropped right foot. Anybody relate??

                I have an Electronic Stimulation Device that I use twice daily on my right leg hoping that it will help with the dropped foot. I live in FL and i want to wear sandals when it gets warmer....Hope?! I absolutely love going to the beach...

                I'm hoping and praying to recover as much as I can to live the way I used to...very independent, great career, driving my car, cooking, cleaning my house, etc..

                Anyone...please..
                I can relate. I am 23 years post and female. T12-L3 fusion with L1 or L2 being my crushed vertebrae, I went through bucket seats backwards and was pinned in a car all night. Injury level is different from function level and it sounds like you are functioning at a sacral level injury like me.

                I like you had massive recovery in the first year. Another lady here, Bente from Europe shares our injury level also. I went from not being able to stand to walking with forearm crutches and then to a cane to walking with nothing but AFO's in 6 months. I still wear both AFO's because I never recovered my ankles/movement.

                Every injury is different. I have changed over the years even at 23 years. I will not say that my changes in the last 8 years have been positive as I age. I worked hard young being injured at 20. I raised a daughter by myself, went to college, and did everything myself including forcing myself to drive a manual vehicle. I would not let my physician order a wheelchair for me because I wanted "that" full recovery.

                You can still have everything you want in life. I have and did including a career that has killed me to let go of. I have always had a "half full glass" mentality. If it could be done and we wanted to do it, my daughter and I did it. She was 6 months old at the time of my accident and I missed her first steps the day before I came home from the rehabilitation hospital. I made it a point to NEVER miss anything else. I am getting ready to make my 8 or 9th cross country trip...the others I have made alone.

                So what I am saying to you is....take care of your body while you are young. It will save you pain in the later years. That is my advice. Walking is not living...being happy and living life is living. Don't focus on a "full recovery" as it may not come but get the most out of recovery that you can if that makes sense.

                You can wear sandals with your AFO. There are lots of independent women here LOL. Injury has not stopped them from living or being happy. Sometimes I have to step back and look to see my half full glass. Don't forget to laugh.
                T12-L2; Burst fracture L1: Incomplete walking with AFO's and cane since 1989

                My goal in life is to be as good of a person my dog already thinks I am. ~Author Unknown

                Comment


                • #9
                  Re: biofeedback for your bladder what were your Urodynamics results?
                  Since it is most likely neurogenic it depends on what biofeedback she is doing and what the bladder is doing and if you have any type of control.
                  CWO
                  The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

                  Comment


                  • #10
                    Originally posted by LIP26 View Post
                    Thank you all,
                    Flying -- Is there such a thing as doing too much to early in the game?
                    Isn't rest really important to healing as well?

                    If you don't mind Truly and Grange, how old are you? male/female?
                    Sorry, LIP26, I got distracted and never made it back to this post. I'm female and 54 years old. I was very fit before my accident and did lots of walking, hiking, kayaking, snowshoeing, biking. Now, my efforts are all pointed towards strengthening and recovery.

                    You do need rest. Rest is just as important as exercise. However, I'm a firm believer in 'use it or lose it'. Now's not the time to slack off on your workouts. Give yourself a day or two of rest during the week and then give it your all the rest of the time.

                    Best wishes on your recover. I hope it goes well and you're back to the life you loved before this all started.

                    Comment


                    • #11
                      Originally posted by SCI-Nurse View Post
                      Re: biofeedback for your bladder what were your Urodynamics results?
                      Since it is most likely neurogenic it depends on what biofeedback she is doing and what the bladder is doing and if you have any type of control.
                      CWO
                      I'm going to get another opinion from a urologist next week. the one i saw said that i have an overactive bladder, gave me Vesicare and told me i'd be taking it for life. BS!!
                      The biofeedback nurse told me to buy dilators to weaken my tight muscles, so i could work on strengthening them the right way. I've definitely weakened them because i've had so many accidents (in public and private) since they've been weakened. Now is the time to strengthen them...much easier said than done. any tips??! the bladder muscles seem to tighten up right after she loosens them up by pressing on them. The EMG show that they're shooting up towards tightened when i'm relaxing. I feel the urge to go to the bathroom, then i go. I'm stuck wearing Poise depends type pads all the time, and still I piss my pants..
                      Life is what happens to you while you're busy making other plans. -- John Lennon

                      Comment


                      • #12
                        First off - it is all about your pressure, pressure, pressure (don't want to have kidney failure. And only Urodynamcis can tell you that pressure).
                        think of it like your blood pressure-no one reallycare what your pressue is in your arm but it is the way to measure and treat and prevent hypertension which can lead to heart disease, strokes, kidney failure and death. So Urodynamics and the testing of the bladder first and foremost is looking at potential issues-early- like testing blood pressure an a routine basis.

                        So,,, in a nutshell-SCI bladder 101- everyone is different and you can NOT just go by your level of injury, your ASIA classification, only your symptoms( look at that but need the test), your injury ( important but can't tell everything- etc.. So here is more information so you can make a decision and ask more questions of the doctor and try and get a better understanding fo the bladder/sphincter/kidneys and how your SCI has affected this. The nervous system is very complex, and the bladder is really complex and therefore so are you.
                        So...to know exactly what is going on-you must have complete video urodynamics (i.e. pressure testing , x-rays while to filling, voiding etc). The bladder(detrussor ) is a muscle, The sphincters (each one is a different type of muscle).
                        So what did the Urodynamics show? Is that what the urologist looked at? If you have NDO-neurogenic detrussor overactivity or commonly called overactive bladder-what is your max capacity? What is your post void residual?
                        You need to be on an anticholinergic like Vesicare-because the bladder is spasming at a small capacity (and you don't have the normal warning and you can't inhibit the contraction at all) and is from the SCI and its response to your injury- has nothing to do with control or weak muscles.The anticholinergic relaxes the bladder so it will hold more and stops the overactivity of the bladder.Biofeedback won't help this because it is not conscious. What Biofeedback MIGHT help- but we really don't use it very much for SCI- is if you took the medication and still had urgency symptoms but no bladder contraction and it can help you to learn to ignore those.
                        Do you have DSD? Detrussor sphincter dysnergy- that is when the bladder is contracting, the sphincter is supposed to open and let the bladder drain but doesn't- lets a little out at a time.
                        Can't say what you would need for your lifetime but reevaluate your symptoms and do repeat urodynamics.
                        Also were your resting and voiding pressures ok ? High pressures are common and Vesicare will help with that.
                        You do NOT want to have high pressures and have kidney issues in the future. This used to be the number one cause of needed renal dialysis or death from kidney failure years ago. (And should the meds not keep leaking, accidents, high pressures down that is when Botox is probably the next option.)
                        I strongly suggest you make sure everything you are doing is safe for your kidneys-FIRST- then take what it helps to so you won't have accidents etc.. and then worry about voiding and what you will need for the future or not.
                        Yes the anticholinergics like Vesicare (we use more Oxybutynin but same class) help you hold more, move the contraction till later (and you can try and void with that if your voiding pressures aren't sky high) and keeps the pressure down. I am assuming-on urodynamics your pressures were safe or if not this biofeedback person needs some education.
                        Think of the Vesicare as helping with your biofeedback and see.But since I don't have your total picture- and the urologist should- you really need to look at it- and who ordered the biofeedback if not the urologist?

                        For those of you with a NDU-neurogenic underactive bladder -aka areflexic bladder - or one that is hypocontractile with low amplitude contractions- that is different- pretty much totally opposite you wouldn't have high voiding pressures but you would still need urodynamics periodically to make sure your resting or filling pressure don't elevate because over time they can- bladder becomes less compliant or stiff due to collagen build up. An intermittent cath should be the intervention.
                        If leaking in between, may need anticholinergic but that is usually more sphincter issue. ( If don't have a UTI- a UTI makes the bladder overactive and leaking occurs so that can be a symptom or UTI. - lekaing when don't usually or more leaking and should be treated.)
                        Also in SCI- even if you can walk and everything else is normal- doesn't mean your bladder will be and vice versa.
                        If someone wants me to look at your specific urodynamics results you can send them to me in the private messages- but I need results of the complete study to look at- up until Sunday when it is turned over to another nurse.


                        CWO
                        The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

                        Comment


                        • #13
                          wow...thats a lot in a nutshell!
                          I go to see the biofeedback nurse tomorrow, i'm going to print out your whole response and take it with me.
                          My former urologist did urodynamics and was not very helpful, didn't really explain anything, didnt even give me the results, but told me i'd be taking Vesicare for life.
                          I'm going to see another urologist, who will have those results to go over with me and i believe he'll do another test.
                          I thought that biofeedback was done in an attempt to retrain muscles so that drugs wouldn't be necessary. I'm not about taking so many drugs at all.

                          Thanks again, I'll be in touch.

                          Lisa
                          Life is what happens to you while you're busy making other plans. -- John Lennon

                          Comment


                          • #14
                            Originally posted by LIP26 View Post
                            wow...thats a lot in a nutshell!
                            I go to see the biofeedback nurse tomorrow, i'm going to print out your whole response and take it with me.
                            My former urologist did urodynamics and was not very helpful, didn't really explain anything, didnt even give me the results, but told me i'd be taking Vesicare for life.
                            I'm going to see another urologist, who will have those results to go over with me and i believe he'll do another test.
                            I thought that biofeedback was done in an attempt to retrain muscles so that drugs wouldn't be necessary. I'm not about taking so many drugs at all.

                            Thanks again, I'll be in touch.

                            Lisa
                            I have urodynamics about every 2 years. I have pressure to push the urine out but I can't hold it in. I have a neurogenic bladder. I have never catheterized and I use Enablex to stop bladder spasms.
                            T12-L2; Burst fracture L1: Incomplete walking with AFO's and cane since 1989

                            My goal in life is to be as good of a person my dog already thinks I am. ~Author Unknown

                            Comment


                            • #15
                              do you have any bowel issues? mines neurogenic as well.
                              Life is what happens to you while you're busy making other plans. -- John Lennon

                              Comment

                              Working...
                              X