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  • New T-12 Complete

    Hello everyone, I'm new to this forum and also a new T-12 patient. My injury was May 7th of this year. I spent 6 weeks in the hospital but am home now attending outpatient therapy twice a week. I have no bowel or bladder control but definitely hope to gain that back. I have hips and ab muscles which helps alot. Just this past friday I was fitted with some leg braces and with the help of my therapists took a couple of steps. My hip muscles are very strong. My question is, I see alot of T-12 incomplete here but no completes: Is is possible for a T-12 complete to regain his bowel/bladder control? I do hope to regain both but its not the end of the world if I don't...I feel lucky to be alive.

  • #2
    Welcome to CC. I don't have the answers you are looking for, however, it sounds like you are getting some good return. Your injury is so new that anything can happen. Work hard, REALLY HARD and you may be one of the lucky ones!

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    • #3
      Welcome Kayrog. Dang, sounds like you are doing great. Mombo is so right telling you to work really really hard.

      Your injury is really new, a lot of the spinal connections could still be in shock or so weak they just don't registar yet. I know guys who got much return as late as 9 years later. It's not that the cord repaired itself but more than likely worked them in ways they didn't or couldn't before and the core muscle got stronger..

      As for B&B coming back, in many cases it does. If not at least you have the capacity to be 100% independent. What comes back will come back, right now is the optimum time to work your butt off towards that goal. It's going to be okay.

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      • #4
        Sounds like you have already gone beyond the T-12 level of function. Hip flexors dont usually kick in till you get down to around the L-2 level of function. This either tells me that you're WAY incomplete or that your functioning level is lower (read better) than your injury level.

        I have a T-12 complete injury and believe me, i only wish I could control my hips in any manner.

        Like everyone else is telling you, your injury is still too recent to know where it may settle out. Most Dr's I've talked to say that there's about a 2 year window that you may get full return or not. Just keep trying and working at things, for science cannot predict just how much you may get to return.

        Good luck, and keep up the good work.

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        • #5
          Madsen is right. Regardless of the outcome down the road, you will be independent either way. This is absolutely the most important thing to remember. Work work work extremely hard for the first 18-24 months. There are bladder and bowel exercises. I was injured in 1999. Shortly after I took a bladder function test. My urologist told me I'd never get bladder return, period. Within 4 years I was able to void throughout the day on my own, using single-use catheters in morning and at night. One thing you'll learn about spinal cord injury is that each and every one are a bit different, and although doctors have educated suggestions/opinions, they're not final conclusions.

          You seem to be light years ahead of me 1 year post-injury, as you've already found Care Cure Community, and 12 years post injury I've just now become a part of the community. Good luck to you KayRog.
          "Be stronger than all your excuses...."

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          • #6
            Here's a o;d thread with T12 incompletes and completes. Hope it helps!

            /forum/showthread.php?t=34271

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            • #7
              Welcome KayRog,

              I can't help much as I am a quad but you will find an abundant amount of help and friends here.

              Good luck.
              Millard
              ''Life's tough... it's even tougher if you're stupid!'' -- John Wayne

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              • #8
                I am T12 complete. I have bowel and bladder sensation, no true control. It helps with timing though. I have no hips, but I have some muscles in my thighs firing. I can use leg braces but due to spasms can not get them on alone. SO I rarely use them and if so it is for exercise and stretching rather than function. Good luck to you.
                If you can't handle me at my worst, then you sure as hell don't deserve me at my best.


                Sometimes it is easier to widen doors than it is to open minds.

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                • #9
                  Welcome to the forum, KayRog, and best wishes with your rehab.
                  MS with cervical and thoracic cord lesions

                  Comment


                  • #10
                    Certainly sounds like you're incomplete. Many people are misdiagnosed as complete when injured - my son was.

                    Work hard and exercise, exercise, exercise. Consider pool therapy too. That made a big difference for my son (L1).

                    Your injury is still very new, even just using the muscles you have control of now you will make great strides in learning how to use them to do things you wouldn't believe possible now.

                    My son started with KAFO leg braces and they were great -- he used them with a walker to start with before moving to loftstrand crutches -- if nothing else they are good for standing and a lot cheaper than a standing frame. Just relearning how to be upright is huge -- plus it is really good for your body.

                    Best wishes.
                    Ugh, I've been kissed by a dog!
                    Get some hot water, get some iodine ...
                    -- Lucy VanPelt

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                    • #11
                      Hi there
                      Are you sure your incomplete. Try taking your finger and try to feel anything around your anus. If you can feel anything at all you are incomplete.
                      Welcome
                      T12L1 Incomplete Still here This is the place to be 58 years old

                      Comment


                      • #12
                        Originally posted by KayRog View Post
                        Hello everyone, I'm new to this forum and also a new T-12 patient. My injury was May 7th of this year. I spent 6 weeks in the hospital but am home now attending outpatient therapy twice a week. I have no bowel or bladder control but definitely hope to gain that back. I have hips and ab muscles which helps alot. Just this past friday I was fitted with some leg braces and with the help of my therapists took a couple of steps. My hip muscles are very strong. My question is, I see alot of T-12 incomplete here but no completes: Is is possible for a T-12 complete to regain his bowel/bladder control? I do hope to regain both but its not the end of the world if I don't...I feel lucky to be alive.
                        My break included T12 with a crush at L1 or maybe L2 (I think after 23 years and a few drinks last night I am fuzzy this morning) but my function level is more S1 or S2. Your injury level is not necessarily your function level. I have hips like you and I am considered complete because of the anus thing. However, I walk with AFO's which are braces that fit me below the knee. My knees move but my feet/ankles are paralyzed as well as various areas along the backs of my legs/butt. I use my abdominal muscles to power my legs/hips also. I can tell when my bladder is full but I do not have sphincter control to hold it in. I can push the urine out. I have not used a catheter since I left the hospital in 1989 but it has taken its toll on my bladder. Same thing with my bowels. I take anti-spasmodic medications for both bowel and bladder to keep control of them. My legs are flaccid which means I do not have spasms but my internal organs like my bladder and colon are spastic. According to my doctors in the past, I am right the opposite of what I should be so my injury does not match my function. Like you, I am just glad to be alive most days LOL. I do have central pain/neuropathic/nerve pain in my legs. You can read more about that in the pain forum here.

                        My accident happened on May 5, 1989. May is not a good month LOL. I spent two weeks in a trauma hospital and 6 weeks in a rehab hospital...how creepy is that? 6 weeks must be a magic number?

                        I hope this helps....ask if I can help in any way.

                        Get all the exercise you can in the pool...this will be great for you. I learned to walk again and gained back my strength mostly in a pool even in the dark 80's LOL.

                        Welcome to the forums.......Good Luck in your recovery and keep us updated. There is lots of information here.
                        T12-L2; Burst fracture L1: Incomplete walking with AFO's and cane since 1989

                        My goal in life is to be as good of a person my dog already thinks I am. ~Author Unknown

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                        • #13
                          Originally posted by flying View Post
                          Hi there
                          Are you sure your incomplete. Try taking your finger and try to feel anything around your anus. If you can feel anything at all you are incomplete.
                          Welcome
                          I have been diagnosed over the years as complete and incomplete depending on which doctor was examining me. I guess I am just one of the strange ones. I have no feeling there but have it other places. How strange is that? LOL
                          T12-L2; Burst fracture L1: Incomplete walking with AFO's and cane since 1989

                          My goal in life is to be as good of a person my dog already thinks I am. ~Author Unknown

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                          • #14
                            called ZPPs- zones of partial preservation but you can still be considered complete ( per ASIA guidelines) with ZPPs.
                            CWO
                            The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

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                            • #15
                              Complete T-12

                              Thanks everyone for the comments. Since my accident I have regained to L-1 ...I still have no bowel or bladder control but I can tell if I have to go. For bowel, I usually get a pain in my stomach and for the bladder its a different feeling which I can't describe. Its hard getting used to being paralyzed but I'm getting there. I attend outpatient therapy 3 times a week which include swimming and it all helps...I hope to regain everything back. I'm only 4 months in but I have high hopes to walk in.

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