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T12 - Incomplete . NEWBEE

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  • #16
    Last night my brother's blood pressure was high, he had been in the wheel chair all day so the nurse thought with all the medication he's on it could result in high blood pressure. We got him to bed and his blood pressure was normal. He kept saying how his thighs felt really funny like he could move them. The last few nights when he gets in bed he says he feels like he should be able to pick his legs up, HE NEVER SAYS THAT. I can't decide if this is in his head or if it's something he's actually feeling. We told him to try and move his legs but it was more just hip movement that made his legs look like they were moving. I'm at a loss of what to do right now. He still has his back brace as he is still on "spinal cord precation" so it's limiting his thearpy. He only goes one day a week but does continue to do ROM/stretching 2x a day. Has anybody felt anything like this at this level? I'm so confused on what to do next.

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    • #17
      Can he do more exercise than this? Is he able to get any home exercise equipment to use on his own or with the help of family. Equipment such as an arm ergometer, Vitaglide, free weights or a pulley system and Theraband can go a long ways to continuing daily or every other day strengthening and conditioning.

      Were you (and he) taught about autonomic dysreflexia while he was in rehab? This is critical! That is probably the cause of his high blood pressure, and could be related to incorrect wheelchair fit or wheelchair cushion in addition to the more common causes (too full bladder, too full bowel, or any other sources of body pain below the level of injury). It is critical that you know about this, and what to do to manage it at home.

      (KLD)
      The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

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      • #18
        Thanks for the information. As far as (AD) I thought this was for people with higher level injuries than a T12. Please correct me if I'm wrong.

        He's had a rough couple weeks. He has a partially collapsed lung and now has phneumonia in that lung. They put an IV in him and put him on stronger medication.

        He's struggiling with his bottom hurting from sitting in the wheelchair so much. suggestions?

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        • #19
          I'm a T12 and I have AD. Mine's tied to my bladder it seems.
          If I got to go I end up with stabbing pains in my hip/upper thigh.
          If I have a bladder infection the pain can just go wild.
          Rick Brauer or just call me - Mr B

          http://www.riseadventures.org

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          • #20
            My son is an L1. It took about six months before his blood pressure settled down. At first he would have to sit on the side of the bed for a while if he was going to adjust to being upright instead of laying down. Similarly if he moved any direction too fast. He also felt sick to his stomach too. It takes time, but it will likely pass -- just part of the adjustment process.

            Is he on medication for the nerve pain -- such as neurontin?

            feel free to message me with any questions.

            best wishes.
            Ugh, I've been kissed by a dog!
            Get some hot water, get some iodine ...
            -- Lucy VanPelt

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            • #21
              Brittani,

              Regarding your original post, the parallel bars are good for your brother. But he can also do leg exercises, even while relaxing in bed between therapy sessions. These are the months that it's extremely important to do as much as possible to maximize muscle return. Although the physical therapists treating your bro went to school for what they do, more exercise can only benefit.
              "Be stronger than all your excuses...."

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