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  • If any new quads have questions

    For any new quads who may be going through a lot of emotions or fear of the unknown or whatever feel free to ask me anything. I've been a C-4 quad since 1993 and have been through a lot. From nursing homes and their abuses to many other issues but now I live by myself and have been for about 3 years with the help of CAP Services and friends. Feel free to ask away.

  • #2
    Thanks for the offer. I know it will be appreciated
    CWO
    The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

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    • #3
      Hi coolquad, Nice to meet you.
      I wish I knew someone like you back in 2008 when my husband fell from a tree and broke his neck.
      It was so confusing and so much wrong information until he got to rehab.
      Maybe you could write an intro about yourself and how you got to where you are now.

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      • #4
        Hey man, I read your website and what an amazing story. You should be filled with pride that you have managed to endure after facing such adversity, you are truly an amazing young man.

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        • #5
          I didn't see the website until T pointed it out-will take a look when things quiet down over here.

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          • #6
            Thanks, Acoolquad. You have a very nicely constructed website. Always nice to have the voice of wisdom and compassion in one package.

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            • #7
              Hi Tony,
              Welcome to the Care Cure Community. It is always great to have additional resources and perspectives on this site. Every day, people suffer spinal cord injuries or medical conditions. While searching and waiting for a cure, care is key to staying physically healthy. Living your life well is central to good mental health.

              All the best,
              GJ

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              • #8
                welcome

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                • #9
                  You are AMAZING. We live in raleigh-durham, and have disabled friends (that we met here) down in Charlotte. When we go to visit them this spring, we would love to swing by and meet you, or all five of us meet up! PM me and I'll get you my contact info.
                  Wife of Chad (C4/5 since 1988), mom of a great teenager

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                  • #10
                    Welcome! I'm sure many here need you. I have a friend that was just put back into the system(c4-5) after a recent divorce. He isn't a US citizen(from Jamaiica on a sports scholarship when hurt) so he is stuck in the n. home scene again. He feels so isolated & me as well as his other quad friends have always been more fortunate so we can only offer so much support. He doesn't want to come here but I know he'd love to swap emails or calls with another guy that "knows". Will you please forward me your info so he can contact you?

                    I think there's another n. home bound member here too, anyone remember his name? I'm sure he'd love the hope & inspiration you can offer too!

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                    • #11
                      Andre (his name and his username) is in a nursing home - but I haven't seen him post in a very long time. I might be able to track him down though.
                      Wife of Chad (C4/5 since 1988), mom of a great teenager

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                      • #12
                        Ok..there's another one though, Ami. Screen name starts with a C.

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                        • #13
                          Originally posted by acoolquad View Post
                          For any new quads who may be going through a lot of emotions or fear of the unknown or whatever feel free to ask me anything. I've been a C-4 quad since 1993 and have been through a lot. From nursing homes and their abuses to many other issues but now I live by myself and have been for about 3 years with the help of CAP Services and friends. Feel free to ask away.
                          ACoolQuad/Tony,

                          You have a great story and website; thanks for sharing. I hope you are well and able to participate and share your experiences and knowledge here like you indicate you want to with your first post.

                          Take care and God bless!

                          Bill Miller
                          Wheelchair users -- even high-level quads... WANNA BOWL?

                          I'm a C1-2 with a legit 255 high bowling game.

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                          • #14
                            Have you ever been able to move your legs, even as a spasm? What does a spasm look like? Because my brother moves his legs like any normal person would, not shaking or anything like that. And sometimes re-positions himself on his chair.

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                            • #15
                              A spasm can look like a normal movement if mild an infrequent. Also your brother could be incomplete and have muscles that he can move but are very weak that he can control or he might have spasms and some control that he can use together to move. What is his ASIA score? What does he say?
                              CWO
                              The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

                              Comment

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