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recovery L1 incomplete post 1 year

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  • wesmaister
    replied
    Originally posted by sweettangerine View Post
    How is everyone doing? My SO had a burst L1 fracture 4 months ago, incomplete.
    How is the recovery going? I haven't had much luck and now doing my life sentence

    Leave a comment:


  • sweettangerine
    replied
    How is everyone doing? My SO had a burst L1 fracture 4 months ago, incomplete.

    Leave a comment:


  • OnTheWhip
    replied
    I want to add some positive recovery vibes to this thread. I've spent a lot of time scouring the internet for positive outcomes since injured and was crestfallen to find not many at all. I promised myself that I would come back and post if things got better. Well, they have.

    Suffered burst L2 (plus T6 T10 compression, 5 broken ribs, collapsed lung, leaky spleen) in motorcycle accident January 30, 2016. Surgeon said cord 75% crushed. 360 fusion to stabilize. Never lost ability to walk. Actually feel pretty strong in the motor department. Symptoms mostly sensation loss, tingling, saddle anaesthesia, some loss of sensation in right foot (outside thigh, heel, last three toes) neurogenic bladder (LMN) and bowel. Low sensation sexual function. It works, just not as well as it used to. CIC catheterization and bathroom discipline helped with B&B. Chronic constipation is my primary bowel issue. All in all it could have been much, much worse. Every step is a blessing.

    Doc advised me to give recovery two years. With no improvement I would probably need to CIC for the rest of my life. Did bladder dynamics test and had a big fat zero on one aspect (sphincter relaxation? can't recall). For all this time I just had no urge or ability to void on my own at all. I would try to go on my own every once in a while, just to check. Zip. Nada. After one year I had pretty much accepted that this would be my life sentence.

    About 4 month's ago I started thinking that I was feeling some urge here and there. But - and I'm sure a lot of you know what I'm talking about - I had learned not to trust these feelings because they never panned out. I'd CIC when I felt the urge. Sometimes with hardly any production at all. Nevertheless, they continued until, about a month ago, when they became really strong. My routine has always been to get out of bed and head to my desk to check email, etc. I had been able to sit there as long as I felt like it until I consciously decided to hit the head. Well, not anymore. I found myself squirming within about 30 minutes. Still I would just take that as a signal to get a the catheter.

    Early last week, after running to the bathroom and prepping the tube, I decided to just give it a "shot". HOLY CRAP! WTF? I shot pee all over the place. (Out of practice LOL). Couldn't believe it. Strong stream, too. Didn't last too long. Still used the tube, after, and I was retaining a pretty good amount of urine.

    But since then it has just gotten a little bit better every day. I am usually able to go when I feel the urge. I have been following up with the tube and I'm not retaining much, if any, now. It is a little weird because my ability seems to diminish as the day goes on. Early in the day, I'm voiding completely. Late at night I have to use the tube.

    I just hope it continues to improve. It's wonderful to have this little bit of normalcy return. It is now 522 days and counting.

    So, recovery does occur. i don't know how far it will come back or if this is even permanent. But I'll take it. Best of luck to everyone.

    Leave a comment:


  • SCI-Nurse
    replied
    checking in

    [QUOTE=dom;1516964]
    Originally posted by dinah View Post
    Hi there,
    I just wanted to check in again after my husband (boyfriend at that time) fell off a horse and had a burst fracture of L1.
    He was always able to walk but had weak calf and ankle muscles as he had damaged the S1 and L5 nerves and had B&B problems.
    Cauda Equina syndrome. During the rehab period he tried a lot of things like Kryotherapy (being frozen in a chamber for 3 min), Acupuncture, Physiotherapy, Pilates, Magnetic resonance...Trying things out really helped to keep our spirits up.
    He started to urinate again 2 months after the injury and has urinated ever since. He still suffers a little from urgency.
    Also he still has some bowel problems that cause him constipation. After the injury he could get an erection but was not able to ejaculate- he regained this function 4 month after the accident. He has still not recovered full strength in his legs - but we are keeping very positive. He is going to walk 250kms through the atacama desert for a spinal cord research charity. This accident opened up or eyes and we are so incredibly grateful with where we are and what he is being left.
    This site has been amazing and I just wanted to send out a positive recovery story. Happy xmas and good new year with a speedy recovery!![/


    that is great i also have L1 incomplete burst fracture i can walk no problem like an ab but have to use catheter, i can ejaculate and get an erection as well my right calf is a bit weak but nobody would notice it
    Dear dom
    I am glad you have been able to use the resources from this site. If you need more references, please check out the Consortiuum for Spinal Cord Medicine consumer guides at this website: http://www.scicpg.org/cpg_cons.htm#BWL

    pbr

    Leave a comment:


  • dom
    replied
    [QUOTE=dinah;1301221]Hi there,
    I just wanted to check in again after my husband (boyfriend at that time) fell off a horse and had a burst fracture of L1.
    He was always able to walk but had weak calf and ankle muscles as he had damaged the S1 and L5 nerves and had B&B problems.
    Cauda Equina syndrome. During the rehab period he tried a lot of things like Kryotherapy (being frozen in a chamber for 3 min), Acupuncture, Physiotherapy, Pilates, Magnetic resonance...Trying things out really helped to keep our spirits up.
    He started to urinate again 2 months after the injury and has urinated ever since. He still suffers a little from urgency.
    Also he still has some bowel problems that cause him constipation. After the injury he could get an erection but was not able to ejaculate- he regained this function 4 month after the accident. He has still not recovered full strength in his legs - but we are keeping very positive. He is going to walk 250kms through the atacama desert for a spinal cord research charity. This accident opened up or eyes and we are so incredibly grateful with where we are and what he is being left.
    This site has been amazing and I just wanted to send out a positive recovery story. Happy xmas and good new year with a speedy recovery!![/


    that is great i also have L1 incomplete burst fracture i can walk no problem like an ab but have to use catheter, i can ejaculate and get an erection as well my right calf is a bit weak but nobody would notice it

    Leave a comment:


  • flying
    replied
    L1 as well. 80 percent spinal compression, 14.5 months post. Workout all the time, and it helps for sure. Can walk about 100 feet at a time with arm crutches.
    Day at a time.

    Leave a comment:


  • SCI-Nurse
    replied
    Originally posted by mpmikevail View Post
    Hey dinah Im a 27yo army guy just injured 3/16/2012 overseas....L1 burst fracture....just got married 6 days ago...needless to say Im scared to death. Of course my wife tells me everyday i will get feeling and movement back in my legs....i have gotten little feeling back in my left leg but i pray everyday for more...please email me at XXXXXXXX so me and my wife can question you and your husband about this stuff it would be sooo appreciated!!
    Strongly advise you to NOT post your personal e-mail address on a public forum like this!! Members can PM you, or send you a e-mail if you turn that feature on in your profile. Please remove your address (or ask a Moderator to do that for you).

    Where are you currently in rehab? I assume you are at a VA SCI Center still at this point? Have you joined the PVA yet? We also have a Veterans forum here, and also a Sexuality forum. Please feel free to post at both places.

    (KLD)

    Leave a comment:


  • Patrick Madsen
    replied
    Hey MP, Welcome Home Brother. Glad you made it but sorry you came home injured. Congrats on just getting married.

    If you want to contact Dinah, I suggest you click on her name in her post and there should be a button to e-mail her. I don't think she comes here anymore.

    Lots of info here. Lots of vets. Good luck, work hard to maximize your potential. I'm sure you'll hear from a lot more here. Stay strong, it will get better. US Army(66-68)

    Leave a comment:


  • Guest's Avatar
    Guest replied
    Hey dinah Im a 27yo army guy just injured 3/16/2012 overseas....L1 burst fracture....just got married 6 days ago...needless to say Im scared to death. Of course my wife tells me everyday i will get feeling and movement back in my legs....i have gotten little feeling back in my left leg but i pray everyday for more...please email me at inkme20@yahoo.com so me and my wife can question you and your husband about this stuff it would be sooo appreciated!!

    Leave a comment:


  • Window
    replied
    Originally posted by RJP View Post
    I too am a L1 burst fracture with no recovery in bb can get an erection but cant finish, its great for the female but no so much for me
    We share the same level of sexual function, although I can finish but it takes a long time..as you said, woman loves it. But, erections were sometimes problematic...but
    I highly recommmend testosterone replacement therapy if you are low..it immediately gave me the full bidness..rockhard (no feeling except at the base) and feel much better during the day.
    I am a very incomplete L4 SCI from a .38 slug in an attempted gas station robbbery/homicide 1976.

    Leave a comment:


  • JEAPOW
    replied
    Thanks for advise don't understand the last post though?? It has been 3 months and I see my neuro this Fri. Maybe I can get a few answers I have a list of questions, lat month I was just happy to get my shell off. I do know the importance of exercise, I have a recumbent bike here at home and just started at PTusing the treadmill,I have been fortunate to have a good friend who owns her own PT buisness she is giving me a big break because I am self pay and will need PT for at least 6 more months.. I also had a blood clot hit my lung so I had a surgery the next week after my back surgery to have a greenfield filter put in. I am still thankful even though I know it is a long hard road ahead at least I am on the road right? And yes I am on some meds still too early to tell I think.....

    Leave a comment:


  • jerkens
    replied
    damn.. i want a functional right hand god damnit

    Leave a comment:


  • Keepin' On
    replied
    JEAPOW, I also had an L1 burst fracture, and as much of a problem as the impaired mobility has been, the effect of the neuropathy has been worse. SCI-Nurse is right about neuropathy meds--they can can help (though talking about one versus the other can set off a firestorm of opinions on these boards).
    The advice I can offer, other than finding out about neuropathy meds, is to find a good personal trainer. Doctors say you get most of your recovery in the first 6 months, and continue to improve for up to 2 years. However, my own experience has been working with a knowledgeable and patient but persistent trainer and then YOU following up with regular work outs can stretch the improvement period out longer. I still need canes (not to panic--sounds like I started off worse than you--I was in a TSLO for 7 months), but today someone who had not seen me for 3 months said I walking noticeably steadier and more upright. Training is no guarantee (as people say, YMMV--your mileage may vary), but is certainly worth trying. Keep pounding away at your disability with a trainer even after the insurance quits paying for PT. Best wishes.

    Leave a comment:


  • SCI-Nurse
    replied
    Sounds like you are recovering nicely, It is a long road but hand in there and don't give up. There is medication that can help the neuropathy.
    CWO

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  • JEAPOW
    replied
    I also have a L1 Burst Fracture from accident on 11-5-10/ I am still in outpatient therapy seeing my neuro Feb 5. I had tso right after the surgery and now have smaller back brace. I am walking very well with a walker trying to walk around the house just trying to get my balance back. I have neuropothy pretty bad especially in my feet. I don't seem to hve much problem with urination, but I have some bowel issues thank goodness for stool softeners++ I am trying to stay positive, but I am scared, this site provides my sanity and I love to hear all the wonderful stories.
    My son in law was driving the 4x4 trk I ws injured in and the next day he went and sold the trk back to the dealership it was brand new, he could not stand to look at it.
    If any od you have any advise. or want to share with me I would like that..
    Dinah--yes your positive recovery story touched my heart I pray mine will be the same

    Leave a comment:

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