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New Injury July 11, 2010

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    New Injury July 11, 2010

    My younger brother was in a car accident on July 11th, 2010. He was in the back seat of an excursion. He was 1 of 6 passengers. The driver thought he could make a left turn, but he couldn’t. My brother was the only one ejected from the car and the only one hurt. He suffered a traumatic brain injury along with a c5 injury. He has just started waking up from his coma around august 19th, 2010. He has been trying to move and his determination is amazing. He’s already improved movement in his left arm and can move his right arm pretty well. No movement in the fingers yet. We’ve seen plenty of leg movement but we don’t get too excited because it might just be a reaction, but I think any movement is good movement. I keep reading about brain or spinal injuries. I haven’t been able to find a story with someone who has both injuries like my brother. He was a very active baseball player and only 17 years old. I pray for a miracle everyday. We are starting to look for rehab facilities and will stop at nothing to get him the best. I read about this rehab in Atlanta that treated a boy with an incomplete C5 injury and the boy is now a cyclist and cross country runner. They haven’t confirmed yet but they’re pretty sure my brother has an incomplete injury. I would like to know how CJ is doing now almost 2 years later, if you don’t mind. And I’d love to hear other survivor stories for encouragement. My mother and father are devastated, any hope and encouragement that I can give them is great.

    #2
    Originally posted by Kalme001 View Post
    My younger brother was in a car accident on July 11th, 2010. He was in the back seat of an excursion. He was 1 of 6 passengers. The driver thought he could make a left turn, but he couldn’t. My brother was the only one ejected from the car and the only one hurt. He suffered a traumatic brain injury along with a c5 injury. He has just started waking up from his coma around august 19th, 2010. He has been trying to move and his determination is amazing. He’s already improved movement in his left arm and can move his right arm pretty well. No movement in the fingers yet. We’ve seen plenty of leg movement but we don’t get too excited because it might just be a reaction, but I think any movement is good movement. I keep reading about brain or spinal injuries. I haven’t been able to find a story with someone who has both injuries like my brother. He was a very active baseball player and only 17 years old. I pray for a miracle everyday. We are starting to look for rehab facilities and will stop at nothing to get him the best. I read about this rehab in Atlanta that treated a boy with an incomplete C5 injury and the boy is now a cyclist and cross country runner. They haven’t confirmed yet but they’re pretty sure my brother has an incomplete injury. I would like to know how CJ is doing now almost 2 years later, if you don’t mind. And I’d love to hear other survivor stories for encouragement. My mother and father are devastated, any hope and encouragement that I can give them is great.
    God bless your family. The road is a long one. I haven't got much back but I wanted to say even if they say he's complete he may not be. People make mistakes. My Dr said incomplete at the 1st hospital. Then complete at the Rehab. They said I'd never move anything. To stop trying & I did. Then I get here & Wise went over what I could feel & I'm incomplete. I still may have been the same but who knows if I'd tried I might have got back more. It's just a word. Have him work out & forget that word. Try as hard as he can to do everything! I pray God works a miracle for him. God bless him!

    Welcome to CC. There's a world of information here.
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      #3
      Our daughter is a c5 c6 incomplete see her blog at Roll 2 Walk Austin, TX

      Originally posted by Kalme001 View Post
      My younger brother was in a car accident on July 11th, 2010. He was in the back seat of an excursion. He was 1 of 6 passengers. The driver thought he could make a left turn, but he couldn’t. My brother was the only one ejected from the car and the only one hurt. He suffered a traumatic brain injury along with a c5 injury. He has just started waking up from his coma around august 19th, 2010. He has been trying to move and his determination is amazing. He’s already improved movement in his left arm and can move his right arm pretty well. No movement in the fingers yet. We’ve seen plenty of leg movement but we don’t get too excited because it might just be a reaction, but I think any movement is good movement. I keep reading about brain or spinal injuries. I haven’t been able to find a story with someone who has both injuries like my brother. He was a very active baseball player and only 17 years old. I pray for a miracle everyday. We are starting to look for rehab facilities and will stop at nothing to get him the best. I read about this rehab in Atlanta that treated a boy with an incomplete C5 injury and the boy is now a cyclist and cross country runner. They haven’t confirmed yet but they’re pretty sure my brother has an incomplete injury. I would like to know how CJ is doing now almost 2 years later, if you don’t mind. And I’d love to hear other survivor stories for encouragement. My mother and father are devastated, any hope and encouragement that I can give them is great.

      It has been 3 long years and our daughter is still having return of movement. Checkout her blog http://thesam4r2wblog.blogspot.com/2...-workouts.html. We go every month for 3 to 5 days, 3 hr. workouts and this time an amazing thing happened. She was able to keep herself upright leaning on a table with little or no support from her trainers Chad and Gray. Posture isn't perfect, but she was thrilled. Please see the video at her blog spot. She's been going to Roll 2 Walk, Austin since Jan 2010 and in between college she has been doing physical therapy. We have had doctors tell us that she wouldn't be able to do half the things she's already accomplished and doing. I had one doctor tell me she wouldn't be able to use her arms any more and I said to him you don't know my daughter's determination to get out of this wheelchair. She was sent home with a power chair to get around and she asked her physical therapist to fit her to a manual chair. This was only after 2 months post injury. She's still using her manual chair more often than her power chair. It keeps her posture in line to be in the manual chair. So after many months of justifying an assisting manual chair our insurance covered costs for another chair. What I have found out all that has happened in the past 3 yrs. plus it never hurts to ask WHY. I hope everything turns out for your brother and hang in there. Welcome to the BEST site about SCI (spinal cord injuries)!
      Aggie Mom 2007

      Comment


        #4
        Welcome to CCC. I'm sorry that your brother's injuries have brought you to this site, but there is a lot of information here and help from people who have had similar spinal cord injuries. You might benefit from searching this site by going to the top right of the page to the Google logo, in the box type in the level of your brother's spinal cord injury, check CareCure Forums, and search. You will find many entries to explore.

        You might also find more specific information about Traumatic Brain Injury at another forum website: http://traumaticbraininjuryforum.com/

        There is a lot for you and your parents to learn and I know it seems overwhelming. Take care of yourselves, listen to your brother's medical team, ask questions or search here for information about rehab centers, and be supportive and encourage your brother to work hard in rehab. He has a big job in front of him. GJ and I wish you, your parents and especially your brother, all the best on this journey. Stay connected and give us updates and progress reports.

        Check out this video for information on top Rehabilitation Hospitals in America. http://www.5min.com/Video/Spinal-Cor...eview-26155558

        Sincerely,
        NL

        Last edited by gjnl; 23 Aug 2010, 3:54 PM. Reason: add website

        Comment


          #5
          Hello Kalme,

          I have a C5-C6 injury from many years ago. I know what his parents are going through as I saw what my injury did to my parents. The SCI nurse will respond and give you exceptional advise...advise I wish I had many years ago.

          Where are you located? Check this out: http://www.shepherd.org/

          Good luck.
          Last edited by Millard; 23 Aug 2010, 5:28 PM.
          Millard
          ''Life's tough... it's even tougher if you're stupid!'' -- John Wayne

          Comment


            #6
            Karina,
            I am CJ's mom and I just sent you an email to the personal one you sent me. Everyone one here is very nice and very informative and they will all answer any questions you have. CJ is doing great. He is still a c5/c6 but he can do so much now. He can even put on his own shirt now! He has made great leaps! Have faith be strong and stay positive. Please email me anytime.

            Comment


              #7
              Sending you my very best wishes. I use the search feature on this site and find a lot of good information.
              Please keep us updated.

              Comment


                #8
                Welcome to CCC, although I am sorry for the circumstances of your being here. Your brother definitely needs a top flight rehab center to maximize his recovery. You mentioned Atlanta, and I know the Shepard Center has a wonderful reputation.

                Comment


                  #9
                  Where you take your brother now is critical to his recovery. Shepard In Atlanta, Kennedy Krieger Institute in Baltimore, Shriners in Philly are all centers that take patients under the age of 18.

                  My son did his reahb at KKI and they also have a brain injury recovery center. I highly recommend KKI, he has a lower level injury but is completely independent, we do very little for him. His injury is only 9 months old and he has a very active lifestyle, he continues to get return of sensation and we are hopeful for recovery of function.

                  PM me if you want more info on KKI. I am in Baltimore all week with my son at KKI's out patient rehab.

                  Comment


                    #10
                    Hi, Kalme, welcome.
                    It seems like the only sure thing about SCI is you can't be sure about what's going to happen.

                    Right now, the best thing you can do is act as your brother's advocate, since he can't do that for a while. He needs that more than anything. Do as you are doing now - research, learn, ask questions, determine what's the best for him, and keep pushing to get it for him. Question authority - stand up to any doctor/nurse who isn't doing what you think is best.

                    The people here on CareCure are the best in the world regarding experience; the nurses and Wise the best in the world regarding care. As you see from their posts already, they are also very willing and eager to help. Take full advantage of that.

                    Best wishes
                    - Richard

                    Comment


                      #11
                      You should call the Christopher and Dana Reeve Foundation. They are the best Paralysis Resource Center and will send you lots of helpful information. 1-800-539-7309 or info@paralysis.org

                      What hospital is your brother in? Please tell your parents they are not alone, there are many of us willing to help. You are a wonderful sister!

                      Comment


                        #12
                        Thank you so much for all of your responses. Any little information helps tremendously. We are looking into the Shepherd and Kennedy Krieger Institute as well. We are located in Miami, FL. I know the University of Miami has the Miami Project and it's doing great things for spinal cord injuries but it's only for research. My brother does not qualify yet because his injury is too recent. We are just looking for the best, and of course, it's even harder with him because he has both the brain and spinal injury. But everyday he trying harder and harder to move. Just yesterday he started pushing back when they moved him to turn, he had never done that. Thank you everyone for your support and any advice is greatly appreciated. I will keep you updated on his progress.

                        Comment


                          #13
                          Woke up from the Coma

                          My brother woke up from his coma and has started talking. The doctors are super impressed with his brain activity. They’ve now changed him from going to neuro rehab to a spinal rehab. He is able to talk clearly and can count and name all the months in the year. He remembers everyone. He still gets confused easily and says some things that don’t make sense but I can’t complain. They didn’t even expect him to talk regularly without having at least a month of speech therapy. During physical therapy they covered his legs with a pillow and he was able to point out which leg she was touching, so he has feeling in his legs. But he told my mom that his hands have disappeared. He has triceps and biceps but no wrist or fingers. What are the chances of these coming back? We are looking at rehabs and he’s been put on the waiting list for Shepherd. He was a great athlete in amazing shape before the accident. I’m hoping he has the will to succeed and giving him the best rehab will only optimize his chances of a better recovery right?

                          Comment


                            #14
                            My husband received a T-7 spinal cord injury and a brain injury. He spent over a year relearning how to talk and rehabbing from the spinal cord injury. He also was a baseball player.

                            He is new to his injury...so what he will gain back is unpredictable at this stage. It is good to see that he is regaining so much so far!
                            "Unless someone like you cares a whole awful lot nothing's going to get better. It's not." - Dr. Seuss

                            Comment


                              #15
                              We are very grateful that the brain injury has not been as bad as the doctors predicted. He is speaking very clearly and is understanding and comprehending. Now i'm just worried about the rehabilitation.

                              Comment

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