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  • Brother's MVA

    My Brother was in a MVA 2.5 weeks ago. In emergency was speaking, but could not feel his legs. Ended up mechanically vented in the ICU due to lung bruising poor perfusion ect.

    A mylogram was performed, per trauma doc dye made its way around the space as it should except for a small leak. At first the docs thought there was a blood clot but after further ct scans determined this was not the case. Trauma doc also threw out it may be a spinal stroke. The first few days were rough as no one was willing to talk with my parents or I about what was happening.

    After demanding to speak with the neorosurgeon, over the phone he stated that my brother has a T-6 T-7 SCI and is an ASIA A. 0-5% chance of walking again.

    Meanwhile my brother has no feeling mid belly button down.

    Later on on the week my brother had a spinal fusion performed with rods ect to stabilize the area. He was extubated right away after surgery.

    He is now out of the ICU in a step down unit. He has not gone into the hardcore rehab as his right shoulder is broken and as not to waste precious rehab time thet are giving him 4-6 weeks until rehab.

    At one point he felt the doc touching his right leg and left leg down to his knee, this happened on 1 day and not since. He does not have the anal reflex. However, he senses that his bladder is full.

    When talking to him about the accident, he states, "it is what it is" and does not talk about it (with good reason, he is probably still in shock).

    As a side note the two other passengers (the driver and back seat passenger) are going to be just fine, which I think is affecting my brother.

    That is all I have for now.

    Hope for the best, prepare for the worst. Energy and persistence.

  • #2
    Welcome to our forums. Can you get your brother on here too?

    I am concerned that they are delaying his rehab. A shoulder injury can be accomodated, but delay will most likely result in him getting weaker and being subject to more complications (and depression). Where is he now? Where is he going to rehab? Is it a specialty SCI rehabilitation program? Have they told him to delay admission? Does he have decent insurance?

    Please come back and ask more questions. We can help.

    (KLD)
    The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

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    • #3
      Welcome to CC. Sorry to hear about your brother.

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      • #4
        He is at UPMC Presbyterian. The rehab he will go to is UPMC Mercy (which I believe is a model SCI program). He ook a semester off college and did not have insurance at this time. My parents are a mess (he is 19 I am 28). I just want to do some more detective work as my parents don't know what to do.

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        • #5
          If you mean the SCI Center at the University of Pittsburgh, yes, they are a Model System Center. Did they actually advise waiting for rehab or is that coming from his current doctors? Michael L. Boninger, MD at the SCI Center and his team are excellent.

          Please come back and ask questions and keep us informed of his progress.

          Meanwhile, speak to the social worker at the hospital about getting some counseling for your brother and parents (and you too). It can help in dealing with this injury.

          (KLD)
          The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

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          • #6
            Yes the Univ of Pittsburgh and I know Dr. Boninger is part of that team. I will need to find out what chain of command advised to wait. It could have been the liason from the rehab. There was talk about putting him in a nursing facility until his shoulder is strong enough to go full steam ahead in rehab. This does not seem right to me, but I think having no insurance at the time of accident dictates the length of rehab and the thought is to maximize inpatient rehab. Unfortunately I live in Cary, NC; therefore, my updates come from my parents.

            He is in an ICU step down right now to help with controlling the pain. He has a fever and an infection they are currently trying to find. I tlak with him via telephone. He will talk about everything, except his body. I don't want to push him.

            What are some questions I can ask his care team?

            I cannot thank you enough for your help or this website. There are times when I feel helpless.

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            • #7
              Thanks Sara's Mom. I am sorry to be rude.

              I am moving through life right now with blinders on to just learn as much as I can ask as much as I can and prepare for as much as I can.

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              • #8
                Hi BobbyDylanFan, It sounds like it has been a rollar coaster for you and your family. I have adult children and would be a wreck too.
                I am a hope for the best and prepare for the worse type of person too.
                My husband is a C3 complete since Oct 08 fall.
                It sounds like under the circumstances things are going as well as possible. I am no expert, but you will find a lot of help here. Please keep us posted.

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                • #9
                  Hi BobbyDylanFan, Sorry you had to find us, but glad you did. The people here are a wonderful resource. Don't be afraid to ask questions. It must be just completely overwhelming right now, but things will settle down. Thoughts and prayers for you and your family.

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                  • #10
                    An update. Bro is still in hospital. Has a fever and a lung infection. Had a movement of right foot middle of the night last night. He is a fighter. He is my hero.

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                    • #11
                      Hi BobDylanfan. I am so very sorry to hear about your brother. My son was injured just before his 18th. bday T12 ASIA A. We're now 20 months post. My son said the EXACT same thing your brother did , "it is what it is", except he added "for now". Those have been his words ever since. It sucks they have SCI especially at such a young age. But life does go on and things do get better. Best of luck to you and yours!
                      FAITH: Is not believing God can, but knowing he will.

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                      • #12
                        Welcome. Best wishes to you & your family, esp. your brother.

                        One day @ a time. Be persistant he's in a recovery based program. You have to go into this process with hope but not so much that life is destroyed if dreams don't come true. Life can still be good either way though.

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                        • #13
                          My heartfelt thank you for this site and everyone on this site. You guys are amazing and heroic. My Bro is doing well. Is classified as Asia B now. He has not been released from the hospital yet. Will be going to the University of Pittsburgh Rehab once released (anyone gone there?)

                          Many Many Many thank you's.

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                          • #14
                            Please keep us posted!

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                            • #15

                              You sound like a terrific advocate for your brother. It is so important for him to have your support and ability to ask questions and understand what the doctors are doing and saying. I hope your parents will begin to understand that your brother needs their support too. I know spinal cord injuries are devastating to parents. I was 37 when I was injured and my dad, in particular, was always inconsolable.

                              Stay strong.
                              GJ

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