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    Well, I'm new and not too frickin happy about it. I'm really lucky with a very wimpy cauda injury. Don't even know if injury is the right word, docs don't acknowledge it. A couple did, in kind of a sideways way, but hell, I'm walking around, working the same job, cooking dinner at home, wife taking care of baby boy, I try to keep the girls from danger. Can still play with them pretty physically. Just have some pretty unnerving symptoms happening that I'm glad I can keep people from noticing.
    Big ol' disc at L5-S1, very incomplete cauda symptoms slowly showing up after acute phase- I think. Bad resolution MRI 11 days after the big ouch, showed no cauda compression, just thecal indent'n. But that cauda looked a little snug to me. Do they NOT look at MRI pictures with the patient all the time, or just when it has something kinda bad that they plan to ignore since it's really not something they want to attach their names to?
    Anyways, they say cauda is "unpredictable", which i fear means "we can't tell you how bad it will get or how long it will take... at all". But my docs say "don't worry, you're being stupid!" So it's hard to argue with that.
    Thanks to all for making this site work. I've picked up useful and frightening information here.
    Last edited by matt9; 05-27-2010, 12:23 AM. Reason: highlighted

  • #2
    Hi Matt9, I respect your candor.

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    • #3
      Well sorry you have a reason to be here....Welcome

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      • #4
        Hi Matt,
        Sorry you are dealing with any of this, but glad you found this site to help give information and more.

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        • #5
          Welcome to the site Matt, glad you found us.
          "Life is about how you
          respond to not only the
          challenges you're dealt but
          the challenges you seek...If
          you have no goals, no
          mountains to climb, your
          soul dies".~Liz Fordred

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          • #6
            This is a great place for information. Glad you found it.

            If there is one thing I've learned over the years it's that you can't be afraid to get tough with the medical community, challenge everything and get a second and third opinion if you don't think you are getting the care you need.

            Stay strong!
            Ugh, I've been kissed by a dog!
            Get some hot water, get some iodine ...
            -- Lucy VanPelt

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            • #7
              When Dave was in rehab one of the family service workers kept telling us that when we got home we would know more about SCI than most docs we would meet. I thought he was crazy-but he was right. I have learned to be assertive and even a b*tch when needed. We have a great primary doc, the rest have been ignorant or worse. The RTs are our best friends.
              The information on CCC has been a huge help too.

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              • #8
                Thanks, all. Lucy and Linda, I'm coming to understand what you're saying. One doctor, a physiatrist, told me constipation is not a symptom of CES. Now, I gotta believe he knows that's not true, but I don't know which is more alarming, he was lying or he actually didn't know? Either way, I feel silly going to apptmts where they just tell me not to worry and I walk out just like a normal AB. I could push for an EMG or whatever, but that sounds painful, and I don't see much benefit coming from getting an official diagnosis.
                Bladder seems to be slowly getting worse, as does toe and foot pain. It's all completely tolerable at the moment, I'm just hoping the progression stops right here. No harm in hoping.
                Matt

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                • #9
                  I would get a second opinion if the symptoms are getting worse (even if the change is slow). You don't want any damage to become permanent.

                  Two colace a day help with the constipation. Plus, make sure you're getting enough fiber and fluids.

                  How long ago was "the big ouch" ?

                  Are they saying it will heal on its own or stabilize?

                  Like I said earlier, learn everything you can and don't be afraid to get pushy. You are your own best advocate.
                  Ugh, I've been kissed by a dog!
                  Get some hot water, get some iodine ...
                  -- Lucy VanPelt

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                  • #10
                    Medical doctors suck! There must be some kind of conspiracy interwoven through med school curriculum that slowly and methodically takes away their humanity.

                    Like others have said, I'm glad you found us, but sorry you had to.
                    "The truth will set you free. But first, it will piss you off." -Gloria Steinem

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                    • #11
                      Welcome. Your frustration is well understood around here.

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                      • #12
                        Welcome.

                        Sorry, but it's unlikely any dr. will understand or give correct or useful info. Atleast you've found this site from others that know this best.

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                        • #13
                          Welcome Matt, sorry for your problems. I'm just make things worse for you, my CES was surgery induced, went in for fusion surgery after extensive history of back problems and they pinched the spinal column layed for three days then did corrective surgery. I'm in a chair now with back pain, can't stand up straight with braces because of pain, in rehab was standing and walking they the back went again. Take care of your back! it's your guide to a lifetime of whatever? Hope yours levels out for you, good luck.

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                          • #14
                            Welcome Matt. Learn as much as you can from CC, it will help you when dealing with your problems. I think we've all had problems with different doctors not knowing enough.

                            Never ignore loosing function. I've always found it means there's a problem somewhere and if you wait too long it can become permanant.

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                            • #15
                              Thanks, guys. It is hard to believe how worthless doctors seem to be when you actually need them, at least for our unlucky lot. Although I am aware of how lucky I am at present. If things would stop deteriorating on me right now, I'd spend the rest of my life with a gleeful grin on my face, unphased by the now seemingly minor inconveniences that I currently face. Lexapro sure helps me cope with the fear. And maybe it will help me stay ahead of the pain for a while, if that beast cometh. I'm having some fun with words. If I've gained anything from my experience so far, it's the wisdom to enjoy every moment that I can, because I don't know what's coming. Everybody uses that cliche, but the folks here really know it. Unfortunately I've observed that for some, they may never have the chance to apply that wisdom. But most of you courageous lions still fight, every day. And I hope you all win some of those battles. I can see why some outsiders admire and maybe love CCC's members. I think I've passed the point of hoping to be an outsider, as the doctors have insisted I am. (Do they think I'd waste my time trying to sue? I have precious little to build a case on, and I barely even blame them for missing the early diagnosis on a very incomplete CES. I just want them to offer the little understanding they have to me now. But perhaps it's true that I've learned more than them. They are just men, doing their jobs so they can go home to their TVs (since their children likely hate them... hah!)).
                              But thanks again for the welcome. I look forward to discussing my situation more. Lucy, I have made plenty of noise to many doctors, but I should probably seek another opinion anyways. Ouch was Oct '09. They say it's healing, and I think that's true as right ankle dorsiflexion has slowwwly improved. I believe the bladder can just show up late. Can still go, but it's getting weirder. Quite sure I'm retaining something like half.
                              Fishin, some of your posts alarm me, since we have some similarities, but they've also been helpful, and no BS. Thanks.
                              Man, what a long post! Looks like you've got another chatty Cathy on your hands.

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