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    I was just contacted by my ex's mother pleading for help. So, I'm approaching the group, again, for guidance.....
    It's been over 5 months. He is in a six person home, mostly geared toward brain injury. They assured him, initially, they would get him anything he needed and cater toward his type of care. I tried to suggest they take advantage of the WC coverage and send him to Georgia or Colorado but he is afraid to go.
    -He has been in bed for the last 2 and 1/2 months due to a pressure sore on his tail bone. It began at Lahey in June(getting red) and became a full sore at Spaulding.
    -He is getting no therapy for return, as he is in bed all the time.
    -He has a Bac pump but his muscles are still contorting.
    -He keeps getting UTIs although they changed his catheter to a direct line into the bladder.
    -He says he's in great pain but, doctors say he's imagining it. He even had an episode with saying he could feel his "manhood". The female aide left the room thinking he was being a perv. When the male aide came in, it was evident there was something going on down there(hardness) Point is....he COULD feel something. (remember...he is C4, unable to move anything but his head and shoulders, with very little feeling below that.)
    -He has continued high anxiety levels and is unable to sleep at night due to the anxiety.
    At this point, Keith is giving up and would rather be dead. He doesn't have much will to even talk with his son. As positive as I try to be, it's hard when I tell him to hang in there, hard to reason why when he is in discomfort and miserable every day of his life.
    What should they do? The family doesn't get online much. Is there someone who can help?

  • #2
    Originally posted by healing View Post
    . I tried to suggest they take advantage of the WC coverage and send him to Georgia or Colorado but he is afraid to go.
    suggest again
    We must reject the idea that every time a law's broken, society is guilty rather than the lawbreaker. It is time to restore the American precept that each individual is accountable for his actions.
    Ronald Reagan


    • #3

      They are putting you in a very tough position but I would highly recommend that you suggect again WC due to him needing therapy and need to be moving around. I am a lower injury but they had me moving around right after surgery with a brace on. good luck to you
      What ever doesn't kill you makes you stronger


      • #4

        I am very sorry for all your trouble. I suggest looking into Siani in Stoughton, Ma. it is local and is equipped for chronic wound and has hyperbaric on site. If you PM I'll tell you why...I don't think it would be appropriate for me to devulge names publically. Please have case manager get advocating. Best of Luck.

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        • #5
          I am so sorry that this has turned out as I feared it would when you first posted about him going to this facility. He needs to get out of there ASAP. The family needs to complain loud, frequently, and vehemently to his workers' comp case manager. They need to find him a more appropriate placement (his own apartment with attendants), get him a decent wound care specialist and a specialty mattress, and get him the therapy he needs. He is obviously getting some sensory return. He will not last long in this place. Obviously they do NOT know enough about SCI to provide him the care he needs, and his workers' comp company is screwing him over.

          The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.


          • #6
            If the family doesn't already have one, they need to get a lawyer.
            Ugh, I've been kissed by a dog!
            Get some hot water, get some iodine ...
            -- Lucy VanPelt