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25 yr old daughter with spinal hemangioma C3-4

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    #16
    Six month post op update

    Six months can seem like a long time, but the news is good. Lindsey has started to make some great gains in sensation on her right side and strength on her left. Her strength has gone from 17 lbs grip pressure to 34 lbs when last measured. She started accupuncture treatments three weeks ago (we thought, what does she have to lose, no pun intended) and is regaining sensation her right side. She can feel light touch on her right foot, identifying the toe or area that is touched!! Today she can detect light touch on her right hand.

    She is off Lyrica and doing well there.

    She worked as a dental assistant in an ortho office. They brought her a denta form fake mouth and tools after her surgery. In months past that would be put away in frustration after just a few minutes of trying to perform the tasks she used to be able to do effortlessly. A couple of weeks ago Lindsey greeted me at the door and lead me into the kitchen to show me how she can apply spacers and do some wiring on braces. She is doing so much better and has developed new drive to recover.

    Keep the faith!!

    -Doug

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      #17
      Great news!
      CWO
      The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

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        #18
        Three year update

        A long overdue update. This past weekend marked Lindsey's three year surgical anniversary. Following her surgery she attempted to return to her job as a dental assistant. She had been optomistic as at that time she was still progressing pretty rapidly. After she returned to work however, she just couldn't do her job due to loss of her fine motor skills. She had a passion for PT and got into a PTA program at the local technical college. She did well there, despite an early scare when she discovered she can't take vital signs due to her neuro deficiencies. You can read my blog post here: http://www.caringbridge.org/visit/lindseybeck/journal/2
        She graduated from that program in December and passed her WA state PTA certification exam last Thursday!! Now to find a job.

        Saturday she was a featured patient at the Harborview Gala. That was quite an event. They did a professional video of her story and used quite a bit of material we provided. Here is a link: http://vimeo.com/37399651 It is very sobering to hear Dr. Ellenbogen talk about the possible consequences she was facing. A local news station picked up on the story and ran their version tonight: http://www.komonews.com/news/local/D...140669603.html

        It was a very emotional week, with Lindsey's PTA test results and then the highs and lows of the gala and watching the videos. Overall she does very well, but never gained much sensation back in her right side due to Brown Sequard.

        Thanks,
        Doug

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