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Semi-Paralysis in Biceps, Deltoids

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  • #16
    It has been almost a year since my incomplete C5 injury. My biceps, deltoids, and rotator cuffs continue to be more or less useless. I am doing the exercises prescribed by a physical therapist. I do continue to improve very very slowly, but I am ready to do something else. So what is next? There are things I cannot do but perhaps could do in a different way. Where do I go to learn to adapt? And what treatments are out there that might help? Acupuncture? Biofeedback? What about some kind of prosthetic device that might help me raise my arms? I do not know where to go to get these answers or receive suggestions.

    I am near Spokane, Washington.

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    • #17
      assistance

      Hi, there are items that could help you in the shower to get those hard to reach places, long handled scrubbers, etc. They're available at medical supply stores, the workers should be able to help you out - if you go to a 'good' place the workers will listen to your 'problems' and help you come up with solutions.
      Congrats on your progress, God Bless & Keep it up!

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      • #18
        Kari, my son uses the Bowflex PR1000 (low end model) to work on his upper body. We bought it from Nautilus HQ in Vancouver, Wa. Occupation therapist should be able to help you to learn to adapt the new way to do thing.

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        • #19
          Hi Coleen, I was given long handled things in the hospital. They are not very helpful to me as my hands hang straight down. I cannot raise my arms at all so the devices also point straight down. I will try a medical supply store and see what they recommend.

          Timo, thanks for the Bowflex recommendation. I will check it out.

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          • #20
            Kari, are you seeing an OT who can help you with appropriate adaptive equipment, exercises, etc.? Have you had a recent exam to determine if you are getting any return at all that could be facilitated by electrical stimulation? Have you tried using a Swedish Aid? Mobile Arm supports? How is your hand function?

            (KLD)
            The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

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            • #21
              No, I haven't seen an OT since November when we moved, but from the suggestions I can see that I need to find one here. Yes, I have had two recent exams, but it was thought that electric stim wouldn't be helpful--why I don't know. I have an inferential machine.

              I do not know what a Swedish Aid is, but will start investigating. I have Mobile Arm supports for a table or desk, but find that pivoting my arm on the edge of a table works better than the supports. My fingers, hands and wrists work normally, but I cannot rotate them outwards unless they are supported by something.

              I am a California Worker's Comp case which has complicated my getting medical help here in the NW, but have paid out of pocket for physical therapy.

              I am almost one year post injury.

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              • #22
                Swedish Aid:



                Be careful supporting your elbow on a table without padding. This is a good way to get a ulnar nerve compression syndrome and loose function in your hand.

                Do you have a decent WC specialist attorney in CA? Don't deal with CA WC without one.

                (KLD)
                The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

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                • #23
                  Temporary paralysis after surgery for C3 to L1 stenosis

                  I had surgery on 6/22/12. I woke up unable to move both arms and have been told that this is very rare so am interested in this post. I am fortunate to have been in spinal cord injury inpatient and after one week now in outpatient OT and PT e x a week. Slowly I hane shoulder movements and forearm flexor function and difficult hand movements with little sensory movement in most fingers esp thumb and forefinger. I can find very little about C5 recovery (I have no bicep and now partial deltoids in front of shoulder). I have been at a major respected clinic/hospital and all the doctors say I am rare and unusual. Have you heard of any more? I am slowly recovering but am told it may take months. I have many of the same problems as the previous post. Is this really so rare and unusual to have bilateral paralysis and recovery from the outside in?

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                  • #24
                    Results from surgery and post op are different and depends on what caused it. C3 to L1 stenosis is a lot of stensois. But you are healing and improving and however it happens that is okay but it isn't totally unheard of. Was there masive swelling or some issue in surgery?
                    CWO
                    The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

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