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C5 injury, 3 weeks out

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    #16
    Okay, now just told pneumonia has set up. What next? SO FRUSTRATING

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      #17
      most get it. it's from laying on your back all the time , weak lungs and not being able to cough hard. i had it after 4 weeks or so.
      oh well

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        #18
        The fever was from the pneumonia developing. This is nearly universally a problems for anyone with a new cervical cord injury.

        Treatment for pneumonia includes lots of "pulmonary toilet" which include chest physical therapy with a "thumper" or the VEST, which does this all the time, plus often IPPB, and vigorous and frequent assisted cough with the Cough-Assist or manual quad coughing, along with rest, oxygen, and antibiotics (assuming this is a bacterial pneumonia which is most common). There should be frequently assessments of the lungs by the nurses and doctors listening to the lungs, chest Xrays, and blood oxygen measurement (usually non-invasive oxymetery). Sometimes a vent is needed until the acute phase is over.

        You can also ask about his WBC (white blood count) to guage how well the infection is being controlled. Sepsis is the major risk and I am sure that at Shephard they are very experienced in managing this. Ask them LOTS of questions. It is their job to answer questions from the family and patient.

        (KLD)
        The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

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          #19
          i can tell you this i had average temp of 104/5 for near 2-3 months its was horrible they couldnt get read of my pnuemonia and he could be having spasms now if he has uncontrollable tremors but i thought that came after a couple months
          http://www.myspace.com/pdm92485

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            #20
            what ever you do

            stay away from fraiser , i was there for 5 wks and it was a nightmare , go to shepards

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              #21
              rehab

              ive been to fraiser , sharp in san diego great place , and now im at health south albq nm , ive got a pt who a sports medicine pt , hes graet . its all about rehab if you want to get better

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                #22
                Apparently Frazier is really the only choice we have because he has no insurance, and Kentucky Medicaid is all that he can draw. From what we understand, he will have to stay in state because of that. I guess that scares me now because of some of the negative comments about Frazier on here.

                His temp is actually lower the past couple of days. Thay are doing the lung suction every day, and are on standby to do it more than once if necessary. Other than that, just more of the same.

                I reall appreciate all of the comments everyone is making. It lets us know that what we are experiencing is pretty normal, or at least as normal as we can get right now. I just wish I could turn the clock back about a month....

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                  #23
                  Glad to hear his temp is coming down!! That's good news.

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                    #24
                    yea me to , about 3 and half years or 1 do over.
                    oh well

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                      #25
                      pray and ask for healing for your friend,

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                        #26
                        Here is an update:

                        He can now lower his arms; couldn't do that a couple of weeks ago.

                        The nurse asked him to concentrate as hard as he could and wiggle his toes; he was able to on both feet.

                        He sat up on the side of the bed with no support for a few minutes; oxygen levels dropped when he did this so they upped the vent again to raise the levels, but turned it back down after they were raised

                        He said he could feel them working his legs when he was sitting up

                        Still in ICU, have to get some stamina built up before he can be transferred to rehab

                        Please keep us in your prayers; we really appreciate them

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                          #27
                          Sounds like he is regaining movement/sensation. Thats good. Keep us updated on his progress. Prayers and thoughts have been sent!

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                            #28
                            Congrats Casper! Sounds like things are finally moving in the right direction. Good luck!

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                              #29
                              Hey everyone,

                              It looks like the halo could possibly come off this week, and we are looking forward to that. Vent is turned down to 40, and his oxygen levels have stayed really good. No fever to speak of for a few days.

                              I do have a question though. He had an episode of some sneezing, and when he did, he drew his legs up pretty far. Does that mean anything at all, or are we just grasping again. It seems sad that we have come to the stage where we look for any kind of sign to be good, but that is our world now.

                              Hopefully he can get in rehab this week or next. Maybe we can begin to know something at that point.

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                                #30
                                Sneezing can trigger pretty severe spasms. It is not necessarily a sign of motor return unless he can voluntarily do it (one leg at a time) on command.

                                Is his skin staying OK? Is he getting good vigorous range of motion to his arms (esp. his shoulders)??

                                (KLD)
                                The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

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