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    Pregnancy/New parents

    I don't know if this is the right place to post this or not. I think there should be a forum just on this topic.... Anyway, I am 4 years post (exactly today), t-2 complete. I had two children already 16 and 7 years old, and I am currently 15 weeks pregnant. I really want to talk to people who have been pregnant with sci about their experiences both with the pregnancy and delivery, but also with caring for an infant. I have scoured the internet looking for assistive devices related to caring for infants, but have found VERY little. Anyone who wants to talk about these subjects, please post or feel free to message me. I am excited, anxious, and pretty worried about taking care of this little person afterwards.

    #2
    You are right- there is little out there. I would encourage you to look at UC at Berkley's website. I am blanking on the name of the program, but they have a whole site on pregnancy, and child caring for women who are disabled. I am going to see if I can find a couple of people who might be willing to speak with you through the internet who have already gone through this. Congratulations! And good idea about the planning. CKF
    The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

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      #3
      I will look there. Thank you so much!

      Comment


        #4
        Here are some resources I often recommend:

        http://www.lookingglass.org/

        http://www.disabledparents.net/

        http://disabledparentsnetwork.org.uk/

        http://www.amazon.com/Disabled-Woman.../dp/1932603085

        http://www.acog.org/Resources_And_Pu..._Cord_Injuries

        http://www.spinalcord.org/resource-c...b.page&id=1580

        http://www.scrc.umanitoba.ca/cpa/pregnancy.pdf

        http://www.mobilewomen.org/2009/04/r...pregnancy.html

        http://www.mobilewomen.org/2009/04/p...resources.html

        http://www.spinalhub.com.au/how-to-k...al_cord_injury

        http://www.uab.edu/medicine/sci/uab-...y-video-series

        http://sci-pregnancy.org/

        http://pvamag.com/pn/article/4570/pr...al-cord_injury

        http://sci.washington.edu/info/forum....asp#pregnancy

        http://thomasland.metapress.com/cont.../#.Ut9pN_bTmkY

        (KLD)

        The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

        Comment


          #5
          Wow, thank you! I will start looking at those right away. I never could find anything on the UC Berkeley site...... I am still also looking for anyone with experience who wants to talk.

          Comment


            #6
            Have a couple of emails out to friends who might be willing to talk. Have not heard back yet, but will let you know if I find someone. CKF
            The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

            Comment


              #7
              There are some threads in the Family forum, but I would be happy to share some of my experiences, adaptations, etc. I am a c6 quad, 23 years post with a 7 year old daughter. Email or PRivate message me with what you might be wondering.
              "We must become the change we want to see in the world." Gandhi

              Comment


                #8
                I'm a C6/7 quad and currently 34 weeks pregnant. I came to carecure looking to find some information as well. It seems like I've read that women with SCI and AD usually get induced around the 37 or 38 week mark but my doctors are being pretty stubborn about trying to go to 39 weeks. Alissa, did you make it to 39 weeks when you had your little one? I'm concerned about AD and also how my mitrofanoff is going to hold up over these next several weeks. I'll look through some old posts to see if my questions can be answered that way but also may message you. Gothgirl I would share my experiences with you up until this point as well but probably won't be as much help as ladies who have given birth and cared for an infant. I did recently find a woman quad who has a blog and youtube videos about her pregnancy and caring for her infant, her blog is megjohnsonspeaks.com and you can find links to her videos there.

                Comment


                  #9
                  i am a c 5/6 quad for 26 years and mom to 6 year old twin boys. happy to help in anyway i can. loved through the looking glass for getting ideas on crib modifications and other stuff.
                  suzq - i have had absolutely no issues with my mitrofanoff. only issues were with the nurses in the hospital not quite understanding how it worked.

                  feel free to pm or ask here with any questions i can help with. and your baby will quickly learn to work within your limitations. good luck!!

                  Comment


                    #10
                    I blog about my experience
                    L1,2 Para since 9-12-99
                    ~*~*~Priscilla~*~*~
                    Mommy to William (2004) Lucas (2008) Nathan (2011)
                    The Wheelchair Mommy Blog

                    Comment


                      #11
                      I'm also 15 weeks pregnant and would talk about dealing with a newborn. I have 9 nieces and nephews, so I've been around babies, but I still have lots of questions, starting with how do you pick a newborn up off the floor???

                      EDITED to add: I'm a T8-9 complete, 10 years post injury. Strong upper body but no lower abs and somewhat tenuous balance!

                      Comment


                        #12
                        One trick that I have seen other parents in chairs use for picking the baby up off the floor is to keep the baby dressed in overalls (like the baby OshKosh B'Gosh ones). You can grab the baby by the straps, or even slide your arm through the straps and pick them up one-handed this way.

                        (KLD)
                        The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

                        Comment


                          #13
                          Yeah, I've heard of that trick and it sounds great. I'm mostly curious about/concerned with 0-4 months when they lack the head control for the overall trick to be safe. What then?

                          Comment


                            #14
                            Probably best to avoid putting them on the floor at that age, esp. if you are alone.

                            (KLD)
                            The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

                            Comment

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