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    Birth Control

    Since we're at a higher risk for blood clots already... is there a particular Birth control brand that is best, that would limit the extra risk?
    Is this something I should be worrying about or am I being paranoid?

    #2
    I'm surprised there aren't any replies to this yet, it's such an important part of our lives!

    I don't think you're being paranoid at all, I just wish I had an answer for you. I'm sure that in the hormone-based category there could be a brand with a balance that might be better for SCI women; I haven't been able to find (internet-searching) any evidence of studies that have identified one brand being better than another, just recommendations that condoms and IUDs would be a safer alternative to hormones. Those methods are a little more work and less-desirable for committed relationships, but if you're worried about clots it might be best to be safer with these.

    Even before I began having sex again after my injury, I opted to get the Essure procedure, which is a permanent, non-surgical alternative to tube-tying. I understand that might be a drastic step for a lot of women who may not be so sure they want to give up someday having children, but I'm very happy with the results.

    More info - http://en.wikipedia.org/wiki/Essure
    Last edited by Jades; 9 Jun 2010, 2:23 PM.

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      #3
      Also, check out this thread with many responses:

      /forum/showthread.php?t=121933

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        #4
        I used condoms/spermicide at first after my injury but that resulted in my oldest daughter....
        Then I used Depo which caused weight gain, depression and resulted in the long gap between my kids....
        Now I have a regular copper IUD, my only regret is not getting the Mirena as it usually reduces or eliminates periods.
        I'm pretty sure I'm done having kids though...might consider getting a tubal when this IUD expires.
        Emily, C-8 sensory incomplete mom to a 8 year old and a preschooler. TEN! years post.

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          #5
          Originally posted by Emi2 View Post
          I used condoms/spermicide at first after my injury but that resulted in my oldest daughter....
          Then I used Depo which caused weight gain, depression and resulted in the long gap between my kids....
          Now I have a regular copper IUD, my only regret is not getting the Mirena as it usually reduces or eliminates periods.
          I'm pretty sure I'm done having kids though...might consider getting a tubal when this IUD expires.
          Emi,

          I've got some concerns about some things I've been having going on that might potentially be related to the Mirena...I initially thought it was a Godsend...and I haven't had a period in almost a year...I LOVE THAT...but with all these other things going on with my body & some things I've been reading on some other forums about Mirena side effects(that are EXACTLY what I'm dealing with, scary) I'm seriously considering having mine removed & wondering about getting the copper IUD....How happy are you with the copper IUD? It's going to be a couple years before we are ready to have kids(yeah, I know, I'm getting old but we want to be married for a bit before we have our 1st)...I'm concerned that the combination of hormonal bc, SCI AND Topamax(it's an anti-seizure med, they're ALL bad with hormonal bc, even if you take it for something other than seizures, like a lot of us do for neuro-pain, or others that are used extensively for Bipolar disorder)

          Anyway, I'm wondering how happy you are with the copper IUD? What kind of side effects have you had, if any? Did it have any effects on your period or cramps? One of the reasons I WANTED the Mirena was to reduce the severe spasms I was having prior to my period. I don't typically have a very long or heavy period, but I was getting such bad leg spasms & back pain that made me not able to function...I NEVER had cramps prior to my SCI, so this was totally new to me & hard to function with...

          I'd like my life back to normal & I think maybe the Mirena is largely to blame...
          'Chelle
          L-1 inc 11/24/03

          "My Give-a-Damn's Busted"......

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            #6
            My period is a bit heavier I think, hard to say as it varies, but not anymore crampy than before....
            Thats good to know about the Mirena, I'm finding it hard to justify pulling the one I have now and switching when the one I have is working fine...
            Emily, C-8 sensory incomplete mom to a 8 year old and a preschooler. TEN! years post.

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              #7
              I thought IUDs were really not recommended for those with sci? Something about not being able to feel it properly if something goes wrong? I'm confused.

              I'm considering my options re: birth control. I want to try Depo, but I'm wondering if anything like this (hormones) might not be a good idea for me. Because my sci was caused by a blood clot. I'm going to ask at my spinal unit in 2 months time anyway.

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                #8
                You're right, keps. However, you or someone else can do string tests to make sure it's in place.

                I LOVE my Mirena IUD. My period is now gone & pms/pmdd is no where near as bad. I found a great gyno that has worked w/ sci'ers so hopefully you can. She made sure to be prepared for AD, monitored my bp & had bp lowering drug on hand. I also took pain pills pre-insertion just to be safe. I feel it was my best choice & a year later, haven't regretted it one bit.

                I didn't want to freak out & talk myself out of it so I didn't do much research beforehand but did afterwards. Yes, Chelle, there are alot of unhappy/unhealthy people. I'm sorry you're one!

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                  #9
                  i have the mirena also and it's a godsend. lightened my periods and reduced the spasms id get around my time of the month. I think for those who experience AD you would be able to tell that way if there was something seriously wrong with its placement. In my opinion, its the safer option over the depo shots which lower calcium levels in your bones and the pill which has higher risk of blood clots. Plus the mirena is the most effective bc, something like 99.9% effective, i want to say i've heard it's more effective than sterilization!
                  Courage, it would seem, is nothing less than the power to overcome danger, misfortune, fear, injustice, while continuing to affirm inwardly that life with all its sorrows is good; that everything is meaningful even if in a sense beyond our understanding; and that there is always tomorrow.
                  -Dorothy Thompson

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                    #10
                    Does mirena have any hormones in it or does it just block the pathway so you can't get pregnant?
                    Aerodynamically, the bumble bee shouldn't be able to fly, but the bumble bee doesn't know that, so it goes on flying anyways--Mary Kay Ash

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                      #11
                      Thanks for the info, Quad79 and Ashley! I'm definitely going to be asking at my sci unit about IUDs then (as well as other options, of course). For some reason, I had it in my head that IUDs were completely out for me.

                      My periods aren't major problem for me- apart from the mess and more difficulty cathing, but I would be happier if they were lighter, for sure. I get a little bit of ad (from what I presume is the cramps I got as an ab, that I now can't feel), and my legs go a bit stiff though.

                      Originally posted by november View Post
                      Does mirena have any hormones in it or does it just block the pathway so you can't get pregnant?
                      I'd like to know this too.

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                        #12
                        the mirena website says it has the hormone levonorgestrel

                        from http://www.mirena-us.com/what_is_mir...rena_works.jsp

                        Mirena (levonorgestrel-releasing intrauterine system) slowly releases very small amounts of the hormone levonorgestrel directly into your uterus.

                        There is no single explanation for how Mirena works. Mirena may:
                        • Thicken cervical mucus to prevent sperm from entering your uterus
                        • Inhibit sperm from reaching or fertilizing your egg
                        • Make the lining of your uterus thin
                        Mirena may stop the release of your egg from your ovary, but this is not the way it works in most cases. Most likely the above actions work together to prevent pregnancy. Like other forms of birth control, Mirena is not 100% effective
                        I also love the fact that it's good for up to 5 years, very low maintenance!
                        Courage, it would seem, is nothing less than the power to overcome danger, misfortune, fear, injustice, while continuing to affirm inwardly that life with all its sorrows is good; that everything is meaningful even if in a sense beyond our understanding; and that there is always tomorrow.
                        -Dorothy Thompson

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                          #13
                          Thanks for the replies...
                          I'm not 100% sure that the Mirena is what's causing my issues, but everything I was attributing to one cause or another seems to also be connected to the Mirena. I didn't do a lot of research before hand(unlike me) but I went on experiences of people I knew, the fact that I knew I shouldn't take the pill, & the problems I'd been having with increased spasms & pain pre-period(which are gone, as well as my period)...but it seems that every issue I'm having is ultimately on the list of side effects(although independently listed as minor or rare) and when you combine them together you get for a whole messed up system & at least 70lbs of extra weight that even Topamax isn't helping to get rid of...I love my Mirena for what it's supposed to do, but I'm concerned that it's causing all these other problems...I'll get it figured out...
                          'Chelle
                          L-1 inc 11/24/03

                          "My Give-a-Damn's Busted"......

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                            #14
                            good luck chelle, unfortunately one method sometimes doesnt work for everyone!
                            Courage, it would seem, is nothing less than the power to overcome danger, misfortune, fear, injustice, while continuing to affirm inwardly that life with all its sorrows is good; that everything is meaningful even if in a sense beyond our understanding; and that there is always tomorrow.
                            -Dorothy Thompson

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                              #15
                              Originally posted by Broknwing View Post
                              Thanks for the replies...
                              I'm not 100% sure that the Mirena is what's causing my issues, but everything I was attributing to one cause or another seems to also be connected to the Mirena. I didn't do a lot of research before hand(unlike me) but I went on experiences of people I knew, the fact that I knew I shouldn't take the pill, & the problems I'd been having with increased spasms & pain pre-period(which are gone, as well as my period)...but it seems that every issue I'm having is ultimately on the list of side effects(although independently listed as minor or rare) and when you combine them together you get for a whole messed up system & at least 70lbs of extra weight that even Topamax isn't helping to get rid of...I love my Mirena for what it's supposed to do, but I'm concerned that it's causing all these other problems...I'll get it figured out...
                              Hey Chelle,

                              I was in the same boat and I never really was sure if the mirena caused all my side effects, until I had my hormones tested and found they were very out of balance. I've had my hormones tested before having the mirena and they were within a healthy range, so that told me that it must have been the mirena. If you check here: http://detoxscientific.com/mirena-weight-gain/ You'll find a long list of side effects and studies being done on the mirena and its various side effects. I had my mirena removed and started to feel normal and lose weight, so it is definitely something to look into and consider

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