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    Pregnancy questions T-12's

    Hey =) I have many questions about pregnancy and SCI. I am a T12 incomplete who just recently got married (yay!) and is talking babies. I have many many questions but one of my biggest concerns is bowel & bladder control.
    *How well does it or doesnt it work with a baby pushing on everything? I am worried about accidents, leakage, how to do a program, etc.... Anyone been through it yet and how did it go? *Also, my doc a few years back said I would need a C-Section, Im freaked about an epidural. How can they give me that right where my fused bones are?? Its hard to find doctors that know anything about SCI & Pregnacy. =( Any info would be nice pre-pregnancy.

    #2
    Welcome to our forums.

    Do you already have a good OB? Have you met with him/her to discuss attempting a pregnancy? There are meds you should stop BEFORE you try to get pregnant, and it is critical that you be in excellent general and SCI specific health first. For example, you don't want to try a pregnancy if you have skin breakdown or a kidney stone.

    The uterus is innervated at T10, so yes, it would be common that you might need an epidural for labor. Your OB may want to get some spinal Xrays NOW before you are pregnant and consult with an anesthesiologist now so there is a plan in place for how this would be done.

    There is no reason you should need a C-section just because you have a SCI...just for the same reason that AB women have them (fetal distress, small pelvis, etc.). The average labor for a woman with SCI is 4 hours, and it is common that forceps something similar may be needed to assist, but at T12 you should have nearly all your abdominal pushing muscles, so that is much less likely.

    You are at higher risk for UTI, DVT and constipation than AB women, so should be followed more closely during pregnancy. How do you manage your bladder now?

    Other common problems during pregnancy for women with SCI are increased risks for bladder leakage, skin breakdown and problems with independence in transfers, ADLs and self bowel/bladder care during the last trimester especially.

    I would recommend that you check out these resources before you attempt a pregnancy. Then find a good OB, and ask that they work together with your physiatrist in planning for this pregnancy with you.

    /forum/showpost.php?p=1008314&postcount=2


    I would also encourage you to read about what other women here have written about their pregnancies. Most of these messages are now in the Family forum, but there are some here. You might try using the search terms "pregnancy" and "pregnant".

    (KLD)
    The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

    Comment


      #3
      I have yet to find a good OB/Gyn that has had patients with SCI's in the past. I have a new insurance (Kaiser) and Im still figuring out how they work. I am definetly searching for one before we try anything so we can be as prepared as possible. I will search for others pregnancies stories. =) Thanks!

      Comment


        #4
        Where are you located? If you don't have one at your Kaiser, you can request an out-of-network physician with a good justification and support from your primary care physician. Do you have a physiatrist through Kaiser?

        (KLD)
        The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

        Comment


          #5
          I am in Northern Cali. The Kaiser facility i go to is in Antioch, Ca. I went today just to get a referral to see a physiatrist and the internal med doctor told me she wanted me to go to her first before i went to any other doctor. She is not a specialist so I am trying to find out what I can do to get a referral elsewhere. I know the Walnut Creek facility has high-risk OB's, and the Martinez facility has a Spine Clinic w/physiatrists. (I searched kp.org) If you or anyone knows of a Kaiser Dr. close to me I would be greatful.

          Comment


            #6
            The major Kaiser rehab center in No. California is at Vallejo. You might try calling them to see if they have such resources there. That is not too far from Antioch.

            (KLD)
            The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

            Comment


              #7
              you can also check out articles at http://mobilewomen.org/mobilereproductive.php
              if you click on "articles", there are a bunch there or click on "other resources" and there are some great ones there including a great book, "The Disabled Woman's Guide to Pregnancy and Birth".
              if you want to contact me directly, i can give you some e-mail addresses of other women who have hade children.
              good luck!
              wendy
              mobilewendy@gmail.com

              Comment


                #8
                Hey there,

                I live in Santa Rosa, I'm a c6 quad (18yrs.) with a 3 year old daughter. I wasn't a kaiser member, but the OB co-ordinator at the SR kaiser is my best friend. email me if you like and maybe i can get some info for you.

                peace,
                alissa
                "We must become the change we want to see in the world." Gandhi

                Comment


                  #9
                  i am late joining this thread but i am a 16 year post injury T12/L1 complete para with a three year old son and another baby due late October. WLC's suggestions above are great ones and I can also tell you my experience with pregnancy and delivery if you like. my email is listed below.
                  good luck!
                  wendyp

                  Last edited by SCI-Nurse; 2 Sep 2009, 10:36 PM. Reason: Removed personal e-mail address.

                  Comment


                    #10
                    Wendy, welcome, but I removed your personal e-mail address. It is not wise to post that on public forums. People who want to contact you can use the PM function (which you have turned on) or the e-mail function (which you do not). The latter does not show them your e-mail address but does sent the message to the e-mail address you used when registering.

                    (KLD)
                    The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

                    Comment


                      #11
                      YAY!! I'm so excited you are already talking baby talk!! You and Steve will sure make a beautiful baby.. hurry up and get preggers...haha jk.
                      God is good

                      Comment


                        #12
                        Hi Chelley,

                        I'm a t-12 - t-9 and have had two healthy children. I was 21 and 25 and had been a para since age 12. Bowel and bladder weren't too bad but during the later months you can't bend over or things will leak! I just carried on as usual and wore pads for bladder leaking. I was really worried about the episiotomy. My first doctor told me an episiotomy would heal better than a rip, so I went ahead with it and it healed just fine. I was able to push more than the doctor thought possible, so the delivery was a normal vaginal delivery.

                        Now, chasing those toddlers is a whole other story!

                        Good luck

                        Edited to add that I was not on any meds at that time. I was doing everything natural.
                        Last edited by Ivyella; 3 Sep 2009, 5:06 PM.
                        I have a hard time deciphering the fine line between boredom and
                        hunger.

                        Comment


                          #13
                          I have three children but they are old now, 27, 24 and 13. I gained too much weight so be carefully with what you eat. With the one 24 I started to have a lot of UVI and I am not gotten rid of them since.
                          TH 12, 43 years post

                          Comment


                            #14
                            Originally posted by Ivyella View Post
                            Hi Chelley,

                            I'm a t-12 - t-9 and have had two healthy children. I was 21 and 25 and had been a para since age 12. Bowel and bladder weren't too bad but during the later months you can't bend over or things will leak! I just carried on as usual and wore pads for bladder leaking. I was really worried about the episiotomy. My first doctor told me an episiotomy would heal better than a rip, so I went ahead with it and it healed just fine. I was able to push more than the doctor thought possible, so the delivery was a normal vaginal delivery.

                            Now, chasing those toddlers is a whole other story!

                            Good luck

                            Edited to add that I was not on any meds at that time. I was doing everything natural.
                            Wow so you were able to push them out? I think my abdominals are pretty strong but worried if i was fooling myself and thinking they were strong but not strong enough for that. Were you ever on any meds prior to pregnancy b/c of your sci? So you didnt take any pain meds during labor? Could you feel the labor pains?

                            Comment


                              #15
                              The uterus is innervated for sensation by T10, so it is likely if your injury is at that level or lower that you would feel contractions. It is not necessary to have a C-section regardless of your level of injury unless you would have needed one when AB (ie, fetal distress or small pelvis).

                              (KLD)
                              The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

                              Comment

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