A Thread to bitch and complain?

[RehabRhino]

Got up this morning feeling fine, bowels ok. Put on a new shirt, feeling pleased as I've lost a bit of weight.

Wheel to work in sunshine, settle down, bit of toast, cup of tea, sort first couple of jobs of the day.

WHAM! Massive stomach spasm and suddenly a big hard turd is touching cloth. I can feel this as I am incomplete, as I can feel its repeated attempts for freedom.

Heavy footed colleagues walk past on the floor, each footstep feels like it moves my turd a tiny bit.

Panic. Pack bag. Send email to fellow director. Wheel home.

Still not had full blown accident. Awaiting that pleasure. Trying to work from home.

No PCA until 9 - 9.30pm, no way to transfer alone.

This NEVER happens to me. Suppose I should be grateful.

Fucking SCI.

[lynnifer]

Having a sense of humour definately is a plus. Reading most of these make me thankful. I'm certainly not laughing at you Paul, but you make me want to laugh with you. The way you tell it is funny ...

Glad your wound healed Chelle - had no idea either. Karen I hope your wound remains closed and that pain is diagnosed ASAP!

[keps]

Whew, Broknwing, so glad you are over the skin thing. Gosh, seeing all that blood in your bath must've been terrifying.

I must admit you've got me wondering now. I think there's nothing more going on under the skin, but reading what happened to you makes me realize I might be wrong.

I got up for a bit over 2 hours today. I got on and off my couch (quite involved transfer getting off), and I'm back on my bed - my skin looks no worse. Still no open wound, and it's even lighter pink.
My legs are still quite jumpy...that could be constipation, though.

Thanks lynnifer. I promise I'm being really vigilant about inspecting my skin (several times a day!).

Zero - huh, tell me about it. It hasn't felt like there's been a summer here this year. There's only been a few days this year where I haven't needed a hot water bottle at night.
I'm sure I've been cold most of the time since injury.

Paul - ah, that's grim. I'd say {{{hugs}}}, but you smell.

[Broknwing]

Thanks Lynn & Keps...I'm very glad that it's healed and I'm able to get back to my "normal" AND back to PT...I saw my SCI doc today and she gave me all my new therapy scripts...YEAH!!! PT, aqua-therapy, and she suggested some OT rto get my upper body re-strengthened from being down for so long...so I've got some OT as well...I'd-ve never thought of OT myself....but hey, I never had decent OT in the beginning anyway, I'll take some good OT now... I guess some good has come out of this whole ordeal....

I'm glad your sore is still healed and less pink Keps...keep baby-ing it and hopefully it won't be anything to worry about... I'm babying my new, pink, skin now....I've lost so much weight I've got no padding there anymore...argh...so it's even more delicate...I need some extra padding....lol...

[RehabRhino]

You don't even wanna know how it turned out......thought I'd escaped but NOOOOOOOOOOOOOOOOOOOOOO

I still smell

[Juke_spin]

You don't even wanna know how it turned out......thought I'd escaped but NOOOOOOOOOOOOOOOOOOOOOO

I still smell

I doubt it.

Not to hijack the thread but back in my gun trading and boozing days I knew this local guy I did some trading and drinking with who's body odor was really rank. It didn't seem to matter if he'd been drinking or sober or had just had a shower. That guy stunk.

[RehabRhino]

I doubt it.

Not to hijack the thread but back in my gun trading and boozing days I knew this local guy I did some trading and drinking with who's body odor was really rank. It didn't seem to matter if he'd been drinking or sober or had just had a shower. That guy stunk.

My apartment definitely still smells

[Timaru]

You don't even wanna know how it turned out......thought I'd escaped but NOOOOOOOOOOOOOOOOOOOOOO

I still smell

I bet you felt 100% better after the eruption.

[RehabRhino]

I bet you felt 100% better after the eruption.

Which one?

[keps]

Which one?

Lawks!

[Timaru]

Lawks!

As Karen said!

[pararich]

Haven't been here for awhile. I'm glad to hear of the healing going on for people. Got some complaining to do.
I have been living in my house since June.
What's getting to me is that I have few visitors.
My social life is mostly with people who are working on the house.
I am using credit to renovate.
Stressed about going into the hole, financially.
Long term disability payments may end in December.
Ouch. How to afford living in this house?
Big challenge living here. Do a lot of wash because of bladder incontinence- sheets, pants, seat covers. So much to do- shopping, changing bed, cooking, dishes, showering (very difficult until bathroom is upgraded). Now I'm using leg bags along with doing intermittent cathing.
I've been helping with renovations. I don't know what is happening to my back (which is stiff as a board because of long rods) when I lean over all the way to work on low projects. There is a stabbing pain in my upper back.
I'm not complaining, but...
This is tough.
I'm lonely.
I will start full time studies again in September.
AAAAch!
I had a UTI with 101.5 fever, last week.
When I was sick, I felt mentally ill- overwhelmed with life and not feeling good about myself.
What else?
Cleaning, organizing, planning for the winter- need to weatherize (insulate
a room that I want to rent out.

[pararich]

My two year anniversary of breaking my back is September 4th.

[bob clark]

Haven't been here for awhile. I'm glad to hear of the healing going on for people. Got some complaining to do.
I have been living in my house since June.
What's getting to me is that I have few visitors.
My social life is mostly with people who are working on the house.
I am using credit to renovate.
Stressed about going into the hole, financially.
Long term disability payments may end in December.
Ouch. How to afford living in this house?
Big challenge living here. Do a lot of wash because of bladder incontinence- sheets, pants, seat covers. So much to do- shopping, changing bed, cooking, dishes, showering (very difficult until bathroom is upgraded). Now I'm using leg bags along with doing intermittent cathing.
I've been helping with renovations. I don't know what is happening to my back (which is stiff as a board because of long rods) when I lean over all the way to work on low projects. There is a stabbing pain in my upper back.
I'm not complaining, but...
This is tough.
I'm lonely.
I will start full time studies again in September.
AAAAch!
I had a UTI with 101.5 fever, last week.
When I was sick, I felt mentally ill- overwhelmed with life and not feeling good about myself.
What else?
Cleaning, organizing, planning for the winter- need to weatherize (insulate
a room that I want to rent out.

Hi Rich,

Seems like you got a full plate there. I live by myself in a house too (with a dog) but I've become accustomed to being alone. Probably why I write so much BS here!

I no longer have urinary leakage problems but have an ocassional "accident" that keeps the washer and dryer running. It's a bit overwhelming having to do everything yourself... it would be nice to once in awhile say "Honey, would you get me a cup of coffee please." But what's a greyhound know?

And what's a social life?

I hope you get your bathroom squared away... that'll make things a lot easier for you.

I don't know what else to say except keep on keepin' on. Hopefully you'll find some social interaction when you start going to school. It will force you to time your activities differently but you'll get used to it. I went back to school for a little while when I was 2 years post-injury. My 28th year anniversary was last month... no big deal.... I did tie one on though. First beer(s) in a couple of weeks.

Not much that I can suggest about your UTIs.... I no longer get them. But I keep a stash of Cipro and Levaquin here just in case. But that's not recommended... go to a urologist... especially one who knows a thing or two about SCI and/or neurogenic bladders. Like I'm gonna go to the doctor (if I had one) feeling sick as a dog with a 102*F temperature. I don't have a car so that makes things difficult logistic-wise.

Best of luck to you Rich... I hope you hit the lottery.

Bob.

EDIT: A UTI will give you side and back pain. Or maybe you're getting neuropathic pain and need to try some Neurontin (generic is gabapentin) or some other neuropathic pain blocker. But they'll want to test your bladder, gall bladder and kidneys for stones first. Maybe it's time for a check-up.

I lived in Philly for awhile. Was born and raised in Levittown PA for 20 plus years.

[Lazlo]

After a large DVT and broken femur in the same leg resulting in massive swelling, the heterotopic ossification in my left hip appears to be coming back with a vengeance. I can barely lean forward and my leg won't lie down flat anymore. I go to the doctor today to get the whole process (xrays, bone scans, blood tests, etc.) going again.

Every time I go to the doctor, I'm hoping for better news than I expect but always receive worse than I expect. I went to the doctor for some minor swelling in the left leg thinking it was just water, but it was a huge DVT I had to be immediately hospitalized for. I had very few symptoms, just some minor but noticeable swelling, no warmth or visible redness.

I went back a week later thinking I might have dislocated my hip only to find out I had snapped my femur cleanly in two, requiring a large metal rod and more hospital time (and HUGE swelling).

I just want this all stuff to stabilize, wherever it's going to end up, so I can get a foothold on life. But that doesn't seem to be happening, things just get a little bit worse every day. Seems I have to change my thinking about SCI "recovery", it's an ongoing thing.