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    Roho gave up the ghost. Ordered cheap-o replacement on ebay...they contacted me to say that they now custom make them, so 3 days to manufacture. Tailbone has chronic sore or something, anyway it hurts and feels like a scab...so that's 3 extra days in bed, waiting for cushion. Eyeball swelled in the night due to graves, eyelid opened while sleeping, tiny area of eyeball cracked. After 36 hrs of eyedrops, wet cotton and a pirate eye patch, it feels better.

    Funny how a tiny piece of your eye can feel like a major source of pain! That's the 2nd time it's done it, and it feels like ROCKS in your eye.

    WTH, it's over 100 outside, didn't want to go out there anyway.

    But Mom had a heart attack last week, only confirmed last weekend. I was hours on phone, cajoling her to live and berating nursing home for lack of attention to her. I NEED to get to Kansas. Yet departure date keeps getting further and further away!

    I DO have appt. w/ regular dr. tomorrow, to start the process of replacing my specialists that don't take medicare. Will ask him to look at tailbone, although I've done so before and been blown off. Farewell, handsome cool physiatrist that told me to return to scuba diving. Wish you took Medicare!

    The irony? Mom has decided to die because they got her a new w/chair cushion, and her butt hurts!
    Blog:
    Does This Wheelchair Make My Ass Look Fat?

    Comment


      I'm bummed cuz I went over a curb and now my maintenance light is on A good thing is I have scheduled appt tomorrow for car tune-up, I'm hoping whatever I did is not too bad.
      A dolla makes me holla, honey boo boo! - borrowed from Honey boo boo child

      Comment


        Originally posted by betheny View Post

        The irony? Mom has decided to die because they got her a new w/chair cushion, and her butt hurts!
        Maybe she'll trade cushions?

        Joking there, but it really sucks when you can;t be there for parents. We have had a lot of issues lately. Not as serious as w/ your mom, but ones that my able bodied presence would have greatly helped. My kids are almost grown, I could have certainly left them w/ their dad and been up there where I was needed. But. mostly due to accessibility issues in their homes, I would have been more trouble than help.
        T7-8 since Feb 2005

        Comment


          Originally posted by thehipcrip View Post
          After the HipHubby helped me transfer from the aisle chair to the aisle seat and got himself settled in the window seat (there are only two seats on each side of the aisle on the prop jets), a flight attendant approached, glanced at me just long enough to make eye contact, then said to the Hubby, "SHE must sit in the window seat."
          Isn't that terrible? The first time this happened to me (waiter in a restaurant) I was too surprised to even respond. Yet if you object to it, it's like, oh this cripple is trying to make my life more difficult. That really grinds my gears.

          Comment


            My cousins step daughter is completely potty trained now.Yippie,he knows I've been waiting on this so I could start taking her places by myself.

            Well while they were visiting today he gets a call from her mom/his wife & tells her I'm making plans to take her to the museum & spend the day with Peyton.All I hear is her loud response"Whenever your momcan go with them,she's not going alone with her!" So once again I'm reminded that I must still need a sitter to be a sitter,well to her atleast.

            Comment


              Originally posted by quad79 View Post
              My cousins step daughter is completely potty trained now.Yippie,he knows I've been waiting on this so I could start taking her places by myself.

              Well while they were visiting today he gets a call from her mom/his wife & tells her I'm making plans to take her to the museum & spend the day with Peyton.All I hear is her loud response"Whenever your momcan go with them,she's not going alone with her!" So once again I'm reminded that I must still need a sitter to be a sitter,well to her atleast.
              Ouch, so sorry that they said this........

              Comment


                unerstamd completely, we had a sitter emergency and after much ado my daugher styaed with my grandson til my wife got home. I was annoyed as I was the first to sit him alone and do well as a sitter. Later that evening my wife told me thwy had a family chat (absent me) and since my SCI and the drugs required they fell I'm unable to provide best care due to the complications. I still "sit"them as long as there is someone to "sit" me. A piece of me died that night

                bill

                all that I am is all gone
                Kindly,

                The Ketamine Kitty

                All the tears, all the pain, all the rage through the night (apolgies to the rewrite) RR

                Next time I die make sure I'm gone,
                don't leave 'em nothing to work on JT

                And I ain't nothin but a dream JM

                Comment


                  Bill,
                  I have no family at all, so I have not had the occasion to run into this sort of heart breaking sentiment. Often I wish I had a family like most people do, but when I read something like this I wonder how I would cope with that sort of demeaning treatment. I am so sorry that you have to deal with it.

                  Comment


                    I am deeply offended too, by the actions of my son and DIL, who even today, will not consider leaving any of my grandkids with me. They are 7,3, and 5 mo. I do realize my limitations, but I could easily spend time alone with the older 2 . (T 7) My niece did appreciate my offer to "sit" with her 2 mo old while she went for a Dr. appt. The baby slept all but 45 min. and I was able to pick her up, feed and change her. They leave them regularly with her parents and though I have expressed my dissappointment, no change yet. I don't know how they think I was to raise my own 2 kids as a single mom.???

                    Comment


                      sjean-I called and rather forcefully told them she was going to be re-cushioned, then called her doctor and tattled on them. My sis-in-law used to work there, said they had lots of cushions, so I commenced raising hell.

                      Somebody had chosen a cushion for her and had an ego stake in it suiting her, apparently.

                      If only I had lots of cushions...Still waiting. Dr. didn't look at tailbone, said he'd refer me to wound clinic. Shouldn't we see if I have a wound first? Tomorrow I shop for a female doctor!

                      To those whose kids fear you watching their kids...I think it's generational. Every child of this new generation seems raised by fear. Antibacterial soap, no homemade cookies in the schools, etc. Seems to me we ran wild as kids, but the babies now are such special snowflakes and their parents so fearful! Maybe it's having the news on 24-7, maybe it's not hearing body counts from Nam with the meatloaf every night, but I sure see a sea change. I'm sorry they hurt you.
                      Blog:
                      Does This Wheelchair Make My Ass Look Fat?

                      Comment


                        My Friend says hey let's go out for a ride
                        Koolios
                        Here we are driving out in country and hit city
                        My belly rumbles I mention to him pull over to a gas station I need to go to the Restroom
                        He keeps driving forever passing stations and stuff I'm like thinking how much longer ?

                        We'll nature happened and I was grossed out ........But I had placed a chucks pad on the pass seat before I entered the vehicle .
                        OMGosh
                        I think he got the hint to stop at a gas station but now no station is in 50 miles but it was too late So I asked him to turn around
                        so Driving back in country I asked him pull over and cleaned up then told him take me back home good thing I carry wipes and extra diapers or pads .....
                        shower time
                        Sometimes Life Stinks
                        So much for having a shitty day lmao

                        Comment


                          FUCK.

                          I CANT SLEEP MY LEGS FEEL LIKE THEY'RE IN ICE. WHY ME? what did I do to deserve this? This is the most horrible thing that could happen, at least with death I can rest in peace.

                          I have a freakin broken body, and I cant do anything about it, except sit in this broken shell and endure this bullshit until I die.

                          This is not fucking right.

                          done.

                          Comment


                            Originally posted by Imight View Post
                            FUCK.

                            I CANT SLEEP MY LEGS FEEL LIKE THEY'RE IN ICE. WHY ME? what did I do to deserve this? This is the most horrible thing that could happen, at least with death I can rest in peace.

                            I have a freakin broken body, and I cant do anything about it, except sit in this broken shell and endure this bullshit until I die.

                            This is not fucking right.

                            done.
                            Imight, I get that "icey" feeling too. It fucking sucks!
                            "The truth will set you free. But first, it will piss you off." -Gloria Steinem

                            Comment


                              Originally posted by Imight View Post
                              I have a freakin broken body, and I cant do anything about it, except sit in this broken shell and endure this bullshit until I die.
                              I so hear you man... trapped in a body that's half dead yet won't die. Sometimes I can't bear to even watch AB people anywhere, not even on TV, I envy their freedom so much.

                              Comment


                                All that I am is all gone

                                bill
                                Kindly,

                                The Ketamine Kitty

                                All the tears, all the pain, all the rage through the night (apolgies to the rewrite) RR

                                Next time I die make sure I'm gone,
                                don't leave 'em nothing to work on JT

                                And I ain't nothin but a dream JM

                                Comment

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