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    #76
    Originally posted by john smith
    I have spoken with numerous members of CC. Many have the enthusiasm to attend the Work2Walk Rally in DC. However, the cost and the timing present obstacles. Many of the younger crowd have conflicts due to school and the fact that they are broke. Others are international members and such a visit is out of the question. And unfortunately some of you are not well enough to travel. Accordingly, I've been trying to think of a way everyone might participate and represent CC and provide support to the CRPA and respect the legacy of Christopher Reeve.

    Obviously, the organizers would rather have you there in person to show solidarity. If, however, that is impossible you can still be a part of the symposium/Rally. All you need do is send me an email, preferably with a picture, injury level, DOI, name and a brief message expressing your support for the effort.

    I will make it my duty to see that these messages appear on a bulletin board or wall at the symposium for all the attendees to see and read. We need to let those who can and do make the journey know that their peers are there in spirit with them. Christopher Reeve gave every ounce of the life he had remaining in him after his injury to bring understanding, relief, and above all, hope to those experiencing SCI. I encourage you to give him "a thumbs up" and be represented.

    Help me to create a "Wall of Hope" that all attendees may view.
    Submit the info here and attach a photo or send these to pmdello@-nospam-yahoo.com or 5640 Alder Road, Hood River, OR 97031. If you email, be sure to drop the -nospam- from the address.

    Thanks,

    John
    hey john my name is israel im 27 years old live in cali im a t-12 incomplete injury about 1 year ago i hope we can all acomplish something and have a normal life

    Comment


      #77
      Welcome to CareCure, Israel!
      Daniel

      Comment


        #78
        Great idea!!! 6/4/1977 My oldest son lives in DC on Capitol Hill so I might be able to go.

        Comment


          #79
          There is no hope, as such, this is an old thread.

          Comment


            #80
            Yes Lief .....an old thread that has served its purpose well and now its time to let it move on into the nether wold of old threads!
            Perhaps for the next W2W rally we can come up with an idea similar ..... we've grown abundantly since the Wall of Hope was initiated and it was a powerful presentation as I recall.

            Oh and for the record ...... hope springs eternal ..... or so I've heard !

            Obieone
            ~ Be the change you wish to see in the world ~ Mahatma Gandi


            " calling all Angels ...... calling all Angels ....walk me through this one .. don't leave me alone .... calling all Angels .... calling all Angels .... we're tryin' and we're hopin' cause we're not sure how ....... this .... goes ..."
            Jane Siberry

            Comment


              #81
              The Wall of Hope evolved over time into Bridges 2 Hope. U2FP compiled all the submissions, some volunteers compiled them into a book that is used for an advocacy tool. It seems to be well received by legislators. U2FP is still taking submissions, the link is in my signature.

              From the Bridges 2 Hope page:

              Are you or a family member afflicted with paralysis due to either injury or illness? Are you tired of waiting for promising research to move forward? While science has demonstrated that the spinal cord and central nervous system can be repaired, politics and funding have slowed our dream of bridging the gap between hope and fulfillment.

              The Bridges 2 Hope project is an outgrowth of Working 2 Walk’s Wall of Hope. In addition to posting stories and photos on our website, we intend to create a hard copy booklet and use it as a lobbying and advocacy tool. It is time for the patient community to speak up and share their stories with the world.

              The power of your personal story is enormous. You don’t need to have great knowledge or even talk about the science. Write about what you know—your life today and your dreams for the future.
              Blog:
              Does This Wheelchair Make My Ass Look Fat?

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