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Has anyone heard from Jennifer Spence? (Lynnifer)

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  • #31
    So sorry to hear what you're going through Lynnifer. You've been such a light in a dark place for so many.
    T3 complete since Sept 2015.

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    • #32
      Hey Lynnifer, sorry to hear of the problems but as you point out it might lead to something different. I've spent a long time looking at what is involved with withdrawing life support by switching my vent off. Support that I received from the medical teams that look after me was incredible. Palliative care in particular clearly explaining what was involved and what my wishes were. If you are seriously considering withdrawing consent for any procedure or treatment talk to them. Now that I have agreement to terminate and can do it whenever I want life is a lot easier for me. Slightly different position as I will always need the vent whereas you might only get one opportunity. It is not an easy decision to make, consider everything before you go down that route. Good luck

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      • #33
        Hi Lynnifer, you are such a good person and I wish you the best.

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        • #34
          Look up and talk to God. Satan will do his best to pull you down, don't let him. It is never to late to be saved, not here on earth but eternality. May God bless you.

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          • #35
            I appreciate the sentiments, but I lost my faith long ago. This is from someone who, growing up, having the Minister and his wife over was an honour. Raised in church.

            I reject it all.
            Roses are red. Tacos are enjoyable. Don't blame immigrants, because you're unemployable.

            T-11 Flaccid Paraplegic due to TM July 1985 @ age 12

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            • #36
              Which ever way you decide; I support you 100%. Just know I am going to miss you bigtime and always considered you a very dear and cherished friend. Sending you good positive energy and a kiss for good luck on your journey.

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              • #37
                Lynnifer, the hospital's failure to address bowel issues shocks me. Have they considered stool softeners and administering an enema or use of suppositories? The bloating certainly saps your strength that you really need right now.

                Regarding end of life issues, I support your right to live or end your own life - it's your life.

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                • #38
                  Lynnifer,

                  I support you either way. Thank you for the years of laughter, conversation, and bitching to one another. We had a lot of fun on this forum years ago. Alas, nothing lasts forever.

                  https://m.youtube.com/watch?v=mJd-uDUfPYU

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                  • #39
                    Best wishes headed your way.

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                    • #40
                      Well, reflecting LeTodd above, I hope it lasts a while longer!
                      I've enjoyed your posts and your spirit and your healthy energy.
                      This site would be poorer without you.
                      It's your choice, but perhaps help is on the way?
                      https://www.youtube.com/watch?v=C7IoVFB6D7I

                      Don't give up the ship, even when you think it's sinking.

                      PS: I'm an atheist since 15yoa.
                      Which doesn't trump transcendent
                      get well soon, however that manifests
                      and you have my support wherever that may take you.
                      Warm regards, Phil
                      Last edited by pfcs49; 12-07-2018, 04:03 PM.
                      69yo male T12 complete since 1995
                      NW NJ

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                      • #41
                        So sorry to hear of your situation. Just wanted to chime in that a few years ago I was "out of it" in a hospital bed on a ventilator due to a nasty pneumonia and I laid that way nearly five months. At my worst time I thought it was the end, but very slowly I began to recover around the 5th month. There were so many complications, not just pneumonia for a paralyzed person laying in bed that long, one being a small tear at the back of my throat when my feeding tube was removed. It dripped blood in the back of my throat and when I pointed out this weird drip, they didn't know how long it had been going on so I had to have a blood transfusion! That was only the beginning of the 5 months in hell.

                        I have recently read articles about SCI persons in hospitals in U.S who are not assisted with a bowel program! Some have said they were told it was illegal unless a doctor did it. I can't imagine this continuing. It seems at least an enema would be given.

                        I guess I'm holding hope that you will recover, even if slowly. You have so many friends on CC. I want you to have the best care available.

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                        • #42
                          Best wishes Lynnifer.
                          Better to remain silent and be thought a fool, than to speak and remove all doubt.

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                          • #43
                            Originally posted by lynnifer View Post
                            I appreciate the sentiments, but I lost my faith long ago. This is from someone who, growing up, having the Minister and his wife over was an honour. Raised in church.

                            I reject it all.
                            No one can make you do anything or stop you from doing anything. All God asks is that you believe in Him. By accepting Him in your life on earth, He assures eternal life after death. It is a gift! We are only on earth for a short time, eternal life with God is forever. Without God in our earthly life we have nothing. I pray that you will accept Him. Amen

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                            • #44
                              Lynnifer,
                              I know you said you reject it all, but I believe and I'm praying for the best outcome for you. Hang in there!
                              Rich

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                              • #45
                                Originally posted by triumph View Post
                                I have recently read articles about SCI persons in hospitals in U.S who are not assisted with a bowel program! Some have said they were told it was illegal unless a doctor did it. I can't imagine this continuing. It seems at least an enema would be given.
                                Nurses can indeed help with bowel programs, but the problem mostly seems that they don't know how or simply don't want to. An assist with a bowel program or even an enema or magnesium citrate in a hospital, requires an order from the attending doctor and the nurses are charged with carrying out those orders. Once when I had a hospital stay, the general recuperation unit nurse called for a nurse from the rehabilitation unit in the hospital to assist with the bowel program. Even then, I had to instruct them on what I needed and how to help me.

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