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    #61
    Originally posted by gjnl View Post
    I agree it would be helpful to see the injury level in the information below the avatar. That said, it would be helpful if members would at least post that information in their profiles. When I check profiles, I don't find injury level indicated with great frequency.

    All the best,
    GJ
    A lot of people posting here don't have SCI.
    "I have great faith in fools; self-confidence my friends call it." - Edgar Allen Poe

    "If you only know your side of an issue, you know nothing." -John Stuart Mill, On Liberty

    Comment


      #62
      Originally posted by Oddity View Post
      A lot of people posting here don't have SCI.
      If they don't have a SCI/D then it would be possible to have them prompted to enter what their disability is (such as stroke, amputation, etc. etc.). MS is included in SCI/D(iseases), as is TM, HSP, and ALS.

      (KLD)
      The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

      Comment


        #63
        Originally posted by Oddity View Post
        A lot of people posting here don't have SCI.
        Understood. Then it would be helpful to know what other pertinent disease or medical condition a person has and be able to take that into consideration when reading posts. In addition it would be helpful to know if a person is a caregiver or family/friend of a person with a spinal cord injury or other pertinent disease or medical condition. By the way, there is a "Members Forum" for Caregivers at https://www.carecure.net/forum/forum...regivers-Forum. Caregivers need to contact the administer Jim (https://www.carecure.net/forum/member.php?2029-Jim) to gain access to this forum.


        All the best,
        GJ
        Last edited by gjnl; 1 Dec 2016, 3:37 PM.

        Comment


          #64
          I agree with above strongly! We spinals ought to know where posters are coming from. It would increase intimacy and free up some conversants.

          And regarding the Aparrelyzed community, it might serve all to give these homeless crips a pertinent forum or thread with a banner where CC opens directing new arrivals to this safe neighborhood where they can comfortably mingle with their old friends and new neighbors (us) before venturing out exploring all the new and mysterious areas to be found here.
          In fact, IMO the situation demands such a warm courtesy from this site!

          Would someone who can be "cause in the matter" please do this?
          69yo male T12 complete since 1995
          NW NJ

          Comment


            #65
            Thank you pf , we will start being involved more I am sure, we need to mingle and seen your group. I don't think posting your level should be mandatory, but it sure helps when giving advice to someone else to know they are in similar area. I would never give a c anything, advise being I am a t12. like people are best sharing information with like people. We have all lost friends, trying to message them but most probably are not returning to the site to see messages posted. I too wish Simon would have given us a little time to communicate before closing.

            Comment


              #66
              I joined both Apparelyzed and here within a day or so of the other. We've fled here many times when Apparelyzed has been down for maintenance. Many of us know each other across a few sites. I'm friends with some of the same people here that I was friends with at Appz.

              As a long time member there, I can say there was no rampant negativity, there was no slander, there was no malice, there was just a point where our esteemed Boss decided to call it quits. It wasn't done to hurt anyone, it wasn't done out of spite, or with anger. As much as all of us are missing our friends can you imagine what he's personally feeling at the loss of something he created and grew from nothing to the fullness that it was. For us it was an ending of one place with lots of friends. For him, it is the ending of over a decade of his life's work. He poured his time, energy and finances into that site as a labor of love for all of us to enjoy. He shaped it through many years of evolutions. I spent five fantastic years there. We enjoyed it for many years and will mourn its loss. I am also supporting my friend in the death of his creation.
              CCS/Walker C6...it's a long story

              Comment


                #67
                Originally posted by SCI-Nurse View Post
                I agree. Have requested this often but administrators including Dr. Young have not wanted to require this. Having this a mandatory field would also help screen out spam registrations, since most likely they won't have a clue what to fill in (with it being a free-text box).

                (KLD)
                it is an easy template edit of postbit and postbit_legacy to add custom information fields. And I am sure that there are a number of plugins on the vbulletin modifications website to limit spam registration plus facilities in vb for banning ip addresses.

                Comment


                  #68
                  Originally posted by lavenderthistle View Post
                  I joined both Apparelyzed and here within a day or so of the other. We've fled here many times when Apparelyzed has been down for maintenance. Many of us know each other across a few sites. I'm friends with some of the same people here that I was friends with at Appz.

                  As a long time member there, I can say there was no rampant negativity, there was no slander, there was no malice, there was just a point where our esteemed Boss decided to call it quits. It wasn't done to hurt anyone, it wasn't done out of spite, or with anger. As much as all of us are missing our friends can you imagine what he's personally feeling at the loss of something he created and grew from nothing to the fullness that it was. For us it was an ending of one place with lots of friends. For him, it is the ending of over a decade of his life's work. He poured his time, energy and finances into that site as a labor of love for all of us to enjoy. He shaped it through many years of evolutions. I spent five fantastic years there. We enjoyed it for many years and will mourn its loss. I am also supporting my friend in the death of his creation.
                  Well said!!!!
                  C5/C6

                  Comment


                    #69
                    A member here asked if we could have a field where we state our injury level.

                    Originally posted by SCI-Nurse View Post
                    I agree. Have requested this often but administrators including Dr. Young have not wanted to require this. Having this a mandatory field would also help screen out spam registrations, since most likely they won't have a clue what to fill in (with it being a free-text box).

                    (KLD)
                    This is true, SCI-Nurse! There once was a spammer on Apparelyzed who listed her injury level as (something like) "1", with no further explanation. And her avatar photo showed this lovely, graceful, model-type with long blonde hair, in a professional photographer-type pose. I asked her (I admit) facetiously if her avatar photo was taken pre-injury. I couldn't resist. And yes, Simon soon found the post and banned her. I tried to find it just now on Apparelyzed, but couldn't.
                    Female, T9 incomplete

                    Comment


                      #70
                      Requiring someone to divulge (or deny) a medical diagnosis in order to register is a bad idea, IMO. Having the field available, as we do, for those who want to share the information, is plenty.
                      "I have great faith in fools; self-confidence my friends call it." - Edgar Allen Poe

                      "If you only know your side of an issue, you know nothing." -John Stuart Mill, On Liberty

                      Comment


                        #71
                        Originally posted by SCI-Nurse View Post
                        Have requested this (a required field stating level of injury) often but *administrators including Dr. Young have not wanted to require this.
                        (KLD)
                        Why don't *they want to require this?

                        A lot of members have filled out that field in their profiles, but if you want to know that information, you have to go to the profile, an extra step. It would be more convenient to have that information appear under the avatar (required or not).

                        The information appearing under the avatar could look something like this - see below (go to Apparalyzed website to see how that site handled this issue: http://www.apparelyzed.com/forums/to...-cord-injured/).

                        All the best,
                        GJ
                        Attached Files
                        Last edited by gjnl; 3 Dec 2016, 3:20 PM.

                        Comment


                          #72
                          On Apparelyzed, the injury level field was visible below the avatar. This was convenient because, at a quick glance, we could give appropiate support in response to a question. And sometimes, if we saw that the new member was a high quad, someone would arrange to quickly put that person in contact with another, experienced, high quad. However, N/A was also an acceptable response if someone didn't want to enter an injury level. Researchers, for example, might put N/A.

                          P.S. gjnl, I didn't see your post until after I'd posted mine. Great minds...
                          And while we're at it, I like for the gender of who I'm talking to appear beneath their avatar,...if the member is agreeable to providing that information. It's reassuring, when getting advice on cathing, to know that I'm talking to someone with my same anatomy.

                          Whoops! My photo is enormous. I don't know how to make it smaller. This was "me".
                          Attached Files
                          Last edited by Vintage; 3 Dec 2016, 4:59 PM.
                          Female, T9 incomplete

                          Comment


                            #73
                            Hey Vintage, thanks for posting that.

                            All the best,
                            GJ

                            Comment


                              #74
                              I, too, appreciate knowing what a person is dealing with before replying to a post. I have SCI due to MS, but while some SCI issues are the the same regardless of cause, others aren't. I don't like to butt in where I have no experience with specific issues. To make it easier for other members to know what level/type SCI we have, many of us currently put that information in our signatures - but I think it would be nice for it to appear under the avatar, as gjnl and Vintage have suggested. I agree with Vintage that gender is often pertinent to threads and posts, too.
                              MS with cervical and thoracic cord lesions

                              Comment


                                #75
                                Originally posted by pfcs49 View Post
                                I agree with above strongly! We spinals ought to know where posters are coming from. It would increase intimacy and free up some conversants.

                                And regarding the Aparrelyzed community, it might serve all to give these homeless crips a pertinent forum or thread with a banner where CC opens directing new arrivals to this safe neighborhood where they can comfortably mingle with their old friends and new neighbors (us) before venturing out exploring all the new and mysterious areas to be found here.
                                In fact, IMO the situation demands such a warm courtesy from this site!

                                Would someone who can be "cause in the matter" please do this?
                                Everybody so far has failed to notice that my major wish was that a place for Apparalyzed immigrants to land be created, whether a stickied thread or a forum, that would be a nexus for them to join this community!

                                And, regarding the injury level: it shouldn't be a requirement but it should be a highly recommended suggestion.
                                69yo male T12 complete since 1995
                                NW NJ

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