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    #46
    Simon did inform the forum. Members can continue to pm, chat and read posts until December 15th and Simon also posted alternative sites. Many have migrated to another forum, using the same screen names and avatars. It's not perfect, but it's a pretty good start.

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      #47
      Be nice if new members started a thread to introduce themselves?
      Roses are red. Tacos are enjoyable. Don't blame immigrants, because you're unemployable.

      T-11 Flaccid Paraplegic due to TM July 1985 @ age 12

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        #48
        In case our new friends from Apparelyzed haven't seen, below is the Mission of CareCure, written by founder, Dr. Wise Young.

        If you are not familiar with Dr. Young, this is what he does- http://keck.rutgers.edu/

        The Mission of CareCure

        CareCure is an information web site. It is a place where people with spinal cord injury and related conditions can get together and discuss care, cure, and life and obtain the best and up-to-date information on these and related subjects. Over the years, we have added several other forums all aimed at facilitating communication and providing information to members.

        CareCure itself does not advocate particular points of view concerning care, cure, or life with spinal cord injury. Many members of course advocate their views on these and other subjects, such as politics, religion, food, music, literature, etc. These are views of the members, not CareCure.

        While advocacy movements have started within CareCure, the responsibility for these movements rests with the members and not CareCure itself. CareCure does not espouse any particular view on stem cells or other matters. I have discouraged attempts to collect money from carecure members in the same way we discourage advertising on this site.

        Let me explain why I decided that the mission of CareCure is information and not advocacy. Before I founded CareCure in July 2001, I had started Spinewire, the first interactive community forum. In 1999, I agreed to allow a company called Cando to take over Spinewire in hopes of generating revenues for spinal cord injury research.

        In 2001, Cando crashed along with the dot com industry. Cando took spinewire.com and cando.com into its grave. Even though I offered them $40,000 of my own money to purchase the spinewire/cando database from them, they sold the database and the remnants of Cando to some company for $200,000.

        When I formed CareCure, I decided not to allow CareCure be controlled by any organization again. From 2001-2006, we hosted CareCure on a commercial servers. It was expensive and we moved CareCure to Rutgers University. It continues to function with little or no interference from any organization. At the present, I am supporting the server with my donations. We have retained our independence.

        CareCure cannot itself be an advocacy site is because there is a tendency for advocates to attack and drive out people who don't agree with them. Advocates of all types are welcome here, except when they attack each other. That is why the first rule of the site is no attacks of other members. Unfortunately, many members break this rule all the time.

        It also is a human tendency to want to gather your friends around you and ban people that you don't like. We do not ban people because they hold unpopular views or are disliked. Over the years, we have banned relatively few people for egregiously attacking others and only after repeated warnings and refusal to comply.

        There is only one exception to this banning rule. Starting in 2007, spammers flooded our forum and many others. In order to survive, we ban spammers (i.e. people who post advertisements on our forums) on sight because they are not legitimate members of our community and are seeking to use our web site for commercial purposes.

        Thus, CareCure is an interactive information site for all people in the community, not only those who hold a particular point of view about care, cure, or life with spinal cord injury. We welcome all those who want to know about any aspect of spinal cord injury, who have information that they wish to share with others, and advocates of all view points.

        Wise.

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          #49
          He did so after he closed it. I hope someday he realizes what hurt he has caused for people who had no other support group a very poor way to treat his members. starting over is hard but I am reading here. I do wish the little sidebar blurb said what injury area they are, verses going to the full profile

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            #50
            ive been a member of both for awhile now, but i mainly posted on apparelyzed and joined there abit earlier than here, for some reason i only used this place now and then, ive always felt this place was more difficult to get to know people etc and seemed like alot of the people on here were not from the uk compared to apparelyzed, its probably not its just what im used to, i kind of think we are expecting it to be just like apparelyzed but its not, i just need to get used to the whole new layout etc, it would be nice if the little info thing had more.. well info on it.
            Btw i'm not complaining about anything just sharing what i think

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              #51
              Originally posted by Lavender lady View Post
              He did so after he closed it. I hope someday he realizes what hurt he has caused for people who had no other support group a very poor way to treat his members. starting over is hard but I am reading here. I do wish the little sidebar blurb said what injury area they are, verses going to the full profile
              i can hear your pain lavender , its not the same.. i dont really feel comfertable on here yet . I mainly just looked around and got to know a few people on there. i HOPE your okay
              I

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                #52
                Originally posted by rAdGie View Post
                ive been a member of both for awhile now, but i mainly posted on apparelyzed and joined there abit earlier than here, for some reason i only used this place now and then, ive always felt this place was more difficult to get to know people etc and seemed like alot of the people on here were not from the uk compared to apparelyzed, its probably not its just what im used to, i kind of think we are expecting it to be just like apparelyzed but its not, i just need to get used to the whole new layout etc, it would be nice if the little info thing had more.. well info on it.
                Btw i'm not complaining about anything just sharing what i think
                Nice to see you

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                  #53
                  Originally posted by Newmum View Post
                  Nice to see you
                  *Likespost*


                  theres no like button, something that was a quick way of acknowledgement, you know what i mean? :P

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                    #54
                    Hahah yes I do , you could just like a post to show " yeah , cool i get it .. or hi but lets not have a full on convo" sort of thing haha the good old days :P

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                      #55
                      Somebody with ambition, time and (probably) lots of hosting space could scrape the site and archive it somewhere.

                      Comment


                        #56
                        This is the only gimp site I frequent but I sure wish that info about level of injury, etc, was easily seen in posts! T12 me.

                        And welcome to apparelyzed immigrants-look at this as an opportunity to improve YOUR site! I would appreciate that as well.
                        69yo male T12 complete since 1995
                        NW NJ

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                          #57
                          I agree it would be helpful to see the injury level in the information below the avatar. That said, it would be helpful if members would at least post that information in their profiles. When I check profiles, I don't find injury level indicated with great frequency.

                          All the best,
                          GJ

                          Comment


                            #58
                            Well allllll......
                            I'm still stunned by Apparelysed just closing without being able to continue posting until the end on public threads to say goodbye.
                            To be able to people "I'm going to see how Care Cure looks", etc, etc .....
                            I take on board what you say about new members or us guys from Apparelysed saying hi or starting a thread saying hi.
                            To be honest this feels odd!! Apparelysed was like going to a friends and relaxing.
                            I'm still trying to see where I am, where I'm focused.
                            Feeling a little lost really!

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                              #59
                              Originally posted by Megatrig View Post
                              Well allllll......
                              I'm still stunned by Apparelysed just closing without being able to continue posting until the end on public threads to say goodbye.
                              To be able to people "I'm going to see how Care Cure looks", etc, etc .....
                              I take on board what you say about new members or us guys from Apparelysed saying hi or starting a thread saying hi.
                              To be honest this feels odd!! Apparelysed was like going to a friends and relaxing.
                              I'm still trying to see where I am, where I'm focused.
                              Feeling a little lost really!
                              You can still private message or update your status which will notify your friends. I am seeing many apparelyzed refugees in insightsciforum.
                              C5/C6

                              Comment


                                #60
                                Originally posted by gjnl View Post
                                I agree it would be helpful to see the injury level in the information below the avatar. That said, it would be helpful if members would at least post that information in their profiles. When I check profiles, I don't find injury level indicated with great frequency.

                                All the best,
                                GJ
                                I agree. Have requested this often but administrators including Dr. Young have not wanted to require this. Having this a mandatory field would also help screen out spam registrations, since most likely they won't have a clue what to fill in (with it being a free-text box).

                                (KLD)
                                The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

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