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  • #16
    Please keep us posted on how it goes. In the meantime, if you don't advocate for yourself, unfortunately, most of the time, no one else will.
    CKF
    The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

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    • #17
      OHHHHH I am so mad right now - I just got off the phone to schedule my scan at the hospital and reiterated that I am in a wheel chair and do not transfer, and will require a lift to get me from my chair to the scan table. I was told that there is NO lift and that staff can simply "lift" me from my chair to the table. I stated that I knew there was a lift in the hospital as I have used it while in the ER on previous occasions. Was told the ER is not part of their department. I asked, "do you realize you are not ADA compliant if you don't have a lift, or safe way to transfer me?" Her reply was something to the effect, YOU are not the only person in a wheel chair, and we can safely transfer you utilizing staff....I said fine - we shall see - I am going to call the main hospital and see if I can speak to a patient advocate -

      I guess I'm going to have to gather resources and document things in prep for filing a complaint...Wish me luck !

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      • #18
        Originally posted by JamesMcM View Post
        Oh I thought this was only referring to general doctor, I find unless you go to hospital for everything you're pretty much screwed if you can't transfer yourself. For the private places I understand though, it's not very common. So I don't get mad about it, I just make sure to usehospital facilities. One thing that does bother me at the hospital is when they get visibly pissy about getting the lift,really bugs me, like I need to feel like more of a burden than I already do, just emphasizes pathetic which makes me very quiet and miserable... I've only ever said something once and it was just along the lines of trust me it's a whole hell of a lot worse for me, you think I want to get in the fing thing!
        You said it all. I'm not going back to my local hospital anymore for this reason. The last time I went from my recling chair to the bed. The bed was only an inch higher, my butt got stuck between the chair and bed. When I got into the bed the nurse said he could have done more to help. I'm a C-5. I'm going to a bigger city hospital next time.
        Wish I didn't know now what I didn't know then.
        Bob Seger

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        • #19
          All of your complaints are quite simple to see resolved, a letter (Registered mail return receipt requested) to the ADA and the Local office of the Federal DOJ. List every occurrence of each time you feel you have been mishandled due to lack of proper equipment or your inability to access your care.

          I personally have no complaints, I can pretty easily transfer. But the local Hospital and everyone concerned is more than helpful getting the things necessary to assist in my handling and care during my many stays there. And believe it or not promptly!

          I do know some of the smaller local hospital facilities are struggling financially, and they are convenient for many folks. However, your complaints "should" really assist them in acquiring the necessary equipment to allow you access and safe transfer to be treated. Just try to be polite, it is quite obvious that some professional frustration might exist with some staff not being able to do their job properly.

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          • #20
            This must be even worse in countries outside of North America. I've been wanting to do a treatment for my hair I contacted both clinics in Spain and Switzerland both Told me they couldn't accept disabled patients because their dermatology and surgery clinic wasn't accessible.another thing we miss out on and live without there are uncountable useful/ help things overseas that I imagine we can't get

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            • #21
              All of your complaints are quite simple to see resolved, a letter (Registered mail return receipt requested) to the ADA
              Who are you mailing? There is no agency called the ADA. The ADA is a piece of legislation/law. Regulations related to the ADA are produced by the Access Board, but they have no enforcement arm or power. That belongs to (depending upon the part of the ADA & regs you are concerned with) the DOJ, DOT, or DOL.

              (KLD)
              The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

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              • #22
                KLD,

                There is always an agency designated to assist Disabled people in every State The names of these all these agencies escape me at the minute, that is who I mean by ADA, or call and write a follow up to the State Attorney General, if it is handled as Registered mail it WILL get attention, maybe not quickly but attention all the same.

                Also having been a Codes Enforcement Officer at one time, I do know not dealing with "written" complaints (paper trail) can make such an officer guilty of selective enforcement practices, and shirking his/her duty. This in most jurisdictions "if" prosecuted can lead to severe penalties, for the Codes Officer. Not a pleasant prospect. In my case a simple letter sent to the municipal office would suffice, as well as a phone call. But I did ask the complainant to write a letter of complaint. Why? It leaves a paper trail, It proves that I did receive a complaint, and was not persecuting someone who I might not particularly care for. Lastly that paper trail can be used in court when multiple complaints have been made, it indicates the severity of the complaint.

                A code officer is not just there to harass people ! I approached this job trying to get voluntary compliance, by using persuasion first. But insistence on full compliance with all these Building Codes, all the same. Another such office that comes to mind is the Equal Opportunity Office, they have some compliance clout. They can initiate compliance through bureaucratic methods, not direct enforcement. These other Agencies can also assist you by directing you towards the correct enforcement officials.

                So the term ADA may have many connotations and folks who may assist you, even the Fire Marshall's office, The Fire Dept itself, Building Dept. Public Safety Dept., in some jurisdictions there may even be an ADA compliance office. That is what I mean by ADA. The Federal office of compliance is directed towards Making States or municipalities comply with the Law, if they do not, then actions can be started against them, The city of Plymouth MA. comes to mind. The Feds made them make some of the public access areas available to HP people, they were ordered to comply under an Order of Consent. And they were fined quite a bit of money. They are quite severe when you tell them to shove it. They have NO sense of humor.

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                • #23
                  HAPPY TO REPORT.....I went to the hospital to get my dose of radio active iodine for my upcoming scan. While there the tech pointed out that the scan table had a solid base so the use of the patient lift would not be able to go under the table. I suggested they lift me onto a gurney then slide transfer me to the table. The tech looked at me quizzically, and said she would think about it, but to be prepared to be lifted by other employees. WELL today when I went to get my scan, she did indeed have the lift along with a gurney!!! I was so elated. Just wanted to give an update.

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                  • #24
                    Thanks for the update. Now take the time to write a letter to the hospital director or patient advocate praising them for making this accommodation. That reinforces their need to have such procedures developed for use when needed, and gives an additional "atta boy" to the tech who did this.

                    (KLD)
                    The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

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                    • #25
                      Ahhh, definitely will do. Thanks for the suggestion.

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                      • #26
                        Had another dermatologist appointment this week at Metrohealth's main campus outpatient building. I followed all the proper procedures to make sure the one and only lift would be available. Once again things didn't work. This time I was told the facility no, longer had a lift. What a come down for a place that used to be a model SCI treatment center. I usually find that being nice, but persistent works. Looks like it's time to become a thorn in someone's side.
                        Tom

                        "Blessed are the pessimists, for they hath made backups." Exasperated 20:12

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                        • #27
                          http:///forum/showthread.php?250309-...-an-exam-table

                          Enclosed is a PDF ( http://www.ada.gov/medcare_mobility_ta/medcare_ta.pdf ) for the exam tables.
                          Last edited by Cris; 09-26-2016, 08:58 AM.

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