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Keith Smith . "We are going to walk again! "

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    Keith Smith . "We are going to walk again! "

    I'm Keith. I am 30 years old. I broke my neck when I was 23 in 2009. I was in a motorcycle accident. Please watch my five YouTube story below...I will begin a blog on YouTube in a few days. Please subscribe! Please ask any questions you may have. Let my experience help you ask away!

    https://www.youtube.com/watch?v=bQFkV-nNyeM
    Keith Smith / Keith1985Smith@outlook.com

    Producer@RISEUPFILMS
    RISEUPDOC.com

    Facebook:
    https://www.facebook.com/RiseUpDocumentary/?eid=ARCLBhG9nSOGu0Ij86OW2J8gH3gyUbHybeVbAUHOk2iOn vmwHFXbBcktzhmmOux2Njq0AS9hRXfwhrIi


    Instagram:
    https://www.instagram.com/riseupdoc/

    Youtube:
    https://www.youtube.com/channel/UC9H...6q66mlGGZYfVHg

    #2
    Keith, I watched your video. It's good to have hope but when we were babies we had to crawl before we walked. You have good arm movement and strength, get rid of that power chair and push a manual until you can walk. Best of luck to you!

    Comment


      #3
      I have a manual chair. I agree with you 100%! Just trying to figure out the logistics of it. Thanks, Oldtimer.
      Keith Smith / Keith1985Smith@outlook.com

      Producer@RISEUPFILMS
      RISEUPDOC.com

      Facebook:
      https://www.facebook.com/RiseUpDocumentary/?eid=ARCLBhG9nSOGu0Ij86OW2J8gH3gyUbHybeVbAUHOk2iOn vmwHFXbBcktzhmmOux2Njq0AS9hRXfwhrIi


      Instagram:
      https://www.instagram.com/riseupdoc/

      Youtube:
      https://www.youtube.com/channel/UC9H...6q66mlGGZYfVHg

      Comment


        #4
        I really dislike the notion that unless the person with the SCI is always, constantly working towards getting out of that chair, they've somehow "given up" on life. Im definitely not saying that the OP is such a case, the thread title is what reminded me of this notion (which is surprisingly commonplace, even among the SCI community itself.) Its the underlying implication that life using a chair is not worth living, or not as valuable as an able-bodied life.

        Comment


          #5
          Originally posted by A trophy guy View Post
          I really dislike the notion that unless the person with the SCI is always, constantly working towards getting out of that chair, they've somehow "given up" on life. Im definitely not saying that the OP is such a case, the thread title is what reminded me of this notion (which is surprisingly commonplace, even among the SCI community itself.) Its the underlying implication that life using a chair is not worth living, or not as valuable as an able-bodied life.
          Totally agree. Just a general observation and in no way meant to diss the original poster but I do find the attitude of both ABs and some people w/ SCI that our lives should be devoted to walking again. SCI is an injury, not a disease, an ingury which is beyond the body's ability to fix. If I had my eyes gouged out no one would be expecting me to devote my life to growing new eyeballs and seeing again yet somehow there is a prevalent belief that if you aren't actively trying to walk again I am "giving up".

          Oh and BTW your avatar is hilarious.

          Comment


            #6
            Originally posted by t8burst View Post
            Totally agree. Just a general observation and in no way meant to diss the original poster but I do find the attitude of both ABs and some people w/ SCI that our lives should be devoted to walking again. SCI is an injury, not a disease, an ingury which is beyond the body's ability to fix. If I had my eyes gouged out no one would be expecting me to devote my life to growing new eyeballs and seeing again yet somehow there is a prevalent belief that if you aren't actively trying to walk again I am "giving up".

            Oh and BTW your avatar is hilarious.
            Well said!

            Comment


              #7
              Originally posted by t8burst View Post
              Totally agree. Just a general observation and in no way meant to diss the original poster but I do find the attitude of both ABs and some people w/ SCI that our lives should be devoted to walking again. SCI is an injury, not a disease, an ingury which is beyond the body's ability to fix. If I had my eyes gouged out no one would be expecting me to devote my life to growing new eyeballs and seeing again yet somehow there is a prevalent belief that if you aren't actively trying to walk again I am "giving up".
              Agree.. I just think it takes everyone their own time to reach that point, and to some it what gives them the motivation to keep on going..

              Comment


                #8
                I findit more of "giving in" to the chair. Which in my case has huge implicationsfar more disturbing than simply sitting in a chair, by doing that it means I am giving in to a life of dependency, which means I would not only have to accept,but actually expect to be taken care of the rest of my life! That isn't acceptable in my eye; In fact it turns my stomach. Especially when the limited options available to me do not justify it in anyway; It's completely undignified! In severe cases where you can't even go 24 hours on your own, or far worsecan't even get yourself in and out of bed, handle bathroom stuff etc it's not about me believing it's a lesser life, it's just plain undignified, and so much is now off the Table because of the disability, then how can I justify such atrocity when what I truly enjoy and want to do is no longer there! So you do everything in your power not to necessarily get out of the chair but to be able to live a dignified independent life, on your own terms, with your own abilities most importantly with freedom! And something that often gets forgotten is by all of us trying to get out of the chair as you call it, we slowly make it a possibility that no one else will end up like us, which makes this world just a little bit better; when people don't lose most of their bodily function because of one mistake! Frankly nobody deserves to live like this, everybody deserves a healthy body! That's the only true "fight" after a serious cervical SCI in my eyes!


                Every time I read up on assisted suicide, I constantly see these elderly people and how they say I'm managing my age or my disability pretty good right now, but when I can no longer take care of myself is when I draw the line; most people agree with that. I even see people that are able to recover on here saying they can't stand being taken care of so they do everything they can not to be; unfortunately some people are not lucky enough to have an incomplete injury or a lower onewhere their independence is still achievable. What I find disturbing is peoples conception that oh you bumped your spinal cord bad enough, OK now it's perfectly fine for you to be spoonfed and taking care of constantly, shit your pants that's OK... I couldn't disagree with anything more, I don't think it's acceptable at all! But that's just me, how you feel about your disability is up to you; so that shouldn't matter. just don't try and force your opinion on other people, calling others who don't agree with you cowards or weak to reinforce your own coping mechanisms and to supposedly help someone by living the life that you think is appropriate after something as severe as quadriplegia! We're all individuals, that girl that starved herself to death in a group home to avoid being taken care of, that rugby player the didn't want to be spoonfed they ended their life, one in a truly horrible way there's nothing cowardly about it;there's nothing weak about it!if anything they didnt let a severe disability change them; They stayed true to how they felt, their principles; they saw in dignity and they got away from it The only way they possibly could; facing the greatest unknown, the greatest test we all have to face death and none of us have the faintest idea of what thats like...
                Last edited by JamesMcM; 26 Apr 2016, 7:05 PM.

                Comment


                  #9
                  I see you haven't changed one bit. I feel sorry for you James.

                  Comment


                    #10
                    Originally posted by JamesMcM View Post
                    I findit more of "giving in" to the chair. Which in my case has huge implicationsfar more disturbing than simply sitting in a chair, by doing that it means I am giving in to a life of dependency, which means I would not only have to accept,but actually expect to be taken care of the rest of my life! That isn't acceptable in my eye; In fact it turns my stomach. Especially when the limited options available to me do not justify it in anyway; It's completely undignified! In severe cases where you can't even go 24 hours on your own, or far worsecan't even get yourself in and out of bed, handle bathroom stuff etc it's not about me believing it's a lesser life, it's just plain undignified, and so much is now off the Table because of the disability, then how can I justify such atrocity when what I truly enjoy and want to do is no longer there! So you do everything in your power not to necessarily get out of the chair but to be able to live a dignified independent life, on your own terms, with your own abilities most importantly with freedom! And something that often gets forgotten is by all of us trying to get out of the chair as you call it, we slowly make it a possibility that no one else will end up like us, which makes this world just a little bit better; when people don't lose most of their bodily function because of one mistake! Frankly nobody deserves to live like this, everybody deserves a healthy body! That's the only true "fight" after a serious cervical SCI in my eyes!


                    Every time I read up on assisted suicide, I constantly see these elderly people and how they say I'm managing my age or my disability pretty good right now, but when I can no longer take care of myself is when I draw the line; most people agree with that. I see even people that are able to recover on here saying they can't stand being taken care of so they do everything they can not to be; unfortunately some people are not lucky enough to have an incomplete injury or a lower onewhere their independence is still achievable. What I find disturbing is peoples conception that oh you bumped your spinal cord bad enough, OK now it's perfectly fine for you to be spoonfed and taking care of constantly, shit your pants that's OK... I couldn't disagree with anything more, I don't think it's acceptable at all! But that's just me, how you feel about your disability is up to you; so that shouldn't matter. just don't try and force your opinion on other people, calling others who don't agree with you cowards or weak to reinforce your own coping mechanisms and to supposedly help someone by living the life that you think is appropriate after something as severe as quadriplegia! We're all individuals, that girl that starved herself to death in a group home to avoid being taken care of, that rugby player the didn't want to be spoonfed they ended their life, one in a truly horrible way there's nothing cowardly about it;there's nothing weak about it!if anything they didnt let a severe disability change them; They stayed true to how they felt, their principles; they saw in dignity and they got away from it The only way they possibly could; facing the greatest unknown, the greatest test we all have to face death and none of us have the faintest idea of what thats like...
                    Very well said JamesMcM. I really believe SCI should be a human rights issue. We as human beings always should push forward not only the science but the society as well to find a cure for it not only for current SCIs but also for the future ones as the accidents do happen.

                    Comment


                      #11
                      Originally posted by A trophy guy View Post
                      I see you haven't changed one bit. I feel sorry for you James.
                      Of course I didn't (in contexts to how I feel about dependency) you think I was lying out of anger and desperation,all because it was too early in my preordain five-year coping time (supposed Time it takes for the brain to unwillingly adapt to finding contentment in less) when I said I'll stay true to how I feel about the situation no matter how long post? I won't let this injury or this lifestyle change me, never; I've seen it change, it's all too common and I don't find it notable/ uplifting in the slightest ( if anything I think wow in regards to the person that has to look after us)... But of course with time like anyone inevitably I have changed even in how I look at the situation, in certain ways. but of course it wouldn't fit your perception of positive, strong change in regards to the disability,so you won't notice it, so you can stay nicely tucked in to your perspective ... Which is fine. From what little I know about you considering we speak on spinal cord injury forums I wouldn't feel sorry for you in the slightest you know nothing of what it's like to lose your freedom, and to be cared for by others! despite your injury in a strong majority of situations you're able to do what you want, when you want, how you want, as many times as you want! you still actively pursue your health and bodybuilding ( and just like a friend of mine same injury as yours people respect you guys for all that) you don't even know what it is to spiral down an un escapable tunnel of serious health issues related to the injury despite making the best available health choices! Only to be offered "treatments" that flat out don't work and or open up doors to numerous other complications (including but not limited to; exasperating other secondary complications related to the injury and/or hindering recovery), not to mention have to be done by other people who more often than not have other things on their mind, hard to be truly sterile hahaha... Can't stop the rot without at least decent arm/ hand function because it's a continuous constant effort to do so with injuries C-5 and up. But even if you could find that kind of help ( hundreds of thousands a year) Who in the blue hell wants to be fiddled up the behind by other people, I mean a lot of elderly are checking out before that happens for good reason!


                      You know what, truth be told I don't see a lot of impressive feats in the disabled Community yes; sorry that's just me ( shouldn't offend you), I do have high expectations I was constantly trying to do better cause I never truly impressed myself despite doing things most could never do; and I'm not going to drop my expectations just because I broke my neck. But you know what I respect what Keith is doing and the effort he is putting into it, hell I myself am even starting to make connections and progress that are very likely to effect a whole hell of a lot more people than just me! With that effort, and not giving into the chair say ya it's not enough for me! he and I are probably going to actively be a part in finding an effective treatment, for the injuries of today and most importantly tomorrow!most likely a small part, but apart no lessfar bigger than just preaching and throwing a couple hundred dollars. Hopefully one day both of us will be able to say yeah I helped get people and myself out of thous chairs, or at least Out of that lifestyle! hopefully in the near future nobody else remains paralyzed after one accident! that's inspirational, that's uplifting, in my eyes at least personally I'd say it's pretty fucking sad if you didn't think it was! Because it's slowly becoming a reality!


                      now what if I was a different person,as you so hope me to be , So you wouldnt have to feel sorry for me! And I mostly just turn my back on research, and just completely gave up on getting out of the chair! Tomorrow I woke up knowing and being just OK with the fact; for the rest of my life someone is going to get me up, clean me and ever night they're going to put me in bed (when they're available mind you, not when I want to ). And instead of trying to ask for as little help as possible which obviously has implications on how much I get out, I just said "let's go here", "I want to go there", "can you lift me into this", "hey what are you doing want to hang out" (aka do you want to help me for a bit hopefully I have no accidents) all to just keep my mind preoccupied away from my limitations, my injury, how it's un dignified, how much of a burden I am, and most importantly if/when/how I'm getting out of this chair. Then maybe one day when Iam lifted onto my commode, and having someone scrub me down i'll see on TV "come one come all, there is now a treatment for SCI". Then years later when I look back I can say "Yep science really came along way, they were able to get me out of my chair and tell me exactly how to do it" as if I didn't expect enough to be done for me! Doesn't sound inspirational at all, oh yeah I forgotwhat a few ignorant able-bodied people and rehab told me I sat in the chair, I accepted less, and I found a way to do things ( through other people *cough*) yay I'm so strong and inspirational; 15mins later " can you pass me that please"...


                      In conclusion, your damn fucking right I haven't "changed"; truth be told that's the only thing that I have some self-respect for since this accident.
                      Last edited by JamesMcM; 1 May 2016, 12:39 AM.

                      Comment


                        #12
                        P.S Keith one way or another, the science is coming along; we need to help; we need to educate ourselves on the research, we need to encouragecollaboration and give our input so that the researcher have something to think about. Let them know that we are watching, we are learning and we are willing to work! We need to invest and find investors. And for gods sake's don't forget we need to prevent our bodies from rotting away, drop foot, joint contractors, osteoporosis, bladder shrinkage, muscle atrophy, prevent the muscles from losing the ability to contract, spinal atrophy etc. etc. if these things get out of control, you won't see a substantial recovery. And nothing in modern medicine will directly teach you how to do that, so you need to educate yourself, you need to ask the questions the doctors never get asked!! But we all need to remember that curing SCI is bigger than just one individual bigger than our selfs. If my bodies gone and rotten, then I'm willing to die and leave my money behind rather than spend it on condoning and living this lifestyle! But its still got a little bit of life in it! So let's keep making connections, finding ways to bring in money, introduce people, raise it yourself blah blah let's get the fuck out of these chairs,at the very least into an independent lifestyle and keep other people from ending up in the chair the rest of their life. To the people that don't want to participate, and want to tell us spinal cord injury is OK and condone it's presents, ignorantly and yes indirectly ( hopefully ) condoning it as it continues to spread from person to person that injures themselves, ruining their life! Just to make themselves feel better, often to be enforced a coping mechanism. Spinal cord injury is not OK, just because YOU can "rebuild" a life out of so much less after years of morning as the mind warps and tries to adapt does not make it OK! there's nothing remotely OK about it! It's one of the worst things that can happen to anyone especially if it's a serious high cervical injury; we know this, we know the "dark days" so let's get rid of them as much as possible and let's make sure other people don't have to go through them. I don't hope for a future where disabilities are accepted and ramps are everywhere you turn, I hope for a futurewhere disabilities become treatable, where even the elderly very rarely need wheelchairs. The saddest part about SCI is just taught it's impossible so get used to setting expectations low and that's exactly what happens, so if that's what they want to do let them,it's unfortunate but who cares frankly I don't ever want to think like that! Science has come along way since I was injured in 2012 and it's only going to get better, so let's keep the ball rolling as the affected we are responsible to push!

                        BTW I just want to say that I come from a perspective of almost complete dependency, truth be told I think very much differently of injuries that leave you still able to remain independent and to your own devices and resilience! Only a small percentage of SCIs are injured high enough and severely enough to be left dependent! Even though it's a small number, nobody deserves to be taken care of even at 80 years old but especially at 20, we all deserve the same freedom; that level of freedom cannot be reached through other people nurses, friends, parents, organizations when you can't even get yourself out of your chair doesn't matter.nonetheless every injury no matter how low needs to be treatable, it will happen; we just need to help! And we need it ASAP.
                        Last edited by JamesMcM; 1 May 2016, 12:40 AM.

                        Comment


                          #13
                          Yes, science has to be pushed and supported. The founder of facebook San Parker has donated $250 Million dollars for cancer research and we need something like that for SCI. AIDS community pushed for cure so long and now HIV is treated with pills.

                          Comment


                            #14
                            Here it is something that GRAMMY posted which hopefully will become reality soon.

                            “Polina Anikeeva hopes to one day be able to regenerate the spinal cord to restore movement for paralyzed people or possibly bypass the spinal cord altogether with a device that mimics its function. With support from the National Science Foundation (NSF), the materials scientist and her team at the Massachusetts Institute of Technology (MIT) are engineering a nerve repair “tool kit,” with an eye toward repairing damaged nerves and even growing new ones.

                            https://spinalcordresearchandadvocacy.wordpress.com/

                            Comment


                              #15
                              James, look for God and when you find Him talk to Him about the problem. You'll feel a hell of a lot better, maybe even enough to vote. Now I can't tell you who to vote for but can say, don't vote for Hillary!

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