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Lemony Snicket life?

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    Lemony Snicket life?

    I had to read some of my old medical reports. One doctor wrote in his hospital report, literally, that I am "an unfortunate man".

    Not sure whether to laugh or cry at that one. But I'd much rather be called "difficult", like in that Seinfeld episode with Elaine, than "unfortunate".

    #2
    We see this often from physicians who are really clueless about disability. Somehow they think it is appropriate to include their own value judgments into their charting about our patients. It is unprofessional, but common.

    In general, health care professionals grew up with the same prejudices and misconceptions about disability as the rest of the community, and bring those to their practice. Because they tend to only interact with people with SCI when things go wrong (the original injury, the urosepsis episode, the bad pressure ulcer, etc.) their experience only reinforces these negative attitudes. They rarely see the person with a SCI who has a high level of wellness, takes good care of themselves, lives an active social and vocational life, participates in wheelchair sports, etc. etc. This does not excuse their prejudices, but it does help to explain them.

    One study of ER staff found that when questioned specifically about SCI, and what they would want done if they had one themselves, resulted in 80% saying "let me die"! I shudder to think about how this flavors the care that they provide to both newly injured people with SCI, and those with chronic SCI that they see in their ER.

    (KLD)
    The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

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      #3
      Ha!
      "An unfortunate man.....", sounds like the start of a poem he was working on. Yes, kind of a pity response.

      Comment


        #4
        Maybe "unfortunate" because you had him for a doc. lol
        You will find a guide to preserving shoulder function @
        http://www.rstce.pitt.edu/RSTCE_Reso...imb_Injury.pdf

        See my personal webpage @
        http://cccforum55.freehostia.com/

        Comment


          #5
          Originally posted by SCI-Nurse View Post
          One study of ER staff found that when questioned specifically about SCI, and what they would want done if they had one themselves, resulted in 80% saying "let me die"! I shudder to think about how this flavors the care that they provide to both newly injured people with SCI, and those with chronic SCI that they see in their ER.

          (KLD)
          I often think and say that I wished I had died way back when. I've lived and had lots of experiences ... but really, so what?
          Roses are red. Tacos are enjoyable. Don't blame immigrants, because you're unemployable.

          T-11 Flaccid Paraplegic due to TM July 1985 @ age 12

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            #6
            I agree. A few moments of happiness weighed against all the rest? So what? I'm almost two years in and if I become inspiration porn through wheelchair sports, so what? It still wasn't worth it.

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              #7
              I dunno people. I once saw the phrase "unfortunate gentleman" written on my medical chart and I interpreted it to be a genuine show of compassion on the part of the Doctor.

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                #8
                As sucky as being a c 4/5 quad is (compared to being AB), I wouldn't mind living to be 100 years old, provided my mind stays sharp. All I need is enough money to hire helpers/live-ins and for the skin on my butt to stay strong. I feel like I have something to offer the world... delusional maybe, but that's my outlook.

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