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    #16
    Originally posted by doingtimeonmyass View Post
    One thing to mention about xylitol is that if you have animals be careful not to ever let them accidentally get into them. Xylitol is extremely deadly to canines.
    Thanks for adding that, Doing! I heard about the Xylitol from my dentist. He's retired Navy and it seems the Navy has researched this stuff fairly well for preventing cavities from dry mouth. I use ACT mouth and tooth rinse after brushing in the morning and Biotene tooth paste before bed with the Xylitol containing candies during the day if needed. My dry mouth just about disappeared after I moved from regular Ditropan to Ditropan XL but when I need to take oxycodone or Levsin it reappears even worse than before.
    Courage doesn't always roar. Sometimes courage is the quiet voice at the end of the day saying, "I will try again tomorrow."

    Disclaimer: Answers, suggestions, and/or comments do not constitute medical advice expressed or implied and are based solely on my experiences as a SCI patient. Please consult your attending physician for medical advise and treatment. In the event of a medical emergency please call 911.

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      #17
      15mg a day is rough. If it's rough on you now, it will likely always be that way. At least it was for me.
      I'm at 5 mg a day now, and my mouth is much more bearable, though still kinda dry.
      As far as remedies to keep it at bay, I'd say +1 to certs or anything along that line. Good luck.
      Rollin' since '89. Complete C8

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        #18
        My doctor just switched me to Myrbetriq (Mirabegron) to see if it causes less dry mouth than Enablex. Has anyone tried that one?

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          #19
          I am taking 20 mg of oxybutynin and my doctor this week prescribed myrbetriq in addition to oxybutynin. I started taking them today.
          T6 complete (or so I think), SCI since September 21, 2003

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            #20
            Originally posted by paramoto View Post
            I am taking 20 mg of oxybutynin and my doctor this week prescribed myrbetriq in addition to oxybutynin. I started taking them today.
            Prepare to be parched.

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              #21
              Please let us know how myrbetriq works for you.

              We are always looking for alternatives to the anti-cholinergic meds as well.

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                #22
                Botox is no bargain either.
                Be forwarned.

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                  #23
                  Originally posted by Sue Pendleton View Post
                  Try gum or candies with xylitol in them as a sweetner. There is some pretty good evidence that it helps ward off caries and decay as well as stops dry mouth. Brushing before bed with biotene helps prevent the problems of dry mouth too.
                  Xylitol is a good source of diarearrh, shits.

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                    #24
                    Originally posted by Sue Pendleton View Post
                    My dry mouth just about disappeared after I moved from regular Ditropan to Ditropan XL but when I need to take oxycodone or Levsin it reappears even worse than before.
                    Same here, Sue.


                    So how is the dry mouth now, Scott? Did the lozenges help?

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                      #25
                      I switched from ditropan to trospium (generic for sanctura - like KLD mentioned) and my dry mouth has been considerably better. Definitely worth it to me. None of the gum, toothpaste, etc. ever worked.

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                        #26
                        Originally posted by hlh View Post
                        Please let us know how myrbetriq works for you.

                        We are always looking for alternatives to the anti-cholinergic meds as well.
                        The dry-mouth got better, but the trade-off was stomach issues. Ugh. I decided to see what would happen if I didn't take any bladder meds at all, but the dysreflexia has been pretty bad. Back to square one.

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                          #27
                          Have you discussed bladder Botox with your urologist? It is not often used for those with indwelling catheters, but can be, esp. for those who have too many side effects with the anticholenergic meds (such as yourself).

                          (KLD)
                          The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

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                            #28
                            Taking 30mg oxybutynin, had dry mouth for the first 3 years, with time learned to adjust my diet and no longer suffer from dry mouth. Fruits and vegetables is the key, no salty, sugar, no alcohol or caffeine, once figured out the diet, now I can enjoy any of those things, with moderation.
                            c6/7 incomplete 6/30/07

                            whats that smell? its me, cause im the shit.


                            если я сейчас умру то нахуй я родился

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                              #29
                              Originally posted by SCI-Nurse View Post
                              Have you discussed bladder Botox with your urologist? It is not often used for those with indwelling catheters, but can be, esp. for those who have too many side effects with the anticholenergic meds (such as yourself).

                              (KLD)
                              I've been leery. My body reacts very, very badly to changes of any kind.

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                                #30
                                I remember when I had this problem with Ditropan and Detrol I was switched over to Sanctura and it helped out.
                                "Life is about how you
                                respond to not only the
                                challenges you're dealt but
                                the challenges you seek...If
                                you have no goals, no
                                mountains to climb, your
                                soul dies".~Liz Fordred

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