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hipcrip update

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  • hipcrip update

    Got this from Penny,

    I miss you guys so much and hope you're well and keeping the pains [central and human pains in the ass] at bay.

    I'm in San Juan to have surgery tomorrow that hopefully will bring a 7 month baclofen pump ordeal to an end. When I had my 3rd pump put in last November, the incision didn't heal, so I've been living with a hole in my abdomen big enough to see the letters on the pump since then. Amazingly I've not had major infections or meningitis, but it hasn't been easy and a lot of it is why I've been away from CareCure.

    Tomorrow they're going to remove the current pump and sew up the existing pocket, create a new pocket on the other side of my abdomen and place a new pump in it, and replace the tubing and intrathecal catheter. I'm as eager for all this to be over as I am terrified of having another surgery.

    Would you please let the folks of the pain forum know I miss everybody and am eager to get back? And if it's not too shameless and self-serving, I'd really appreciate a request for good thoughts and prayers that the surgery and recovery are complication-free.

    Got to go take meds and eat my last pre-NPO meal. I hope to be checking in with you shortly after the surgery.

    Love you, my friends!

    Penny aka thehipcrip

  • #2
    Thanks for posting this Ket. If you get back to her again tell her she is missed dearly, and I send my love.
    You will find a guide to preserving shoulder function @

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    • #3
      Please tell her the docs need to check for MRSE (not MRSA).

      I had the exact same problem, incision wouldn't heal. Tried it 4 times before I got worried about the neuro screwing me up even worse. I left Iowa and the neurosurgeon who kept taking it out, washing it in abx juice, then putting it back in and sewing it up, only to have it not heal and open up. I too had a hole in my abdomen where you could see the silver pump, about the size of a half dollar.

      Came to MT and the first nurse I saw said you have MRSE, "methicillin resistant staphococculus epidermis"...or whatever it's called. The doc here took out the pump from one side and put it in the other, and now there's huge scar tissue buildup the size of a golf ball on that side where it used to reside. But the abx took away the MRSE and the pump is working well.

      If the docs had checked in Iowa for MRSE, it would have negated all the surgeries I had with the pump incision not healing.

      Good luck Penny, msg me anytime, best of luck. And have them check for MRSE.
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      • #4
        Thanks for the update. Glad to catch up with her.

        Send her my best wishes,


        • #5
          My good thoughts and prayers go with you, too!
          MS with cervical and thoracic cord lesions


          • #6
            Good thoughts sent your way!
            Roses are red. Tacos are enjoyable. Don't blame immigrants, because you're unemployable.

            T-11 Flaccid Paraplegic due to TM July 1985 @ age 12


            • #7


              • #8
                Thanks Bill. I miss Penny.


                • #9
                  thanks for that update...I hoped she was doing well.....


                  • #10
                    mend quick
                    Get involved in politics as if your life depended on it, because it does. -- Justin Dart

                    I shall not tolerate ignorance or hate speech on this site.


                    • #11
                      Prayers and good thoughts for you, Penny.


                      • #12
                        Thanks for the update! Tell her we're sending positive thoughts!
                        Wife of Chad (C4/5 since 1988), mom of a great teenager


                        • #13
                          Heal quickly, Penny! We'd like to stop by down there sometime and have lunch. Get home soon and well!
                          Courage doesn't always roar. Sometimes courage is the quiet voice at the end of the day saying, "I will try again tomorrow."

                          Disclaimer: Answers, suggestions, and/or comments do not constitute medical advice expressed or implied and are based solely on my experiences as a SCI patient. Please consult your attending physician for medical advise and treatment. In the event of a medical emergency please call 911.


                          • #14
                            Heal quickly and well HC. Sorry you're going thru pump surgery hassles, damned if you do, damned if you don't.
                            "a T10, who'd Rather be ridin'; than rollin'"


                            • #15
                              Have'nt heard anything more yet from Penny, so I'm hoping she is doing well. If I hear more from her, I will pass it along.

                              Never much fun going through surgery, and when it doesn't want to heal......major concern. I hope this time it works!