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working for over 25 yrs in pain

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    working for over 25 yrs in pain

    I like to hear success stories. but, am a bit tired of other complaints. I really don't post here much any more as I have nothing to add. so, guess i'll say no more except worked in pain until in tears, drove my son in pain on thousands of mile trips in tears and I can't really suggest anybody do this. yet....am glad I did though paying big price now. wtf do I know? nothing. except I don't think I can hang in there much longer. so. was it worth it? I dunno. my son's eyes say no, what a f'd up life. ok, my rant for the night following 5 days of diarrhea all over me and bed with no help. never happened before.

    #2
    I don't know Cass, although there is a great sense of pride in working through the pain, you have made me question, is it worth it. Everyone is different, some may have no choice, but there is something to be said about taking care of yourself first.
    It sucks to hear your pain now and your regret. I wish there was something that could be done to make things better for you. Hang in there, you help people here.

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      #3
      Call in some help for a few hours a day until you get whatever that is under control, Cass. See a doc maybe he can get you in a hospital for a few days so you get it paid for until you are back where you were. Pain is bad enough without the added downhill slide in your environment.
      Courage doesn't always roar. Sometimes courage is the quiet voice at the end of the day saying, "I will try again tomorrow."

      Disclaimer: Answers, suggestions, and/or comments do not constitute medical advice expressed or implied and are based solely on my experiences as a SCI patient. Please consult your attending physician for medical advise and treatment. In the event of a medical emergency please call 911.

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        #4
        Been at it 21yrs but only full-time for 14yrs ... I'm getting awfully tired too but I can't afford to go off and I have no idea what I'd do with my time ... I'd go nuts with no husband or child.

        So, stuck.
        Roses are red. Tacos are enjoyable. Don't blame immigrants, because you're unemployable.

        T-11 Flaccid Paraplegic due to TM July 1985 @ age 12

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          #5
          If they dont have the torturous pain they just dont/cant get it and for thr most part dont/cant care. I hear and understand. I am so sorry and understand the complexity of the situation. You do need a break, but how? Get that too.

          Courage

          Ket
          Kindly,

          The Ketamine Kitty

          All the tears, all the pain, all the rage through the night (apolgies to the rewrite) RR

          Next time I die make sure I'm gone,
          don't leave 'em nothing to work on JT

          And I ain't nothin but a dream JM

          Comment


            #6
            lynn, you absolutely correct, go nuts. I lived in hospital LONG time - YEARS. I do not have driver license although trying to get family to help me get it. Do have a dog not, almost 3 years. He seems have helped tremendously but really irks me he doing that. I never got hi to do that. I got him to be my friend and he has exceeded that. I cannot even hear, understand what is said on TV or talk with anyone. Sure am BEGGING my family to help me regain driver license. Hoping license and getting out, will at least open a new door I do not know about. Dog though does give me 300+ kisses each nigh we get in bed. He lays aside of me, I guess all night. That probably makes me feel good and I know seeing him happy, makes ME feel good.

            Comment


              #7
              Ket, hey now. I am supposed to be the only person on here at this time.

              Originally posted by bollefen View Post
              If they dont have the torturous pain they just dont/cant get it and for thr most part dont/cant care. I hear and understand. I am so sorry and understand the complexity of the situation. You do need a break, but how? Get that too.

              Courage

              Ket

              Comment


                #8
                Hah, haven't slept more than an hour or 2 at a time in going on13 years. just rarely hit this site. i type so slow it timesout befor i can finish and during the night i don't have the patience to write in word and copy it over etc.

                ket lurking when you least expect it

                Originally posted by rlmtrhmiles View Post
                Ket, hey now. I am supposed to be the only person on here at this time.
                Kindly,

                The Ketamine Kitty

                All the tears, all the pain, all the rage through the night (apolgies to the rewrite) RR

                Next time I die make sure I'm gone,
                don't leave 'em nothing to work on JT

                And I ain't nothin but a dream JM

                Comment


                  #9
                  Originally posted by rlmtrhmiles View Post
                  lynn, you absolutely correct, go nuts. I lived in hospital LONG time - YEARS. I do not have driver license although trying to get family to help me get it. Do have a dog not, almost 3 years. He seems have helped tremendously but really irks me he doing that. I never got hi to do that. I got him to be my friend and he has exceeded that. I cannot even hear, understand what is said on TV or talk with anyone. Sure am BEGGING my family to help me regain driver license. Hoping license and getting out, will at least open a new door I do not know about. Dog though does give me 300+ kisses each nigh we get in bed. He lays aside of me, I guess all night. That probably makes me feel good and I know seeing him happy, makes ME feel good.
                  Oh, you really hit some of my issues. Like you I have severely limited input perception. I can hear if someone talks carefully and slowly to me, but no TV and my vision isn't reliable even when I am not hallucinating (from brain damage, a type of seizure activity, not from meds).

                  Independence - I will never drive again, but I am so ready to relocate to an area with public transit. I am completely dependent on others for transportation. So I have to balance their schedules with my variable ability to function and can only go out when everything lines up. I really try to go out at least once a week, but sometimes it's only once a month. Being homebound just plain sucks.

                  I really would not manage without my dogs. A couple of times, they have been the only thing between me and suicide.
                  Played with bombs- No SCI, Brain Damage enough that I require a chair and a caregiver.

                  Comment


                    #10
                    Originally posted by IsMaisin View Post
                    I really would not manage without my dogs. A couple of times, they have been the only thing between me and suicide.
                    I hope they don't fall asleep on you at night ... or they'll crush you inadvertently!
                    Roses are red. Tacos are enjoyable. Don't blame immigrants, because you're unemployable.

                    T-11 Flaccid Paraplegic due to TM July 1985 @ age 12

                    Comment


                      #11
                      Originally posted by lynnifer View Post
                      I hope they don't fall asleep on you at night ... or they'll crush you inadvertently!
                      Actually they do. Buttercup, the golden (seizure detection, mobility assistance) puts me to bed by lying next to the pillows with her chin on my neck or shoulder. Ivan, the Anatolian (mobility assistance, qualified therapy as well), sleeps on my legs, sometimes curled up, sometimes with his head on my stomach.

                      They make me feel very safe, and they don't mind if I cry into their fur. One of Buttercups commands is "make better" which means lie next to someone and put her chin on their chest while the person pets or holds her. She is still working on therapy qualification.
                      Played with bombs- No SCI, Brain Damage enough that I require a chair and a caregiver.

                      Comment


                        #12
                        to the o.p I was born with a painful life ahead. a good life though. the last couple years have been really hard. Im dealing with some of what you are dealing with, but also take pain meds. sometimes I do get windows of no pain. mostly now its hit and miss with medications and tests until the problem is figured out.

                        Im really hoping modern medicine will prevail over pain and orthastatic tachycardia, fatigue and disautonomia.

                        I guess the answer is I could't deal with work and pain. that is why im drawing $666 a month and living with a fentynal patch, and an oxy 2-3 times a week.


                        I don't know what id do without my skype buddies. they make me laugh, and they cause enjoyment, and they give me something to look forward to, as does my camera, and taking up watercolor(not very good, but better than last week).

                        Comment


                          #13
                          Originally posted by IsMaisin View Post
                          They make me feel very safe, and they don't mind if I cry into their fur. One of Buttercups commands is "make better" which means lie next to someone and put her chin on their chest while the person pets or holds her.
                          I need a man like that! "Make better." Jeez!
                          Roses are red. Tacos are enjoyable. Don't blame immigrants, because you're unemployable.

                          T-11 Flaccid Paraplegic due to TM July 1985 @ age 12

                          Comment


                            #14
                            I know a man like that, but he also likes rubber, clothlines, and trashbags.

                            Comment


                              #15
                              I still miss working, and would if I could. Not enough hand movement left, and too much pain, but if the hands would work....I would do it. Maybe work became too much of me, or I became too much of the work. Families just are'nt close like they use to be. I did'nt notice it so much until I could'nt work. Now I try to stay busy sewing when I can, and doing postcards when I have the supplies. I have'nt been able to drive now in almost two years. I miss that a lot......being able to get out on my own and look around. Now, I have to wait until someone has the time, and I feel up to it when they do. Does'nt always work out. I'd like to get out once or twice a week, but sometimes it's only once a month.

                              I just wish I had been smart enough to have chosen a company that had a retirement plan! I had figured on starting a savings plan and just keep right on working....but that did'nt work out! lol So Cass, I hope wherever you worked, they had a retirement plan for employees. Jim and I always thought we had the time to get it done, but I'm afraid we got done in.......

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