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    #16
    Nice posts in this thread and I dont want to sound like a downer but everyone is talking as if our societal infrastructure does NOT break down in the next 10 years. Will save this for another forum but I do have a degree in social science and some of the models show basic services of our society breaking down in the not too distant future with the aged and disabled being the most effected.

    Having said that live today, we dont know if theres going to be a tomorrow.

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      #17
      I'll never admit to being over 25 :-)
      Get involved in politics as if your life depended on it, because it does. -- Justin Dart

      I shall not tolerate ignorance or hate speech on this site.

      Comment


        #18
        Originally posted by havok View Post
        So my understanding is roughly 40 years. So a youngin like myself being injuried at age 22 will live to about 62? Obviously complications, care and injury affect it but Maybe some people know some ages people passed away or still alive(and please include the years injuried if possible)? And I only speak from a paraplegic side of view, I understand its different and worse for quads.

        PS: I have a torn upper aorta that they fixed with a graft from my groan. Anyone got numbers on that too I'd be curious
        Whoops, I am 2 years past my sell by date. I am 68 trying for 69 and 42 years post sci, 43 on 6/6/2013. I am T10 and pretty healthy, I am thinking this year is a big hurdle for me as both my parents died at age 68 and my elder sister never saw 60, all from various forms of cancer. I am somewhat worried about my inherited telomeres but enjoy everyday. I am very lucky in that I have been spared chronic pain. Because of prevailing notions re urinary mgt when I was injured, I had TUR and Sphincterotomy early on negating potential for intermittent catheterization. The upside of this is no urinary infections (maybe one per decade). The urinary nurse in rehab instructed me to drink beer for clear urine and I took his advice to heart, lol. After several shoulder injuries I have become a nutjob re shoulder preservation using transfer boards, power driver seat, power beds all the time when possible. I have a burning desire to avoid shoulder surgery and mainly the accompanying need for a nursing home stay for rehab.

        I attribute my longevity with sci and general level of happiness to my wife of 38 years, a wonderful woman and fellow chair user with the patience and wisdom required to deal with an idiot like me.

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          #19
          Originally posted by ancientgimp View Post

          I attribute my longevity with sci and general level of happiness to my wife of 38 years, a wonderful woman and fellow chair user with the patience and wisdom required to deal with an idiot like me.
          But you wouldn't even let her beat you in one marathon!
          stephen@bike-on.com

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            #20
            "Disabilities Studies"

            A friend has recently made me aware of Disability Studies (and lack of) at the university level. I'm referring to the study of disability issues, similar to "Black Studies", and "Women's Studies", "International Studies", etc. I'm not referring to help the disabled programs like counseling, etc.

            In reading this post and many others it seems that tons of disability issues are neglected for lack of program funding and interested students, both disabled and not.

            I'm sorry to somewhat hijack this, but the subject of longevity, for example, is so important and it seems there may not be current studies on that.

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              #21
              Originally posted by triumph View Post
              I'm sorry to somewhat hijack this, but the subject of longevity, for example, is so important and it seems there may not be current studies on that.
              I would encourage you to look for scholarly papers by Michael DeVivo, DrPH. He has written a whole series of papers over the last 20 years on life expectancy, longevity, and relative risks for comorbidities in persons with SCI, among other topics.

              (KLD)
              The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

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                #22
                Originally posted by ZenBiker View Post
                Nice posts in this thread and I dont want to sound like a downer but everyone is talking as if our societal infrastructure does NOT break down in the next 10 years. Will save this for another forum but I do have a degree in social science and some of the models show basic services of our society breaking down in the not too distant future with the aged and disabled being the most effected.

                Having said that live today, we dont know if theres going to be a tomorrow.

                There are other problems emerging. My greatest concern for you young'ns is the growing problem of antibiotic resistant bacteria. UTIs may again rise to the top of the list of death causes if this trend is not stopped or reversed.
                You will find a guide to preserving shoulder function @
                http://www.rstce.pitt.edu/RSTCE_Reso...imb_Injury.pdf

                See my personal webpage @
                http://cccforum55.freehostia.com/

                Comment


                  #23
                  I have been C4 since 1965 age 18. Let me echo some of the advice of others; enjoy life, find something useful to do and only worry about the things you can control.
                  Tom

                  "Blessed are the pessimists, for they hath made backups." Exasperated 20:12

                  Comment


                    #24
                    Originally posted by TomRL View Post
                    I have been C4 since 1965 age 18. Let me echo some of the advice of others; enjoy life, find something useful to do and only worry about the things you can control.
                    Respect.
                    stephen@bike-on.com

                    Comment


                      #25
                      I have been C4 since 1965 age 18. Let me echo some of the advice of others; enjoy life, find something useful to do and only worry about the things you can control.
                      Good words to live by.

                      Hopefully our life spans won't be effected too much. Avoiding pressure wounds & possible infection is huge...though I'd be the first to say sometimes you end up with a wound even though you've been careful. I've had several surgeries to fix wounds. Two people I was at rehab with at Kessler in NJ back in 95, Stephen Mahoney & Christopher Reeve, passed away from pressure wounds & infection. Health can be fragile.
                      C4/5 incomplete, 17 years since injury

                      "The trick is in what one emphasizes. We either make ourselves miserable, or we make ourselves happy. The amount of work is the same.” - Carlos Castaneda

                      "We live not alone but chained to a creature of a different kingdom: our body." - Marcel Proust

                      Comment


                        #26
                        worried

                        Originally posted by SCI-Nurse View Post
                        This is not correct. See this link for the actual statistics. Keep in mind that this is an AVERAGE. Many people live much longer...and some shorter, often because they don't take good care of themselves.

                        According to Model Systems data, a person with a C6 injury who is injured at age 20 is expected to live an average of 40.3 MORE years (ie, to age 60, not just to age 41), compared to an average of 52.7 (aged 72) if the same person does not have a SCI. I have many clients who have exceeded these numbers.(KLD)
                        I am engaged to an awesome Angel, My Fiancee Renee was injured c6,c7 ten yrs ago in an auto accident. She has partial use of upper limbs, We just had a beautiful baby girl born to us last june, other than hip pain from the removal of bone for the fusion, virtually she stays pain free...

                        Talkin with her father the other day, and he said that he believes she is already in the bottom end of her life expectancy.

                        She was injured at the age of 23, and just turned 34, carried our daughter the complete nine months amazingly, not so much as even morning sickness, Unbelievably Strong determined woman.. Is there any stats for mid twenties sci life expectancy of females?

                        Just really scarred me out of my mind when her own father said that with out any emotion on his face... I cant imagine my life without her, shes my hero, my inspiration.. And our 11 month old daughter now???

                        Any help or encouraging words, PLEASE



                        (KLD)[/QUOTE]

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                          #27
                          Originally posted by ZenBiker View Post
                          Nice posts in this thread and I dont want to sound like a downer but everyone is talking as if our societal infrastructure does NOT break down in the next 10 years. Will save this for another forum but I do have a degree in social science and some of the models show basic services of our society breaking down in the not too distant future with the aged and disabled being the most effected.

                          Having said that live today, we dont know if theres going to be a tomorrow.
                          And its possible we could get nuked by NKorea too plus the USA is sliding downhill quickly. But I try not to think about that stuff too much because there always seems to be some sort of new doomsday prediction every other day. I spent too much time before my accident obsessing about these things. On the other hand it is good to stay informed, so thank you for your specialist viewpoint. Too be very honest I am very curious what exactly you mean by social infrastructure. Are you referring to things like SSI and government social programs? I took an anthro. class but I definitely dont know as much as I should.
                          T6 complete since 3/21/2012

                          Comment


                            #28
                            Originally posted by KyleP2112 View Post
                            Good words to live by.

                            Hopefully our life spans won't be effected too much. Avoiding pressure wounds & possible infection is huge...though I'd be the first to say sometimes you end up with a wound even though you've been careful. I've had several surgeries to fix wounds. Two people I was at rehab with at Kessler in NJ back in 95, Stephen Mahoney & Christopher Reeve, passed away from pressure wounds & infection. Health can be fragile.
                            What do you mean by wounds regardless of how careful you are, are you referring to pressure sores?

                            And I agree with everyone to enjoy life but at the same time I think it would be very irresponsable of me to also not plan ahead since I might have a long time.
                            T6 complete since 3/21/2012

                            Comment


                              #29
                              Originally posted by TomRL View Post
                              I have been C4 since 1965 age 18. Let me echo some of the advice of others; enjoy life, find something useful to do and only worry about the things you can control.
                              yep stay in today

                              Comment


                                #30
                                Originally posted by havok View Post
                                And its possible we could get nuked by NKorea too plus the USA is sliding downhill quickly. But I try not to think about that stuff too much because there always seems to be some sort of new doomsday prediction every other day. I spent too much time before my accident obsessing about these things. On the other hand it is good to stay informed, so thank you for your specialist viewpoint. Too be very honest I am very curious what exactly you mean by social infrastructure. Are you referring to things like SSI and government social programs? I took an anthro. class but I definitely dont know as much as I should.
                                I agree there is a new doomsday prediction everyday and they never come true and I hope mine is wrong, hope out society keeps chugging along making life better for everyone. However, and yes this is very subjective because I am an SCI, but I am concerned about the health of our society and its ability to meet the needs of the fragile.

                                If our society began to breakdown because of a natural disaster or any other reason trucks were not able to bring food or clean water to the grocery store, the pharmacy was unable to stock new meds for our UTI or the doctors stopped coming to work because there were armed gangs roaming the streets would or needs get met? If that state of political unrest where the poor were not following the laws went on for weeks or months then I would have a hard time surviving. That is what i mean by a break down of our infrastructure.

                                Our polititions and other lawmakers are trying to keep that breakdown from happening by having a strong police force and strong welfare program(ever wonder why the poorest receive the most welfare benefits?) but money is tight and funding for The Red Cross and FEMA has been reduced plus there is becoming a disconnect between the poor and the very rich so if something does happen are gangs going to break into grocery stores for food and meds? Today the poor are following the rules to get their welfare but tomorrow it could be like New Orleans right after Katrina where many of the poorest go off the reservation and dont follow the rules and clean out groceey stores and pharmacies.

                                What can a person do? First thing is dont worry about it much, worry is just trying to make your bad dreams come true. I try and live in the day but I have prepared my future by working at a full time job thus being able to buy property and gear. Now I live somewhat off the grid with my own water and supples and guns outside of town so if society does crash my neighbors and I will do what we can to help everybody get by and wait for structure to return.

                                The main thing I am concerned about it the possibility of a natural disaster that might cause a mini breakdown in our society. There are only 2 roads that lead into this area and not a lot of people so if a tidal wave our earthquake happens it might be sometime before trucks are able to being in supplies like water food and meds.

                                Oh well I am hoping if that does happen it is far off in the future. I try and just live in today and tomorrow will take care of itself, or it wont but I have done what I can.

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