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Quads who are not working - how do you spend your time?

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  • #46
    I agree i love reading all the comments! I as you all know am not a quad but a mid level para at the T 6 area, i spend most days either watching TV or at doctors appts. When i am not there i am usually home with my 3 dogs. And they keep me pretty busy as well especially the puppy. I also read and search the internet and am on facebook way too much. I also cook dinner for the house and do the grocery shopping.
    T6 Incomplete due to a Spinal cord infarction July 2009

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    • #47
      I can't agree with KLD more! I would have to be really sick or dead to not get out of bed. There are not enough hours in a day to do everything I want to or need to do. I know it's tough but you need to push yourself to stay active, body, mind and soul as much as possible. I am up at the crack of dawn, get myself cleaned up, take my meds, get some breakfast, coffee and water then I'm off to the races. If an active life is not for you there are tons of free classes, high school, general knowledge and college courses available to keep your mind busy.

      Here are just a few links of the hundreds available.

      https://www.khanacademy.org/

      http://www.mathplanet.com/home

      http://oyc.yale.edu/courses

      http://ocw.mit.edu/courses/

      https://www.coursera.org/



      Originally posted by SCI-Nurse View Post
      Everybody needs a reason to get out of bed every day (and for significant periods of time) unless there is a medical reason you need to be on bedrest.

      If you are not working or going to school, why not?? Have you looked into volunteering, wheelchair sports, or other activities that can give you a reason to not only get out of bed, but get out of the house every day??

      (KLD)
      ^^(A)^^

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      • #48
        How are you supposed to jump out of bed and enjoy the day when you have unrelenting neuropathic pain? I'm not a quad either but my mobility has been severely limited by age (36 years in the chair) and increased pain. Can any of you speak to how to push through the pain without becoming depressed?

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        • #49
          Originally posted by dragon fly View Post
          How are you supposed to jump out of bed and enjoy the day when you have unrelenting neuropathic pain? I'm not a quad either but my mobility has been severely limited by age (36 years in the chair) and increased pain. Can any of you speak to how to push through the pain without becoming depressed?
          You're 100% correct, there is no way to push thru the pain regardless of level. I can't relate to being a para, but I can relate to being shutdown by pain.

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          • #50
            I am a complete quad 35 years injured and have nerve pain. Don't take any meds for it just keep moving every day and ignore it. Keeping busy helps me forget about it, you could run around the rest of your life trying to find a cure or a fix for what ails you or you can let it go and move on. I have had many set backs along the way but I only have 1 life and I'm going to live it as active as I can. I know this is not an answer for you but not everything can be fixed, deal with it the best you can, live with it the best you can and move on.

            Originally posted by dragon fly View Post
            How are you supposed to jump out of bed and enjoy the day when you have unrelenting neuropathic pain? I'm not a quad either but my mobility has been severely limited by age (36 years in the chair) and increased pain. Can any of you speak to how to push through the pain without becoming depressed?
            ^^(A)^^

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            • #51
              Originally posted by Smashms View Post
              I agree i love reading all the comments! I as you all know am not a quad but a mid level para at the T 6 area, i spend most days either watching TV or at doctors appts. When i am not there i am usually home with my 3 dogs. And they keep me pretty busy as well especially the puppy. I also read and search the internet and am on facebook way too much. I also cook dinner for the house and do the grocery shopping.
              You shouldnt even be answering for these guys, at a t6 para you should be able to do just about anything you want. I do . Why so many doctors appts ? I feel for the quads more than anybody, for those of you that keep busy & find a way to deal with what you do you truly are inspirational !!!!! I go on a special handicapp hunt & there a few quads there that spend alot of time hunting also. Keep up the good attitudes & keep pushin on you guys & gals are some tough cookies

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              • #52
                My husbands not a quad. He has MS that has affected his legs, left arm, vision, and concentration so its very hard to keep him interested or able to do much of anything. He watches TV and listens to the radio. Hits pool balls around on the pool table. We also participate in disabled hunts and enjoy fishing. Winters are worst when its near impossible to get outside. Summer I built raised vegetable beds that he tends to. Also just recently purchased a Carvewright CNC router that hopefully with my help he will be able to pass some time making so nice signs.

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                • #53
                  I would make a pitch for 'The Great Courses' online courses by either DVD or just audio download - you can't go wrong. Only buy ones on sale. They all go on sale eventually through the year. I can attest to the musicology courses by Robert Greenberg.

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                  • #54
                    Originally posted by dragon fly View Post
                    How are you supposed to jump out of bed and enjoy the day when you have unrelenting neuropathic pain? I'm not a quad either but my mobility has been severely limited by age (36 years in the chair) and increased pain. Can any of you speak to how to push through the pain without becoming depressed?
                    If you force yourself to ignore the pain and get out of bed and do stuff that you are interested in, the depression will lessen. The pain/depression cycle is a positive feedback situation, and one feeds on the other. Once you feel less depressed, the pain will not be so bad. If you have anger about your situation or about your depression, that also exacerbates the pain, which makes yo more angry and depressed. Take a look at these 2 you tube talks on what pain is and isn't:

                    Part 1: https://www.youtube.com/watch?v=n4eKFRxW6bc
                    Part 2: https://www.youtube.com/watch?v=yfYAt41zoFw#t=25

                    I spent much of my first 5 years of crippledom trying to lessen my pain, but it just got worse over time. At some point, I realized that it had taken over my life, and decided to learn to live with it. The 2 things that seemed to help were massage and acupuncture, and in both cases I had almost no pain when completely relaxed, and the pain came back as soon as I got off the table. As I was writing this, by upper back felt like all of the muscles were knotted and on fire - I was thinking about the pain. I took 45 seconds, stretched, closed my eyes and relaxed, concentrating on the 4 points the pain radiated from, and it became bearable. I took 10 minutes and played a game of spider solitaire and was able to ignore the pain.

                    It should be obvious that this process does not always work, and that it takes some time to get your mind/body to allow/help the relief happen - this is a place where the power of positive thinking really works. If you are angry and or depressed about your condition, you need to stop thinking about how bad it is, and concentrate on the positive things in your life. The longer you do this, the more positive your life will be. You need to work hard to do this for a couple of months, but then it becomes easier, and - for me - I seldom have to even think about it - it has become mostly second nature.

                    If you "KNOW" this will not work for you it won't. Open your mind to the possibilities...
                    Don - Grad Student Emeritus
                    T3 ASIA A 26 years post injury

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