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Quads who are not working - how do you spend your time?

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    #16
    Originally posted by lynnifer View Post
    offroad - I want a husband like that! THAT sounds TERRIFIC .. save that I always have to have my own thing and have my own money.

    I used to joke that I wanted to be an old lady with blue hair, driving in my barely used Cadillac to my hair appointment before my 'ladies who lunch' appointment while others look on with jealousy (umm, that would be me!) lol

    You have carved out a great life for yourself!
    He is such a blessing! My sister and I have similar "old lady" dream. In addition to our "ladies who lunch" and spa appointments, We plan to rock our retirement community as our husbands sit on our retirement community patio playing poker and shelling out the cash for our old lady hip hop parties. Haha. Everyone knows there is going to be trouble when me and my sister show up. We recently rented a trolly with a bunch of people (and ice chest full of booze) and took a Christmas light tour. That trolly and those poor people will probably never be the same again. It was good practice for our future elderly parties. Hehe!
    DFW TEXAS- T-10 since March 20th, 1994

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      #17
      I'm a para that does not labor, on my career, any longer. I work tirelessly, though, on life. Homeschooling the children, tending the animals and gardens, nurturing relations with the better half, feeding my brain, laundry, dishes, vacuuming, on and on it goes, where it stops, nobody knows!

      Oh, and, posting on CC too often.
      "I have great faith in fools; self-confidence my friends call it." - Edgar Allen Poe

      "If you only know your side of an issue, you know nothing." -John Stuart Mill, On Liberty

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        #18
        Originally posted by Scaper1 View Post
        You must be ten times more self-aware than I am because I'm exactly the same way but never put it together like that. Gah.
        My self-awareness is due to the fact that I have O.C.D. as well, so when my mind does settle onto my condition and or life in general, I obsess upon it until the A.D.D. kicks back in again.

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          #19
          I am damn happy that I am not in a nursing home. This is really the only thing keeping me going. People who know me and the fact that I had spent 30 years working very challenging jobs all over the country causes folks to just shake their heads in sadness.

          Believe me if I could change something I would. Having no family support and people/ past friends who I have helped their entire lives having disapeared since the accident, makes things almost impossible to do. Wasting time playing card games on computer, reading 3 newspapers, TV, buying stuff on ebay and writing letters to the editors is about what I do.

          Unless of course the weather cooperates and then it's busting around the forest, the local ranch and dirt roads that amuses and sometimes endangers me. Fortunately the VA has provided me a couple all terrain power wheelchairs that helps me get myself in trouble. Only been hospitalized once and had the fire department, state police and local folks on ATV's searching for me because of it, SO FAR.
          Last edited by forestranger52; 6 Feb 2013, 7:59 PM.
          C 5/6 Comp.
          No Tri's or hand function.

          Far better it is to try mighty things, to win glorious triumphs, even though checkered by failure. Than to take rank with those poor spirits who neither enjoy much or suffer much, because they live in the grey twilight that knows neither victory or defeat.

          Teddy Roosevelt

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            #20
            Unfair advantage here in Vancouver because the weather is liquid sunshine instead of tons of snow. Sailing three months of the summer. Hikes in the North Shore mountains using a Trailrider in the shoulder seasons. Peer volunteering at the local rehab. Developing web/Facebook content and training curriculum for EASE. Board and committee work for Spinal Cord Injury BC, Vancouver Adapted Music Society, and ConnecTra. Gardening at two community gardens and my roof garden. Meditation and movie night with my new neighbors. Energy work and acupuncture for my newly gimbeled arms. Not enough hours in the day!

            Here is a great education site that might get you interested in taking courses: https://www.khanacademy.org/

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              #21
              We go crazy.

              Originally posted by FirstLast View Post
              Got interested, how do you quads (not working nor schooling) spend your days? How do you keep yourselves from not going crazy?
              That's just it, we don't. We can't keep ourselves from not going crazy. It's a pathetic existence, and near possible to avoid insanity. Medicare/ Medicaid acts as a disincentive for gainful employment, if you could even find an employer capable of seeing past our unconventional appearance enough to actually hire us. Ultimately, whatever we attempt, be it work, or hobby, everything in life requires an AB person standing next to us just to use their hands. Yes we can use our very capable brains, but we need someone else's hands to execute our commands, and what AB person wants to do this?

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                #22
                Yeah, it's pretty tricky to maximize what you can do without working hands. I hate having people hovering around, so I keep my workspace at about 100 degrees and try to do whatever I can myself on the computer. School, a home-run business, goofing off. My Fujitsu scanner has been a god-send, I can scan anything from bills and documents to books and no longer require a clunky page turner or taping sheets of paper everywhere. Ditto with a digital recorder to replace the cassette variety.

                I'm lucky to be inclined toward languages and academics anyway, though I sure miss a more physical life.

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                  #23
                  "I hate having people hovering around, so I keep my workspace at about 100 degrees"

                  Nothing like a "few degrees of separation" Ha, Scaper, I love it. I thought I was the only one to make so uncomfortable for everyone else in order to encourage them to vacate my air space. After five minutes of looking over my should I usually hear,
                  "Sheesh, you keep it so friggin hot in this room, you mind if I step out for some fresh air?"
                  "Eh, not at all." "Just bring me back my hands please"

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                    #24
                    It does serve a dual purpose nicely.

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                      #25
                      All we need is power gloves that open and close our hands. Shame that none have been designed by now. You would think it should not be too difficult now that they make robotic hands act like normal.
                      C 5/6 Comp.
                      No Tri's or hand function.

                      Far better it is to try mighty things, to win glorious triumphs, even though checkered by failure. Than to take rank with those poor spirits who neither enjoy much or suffer much, because they live in the grey twilight that knows neither victory or defeat.

                      Teddy Roosevelt

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                        #26
                        Originally posted by Tim C. View Post
                        That's just it, we don't. We can't keep ourselves from not going crazy. It's a pathetic existence, and near possible to avoid insanity.
                        Hah, well said!
                        Believe me, I do try to be as independent as possible. But keeping your mind together is a whole different subject. After a while I started to believe, that someone is making a bad joke on me. The fact is - in this life you have no but few positive things. Basically they tell you to be happy (and, yes, thankful to mighty God) for being able to breathe, poop and talk. It's insane!
                        (sry if my english sucks, i'm not native-speaker. Just trying to express what's on my mind...)

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                          #27
                          Originally posted by Scaper1 View Post
                          It does serve a dual purpose nicely.
                          I don't mind having my angels hovering around. You need a handsome manservant

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                            #28
                            I'd rather have Tim's monkey, no contest.

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                              #29
                              Originally posted by Scaper1 View Post
                              I'd rather have Tim's monkey, no contest.
                              Dave calls me his helper monkey-in an affectionate way of course....

                              I wish he had experience or interest in computers, but he just doesn't and never will. The only thing I ever saw him read was "Walleye Insider" magazine and HVAC schematics.
                              He just was a very hands on mechanical guy that loved to fish and fix things-and now his hands are a source of pain.
                              Talking books put him to sleep and winters are hard-our street just got plowed out from yesterday's blizzard.
                              So unfortunately that often leaves too much TV.
                              We hope to volunteer at the zoo or VA, and then there is another set back.

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                                #30
                                It's been good to read people's comments about what their days are like. Often this life of not working & being home everyday feels isolating & different than the lives most people lead. At least we're not alone.

                                I can't help feeling like something of a failure since I'm not working. There's such a stigma to not working & being on disability (even though we have good reasons like all the daily difficulties & complications of living with a spinal cord injury) Anyone else feel this way?
                                C4/5 incomplete, 17 years since injury

                                "The trick is in what one emphasizes. We either make ourselves miserable, or we make ourselves happy. The amount of work is the same.” - Carlos Castaneda

                                "We live not alone but chained to a creature of a different kingdom: our body." - Marcel Proust

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