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  • Christopher and Dana Reeve Paralysis Act

    hello all -- what is the status of the bill? Should we start preparing for another national call-in Day?? thoughts on plan of action>??

  • #2
    CDRPA Status

    Chaz, it was great meeting you and your Dad in Union Station! I really enjoyed my conversation with your dad and I know Matt enjoyed swapping stories with you. Hopefully, together we will make a difference!

    I will follow up with Harkin's office tomorrow, and see if I can get an update. I too, was wondering what the status was. I'll let you know what they say.
    "Our lives begin to end the day
    we become silent about things that matter."
    - Martin Luther King Jr

    Comment


    • #3
      Status of the CDRPA is that it has been introduced and read and referred to the appropriate committees. The more co-sponsors we can obtain, the faster it will be acted upon in committee and brought to the floor for a vote.

      I was surprised to learn from my rep that he was unaware it had been introduced in the House in March. And, he was a co-sponsor last time around. Why is this? The war, the war, the war - that and a healthy handful of scandals have distracted lawmakers from domestic issues.

      So, it is our job to bring the CDRPA into focus. I am optimistic my rep will again be a sponsor, but I've work to do.

      Donna and Chaz-so good to talk with you both in DC.

      John
      "Hope is like a road in the country; there was never a road, but when many people walk on it, the road comes into existence." Lin Yutang

      Comment


      • #4
        likewise guys...it's great to finally put faces with our online names. John -- you're right -- the war is just clouding over everything, my father and I have been following up with our reps and senators... but what's next? how we get appropriations for the bill once it passes?

        Comment


        • #5
          Just got word Sen. Tim Johnson has signed on.


          http://thomas.loc.gov/cgi-bin/bdquery/z?d110:s.01183:


          http://thomas.loc.gov/cgi-bin/bdquery/z?d110:h.r.01727:

          Senate H.E.L.P

          COMMITTEE MEMBERS

          Democrats by Rank

          Edward Kennedy (MA)
          Christopher Dodd (CT)
          Tom Harkin (IA)
          Barbara A. Mikulski (MD)
          Jeff Bingaman (NM)
          Patty Murray (WA)
          Jack Reed (RI)
          Hillary Rodham Clinton(NY)
          Barack Obama (IL)
          Bernard Sanders (I) (VT)
          Sherrod Brown (OH)

          Republicans by Rank

          Michael B. Enzi (WY)
          Judd Gregg (NH)
          Lamar Alexander (TN)
          Richard Burr (NC)
          Johnny Isakson (GA)
          Lisa Murkowski (AK)
          Orrin G. Hatch (UT)
          Pat Roberts (KS)
          Wayne Allard (CO)
          Tom Coburn, M.D. (OK)
          -------------------------------

          House Committee on Energy and Commerce

          John D. Dingell (MI), Chairman

          Ratio: 31-26
          Henry A. Waxman, CA
          Joe Barton, TX, Ranking Member
          Edward J. Markey, MA
          Ralph M. Hall, TX
          Rick Boucher, VA
          J. Dennis Hastert, IL
          Edolphus Towns, NY
          Fred Upton, MI
          Frank Pallone, Jr., NJ
          Cliff Stearns, FL
          Bart Gordon, TN
          Nathan Deal, GA
          Bobby L. Rush, IL
          Ed Whitfield, KY
          Anna G. Eshoo, CA
          Barbara Cubin, WY
          Bart Stupak, MI
          John Shimkus, IL
          Eliot L. Engel, NY
          Heather Wilson, NM
          Albert R. Wynn, MD
          John Shadegg, AZ
          Gene Green, TX
          Charles W. "Chip" Pickering, MS
          Diana DeGette, CO,
          Vice Chair Vito Fossella, NY
          Lois Capps, CA
          Steve Buyer, IN
          Mike Doyle, PA
          George Radanovich, CA
          Jane Harman, CA
          Joseph R. Pitts, PA
          Tom Allen, ME
          Mary Bono, CA
          Jan Schakowsky, IL
          Greg Walden, OR
          Hilda L. Solis, CA
          Lee Terry, NE
          Charles A. Gonzalez, TX
          Mike Ferguson, NJ
          Jay Inslee, WA
          Mike Rogers, MI
          Tammy Baldwin, WI
          Sue Myrick, NC
          Mike Ross, AR
          John Sullivan, OK
          Darlene Hooley, OR
          Tim Murphy, PA
          Anthony D. Weiner, NY
          Michael C. Burgess, TX
          Jim Matheson, UT
          Marsha Blackburn, TN
          G. K. Butterfield, NC
          Charlie Melancon, LA
          John Barrow, GA
          Baron P. Hill, IN

          * Membership changes occurred due to the death of the Honorable Charlie Norwood (R-GA) on February 13, 2007.
          Last edited by Leo; 05-18-2007, 03:44 PM.
          http://justadollarplease.org/

          2010 SCINet Clinical Trial Support Squad Member

          "You kids and your cures, why back when I was injured they gave us a wheelchair and that's the way it was and we liked it!" Grumpy Old Man

          .."i used to be able to goof around so much because i knew Superman had my back. now all i've got is his example -- and that's gonna have to be enough."

          Comment


          • #6
            2 new senators

            Sen Schumer, Charles E. [NY] - 5/21/2007
            Sen Menendez, Robert [NJ] - 5/21/2007
            http://justadollarplease.org/

            2010 SCINet Clinical Trial Support Squad Member

            "You kids and your cures, why back when I was injured they gave us a wheelchair and that's the way it was and we liked it!" Grumpy Old Man

            .."i used to be able to goof around so much because i knew Superman had my back. now all i've got is his example -- and that's gonna have to be enough."

            Comment


            • #7
              just did some fixing showing the people on the key committees we have so far.


              COMMITTEE MEMBERS

              Democrats by Rank

              Edward Kennedy (MA) co-sponsor
              Christopher Dodd (CT)
              Tom Harkin (IA)
              Barbara A. Mikulski (MD) co-sponsor
              Jeff Bingaman (NM) co-sponsor
              Patty Murray (WA) co-sponsor
              Jack Reed (RI) co-sponsors
              Hillary Rodham Clinton(NY) co-sponsor
              Barack Obama (IL)
              Bernard Sanders (I) (VT)
              Sherrod Brown (OH) co-sponsor

              Republicans by Rank

              Michael B. Enzi (WY)
              Judd Gregg (NH)
              Lamar Alexander (TN)
              Richard Burr (NC) co-sponsor
              Johnny Isakson (GA)
              Lisa Murkowski (AK)
              Orrin G. Hatch (UT)
              Pat Roberts (KS)
              Wayne Allard (CO)
              Tom Coburn, M.D. (OK)
              -------------------------------

              House Committee on Energy and Commerce

              Ratio: 31-26

              Edward J. Markey, MA co-sponsor

              Rick Boucher, VA

              Frank Pallone, Jr., NJ
              Mike Ferguson, NJ

              Cliff Stearns, FL

              Bart Gordon, TN
              Marsha Blackburn, TN

              Ed Whitfield, KY

              Barbara Cubin, WY

              Heather Wilson, NM

              Albert R. Wynn, MD

              John Shadegg, AZ

              Charles W. "Chip" Pickering, MS

              Diana DeGette, CO, co-sponsor

              Vice Chair Vito Fossella, NY
              Eliot L. Engel, NY

              Steve Buyer, IN
              Baron P. Hill, IN

              Henry A. Waxman, CA cosponsor
              George Radanovich, CA
              Jane Harman, CA
              Mary Bono, CA co-sponsor
              Hilda L. Solis, CA
              Lois Capps, CA
              Anna G. Eshoo, CA co-sponsor

              Mike Doyle, PA
              Joseph R. Pitts, PA
              Tim Murphy, PA

              J. Dennis Hastert, IL
              Bobby L. Rush, IL
              Jan Schakowsky, IL co-sponsor
              John Shimkus, IL

              Tom Allen, ME

              Lee Terry, NE

              Joe Barton, TX, Ranking Member
              Charles A. Gonzalez, TX
              Gene Green, TX co-sponsor
              Michael C. Burgess, TX
              Ralph M. Hall, TX

              Jay Inslee, WA

              Mike Rogers, MI
              Fred Upton, MI
              Bart Stupak, MI
              John D. Dingell (MI), Chairman

              Tammy Baldwin, WI Sponsor

              Sue Myrick, NC
              G. K. Butterfield, NC co-sponsor

              Mike Ross, AR

              John Sullivan, OK

              Darlene Hooley, OR
              Greg Walden, OR

              Edolphus Towns, NY
              Anthony D. Weiner, NY

              Jim Matheson, UT

              Charlie Melancon, LA

              Nathan Deal, GA
              John Barrow, GA
              http://justadollarplease.org/

              2010 SCINet Clinical Trial Support Squad Member

              "You kids and your cures, why back when I was injured they gave us a wheelchair and that's the way it was and we liked it!" Grumpy Old Man

              .."i used to be able to goof around so much because i knew Superman had my back. now all i've got is his example -- and that's gonna have to be enough."

              Comment


              • #8
                Wayne Gilchrist

                Well, the man came thru and the meeting was successful. Also, he was a "missed vote" on stem cells but pledged a yes vote

                Alright, glad he heard us at our visit.
                Every day I wake up is a good one

                Comment


                • #9
                  Met with Obama's office

                  Time for another follow up! Same for Deal and Brownback.
                  Every day I wake up is a good one

                  Comment


                  • #10
                    Leo, John, Cheesecake (mmmmm.... Cheesecake) and everyone else who has help pushed CRPA along thanks for your hard work.

                    Comment


                    • #11
                      hi litespeed,

                      have you heard Dodd's opinion on this

                      my guess is Harkin may just need to be reminded or is in the process

                      thinking consentraiting on the comm. members

                      we need a generic letter thanking these committee co-sponsors and maybe ask them who else would be possible and also urging them to get this out and vote

                      we cannot wait until last minute again

                      imo
                      http://justadollarplease.org/

                      2010 SCINet Clinical Trial Support Squad Member

                      "You kids and your cures, why back when I was injured they gave us a wheelchair and that's the way it was and we liked it!" Grumpy Old Man

                      .."i used to be able to goof around so much because i knew Superman had my back. now all i've got is his example -- and that's gonna have to be enough."

                      Comment


                      • #12
                        here are the co-sponsors from last year that are not yet on this years.

                        some are no longer in office,



                        Sen Corzine, Jon S. [NJ] - 7/20/2005
                        Sen Dodd, Christopher J. [CT] - 10/31/2005
                        Sen Feinstein, Dianne [CA] - 5/3/2006
                        Sen Jeffords, James M. [VT] - 2/7/2006
                        Sen Kerry, John F. [MA] - 4/18/2005
                        Sen Landrieu, Mary L. [LA] - 7/20/2005
                        Sen Lincoln, Blanche L. [AR] - 12/7/2006
                        Sen McCain, John [AZ] - 5/25/2005
                        Sen Santorum, Rick [PA] - 9/20/2006
                        Sen Sarbanes, Paul S. [MD] - 9/20/2005
                        Sen Specter, Arlen [PA] - 4/18/2005
                        Sen Stabenow, Debbie [MI] - 7/11/2005

                        --------------------------------------------

                        Rep Allen, Thomas H. [ME-1] - 11/16/2005
                        Rep Andrews, Robert E. [NJ-1] - 4/14/2005
                        Rep Bass, Charles F. [NH-2] - 6/19/2006
                        Rep Berman, Howard L. [CA-28] - 9/25/2006
                        Rep Boehlert, Sherwood [NY-24] - 9/6/2006
                        Rep Bradley, Jeb [NH-1] - 4/19/2005
                        Rep Brown, Sherrod [OH-13] - 4/12/2005
                        Rep Brown-Waite, Ginny [FL-5] - 7/12/2005
                        Rep Case, Ed [HI-2] - 4/12/2005
                        Rep Costello, Jerry F. [IL-12] - 4/26/2005
                        Rep Dingell, John D. [MI-15] - 7/28/2006
                        Rep Doggett, Lloyd [TX-25] - 5/26/2005
                        Rep Engel, Eliot L. [NY-17] - 4/6/2006
                        Rep Fossella, Vito [NY-13] - 4/12/2005
                        Rep Goode, Virgil H., Jr. [VA-5] - 5/11/2006
                        Rep Hall, Ralph M. [TX-4] - 2/8/2006
                        Rep Harman, Jane [CA-36] - 9/29/2006
                        Rep Herseth, Stephanie [SD] - 6/13/2005
                        Rep Hinchey, Maurice D. [NY-22] - 4/12/2005
                        Rep Holt, Rush D. [NJ-12] - 4/26/2005
                        Rep Honda, Michael M. [CA-15] - 3/29/2006
                        Rep Inslee, Jay [WA-1] - 9/6/2005
                        Rep Jenkins, William L. [TN-1] - 9/6/2006
                        Rep Jindal, Bobby [LA-1] - 7/20/2006
                        Rep Kaptur, Marcy [OH-9] - 4/26/2005
                        Rep Kelly, Sue W. [NY-19] - 5/16/2005
                        Rep Kildee, Dale E. [MI-5] - 4/26/2005
                        Rep Kline, John [MN-2] - 9/21/2005
                        Rep Lantos, Tom [CA-12] - 9/25/2006
                        Rep Lee, Barbara [CA-9] - 4/12/2005
                        Rep Lewis, John [GA-5] - 9/12/2006
                        Rep Lofgren, Zoe [CA-16] - 4/28/2005
                        Rep Lowey, Nita M. [NY-18] - 9/29/2006
                        Rep Lucas, Frank D. [OK-3] - 9/6/2005
                        Rep Lynch, Stephen F. [MA-9] - 10/25/2005
                        Rep Maloney, Carolyn B. [NY-14] - 5/2/2006
                        Rep Manzullo, Donald A. [IL-16] - 9/6/2005
                        Rep Marshall, Jim [GA-3] - 9/12/2006
                        Rep McDermott, Jim [WA-7] - 4/14/2005
                        Rep Michaud, Michael H. [ME-2] - 7/13/2005
                        Rep Miller, Brad [NC-13] - 9/7/2005
                        Rep Miller, Candice S. [MI-10] - 5/3/2005
                        Rep Moore, Dennis [KS-3] - 7/12/2005
                        Rep Napolitano, Grace F. [CA-38] - 6/26/2006
                        Rep Neal, Richard E. [MA-2] - 4/25/2006
                        Rep Olver, John W. [MA-1] - 5/18/2005
                        Rep Owens, Major R. [NY-11] - 9/6/2006
                        Rep Pallone, Frank, Jr. [NJ-6] - 9/19/2006
                        Rep Price, David E. [NC-4] - 4/20/2005
                        Rep Reyes, Silvestre [TX-16] - 10/6/2005
                        Rep Sanchez, Linda T. [CA-39] - 7/27/2005
                        Rep Saxton, Jim [NJ-3] - 6/9/2005
                        Rep Sessions, Pete [TX-32] - 5/23/2005
                        Rep Shaw, E. Clay, Jr. [FL-22] - 11/18/2005
                        Rep Simmons, Rob [CT-2] - 9/28/2005
                        Rep Smith, Adam [WA-9] - 4/12/2005
                        Rep Strickland, Ted [OH-6] - 11/16/2005
                        Rep Towns, Edolphus [NY-10] - 4/12/2005
                        Rep Van Hollen, Chris [MD-8] - 5/3/2006
                        Rep Visclosky, Peter J. [IN-1] - 4/26/2006
                        Rep Walden, Greg [OR-2] - 4/13/2005
                        Rep Wolf, Frank R. [VA-10] - 5/11/2006
                        Rep Wynn, Albert Russell [MD-4] - 9/14/2006
                        Rep Young, C.W. Bill [FL-10] - 4/19/2005
                        Last edited by Leo; 05-24-2007, 07:03 PM.
                        http://justadollarplease.org/

                        2010 SCINet Clinical Trial Support Squad Member

                        "You kids and your cures, why back when I was injured they gave us a wheelchair and that's the way it was and we liked it!" Grumpy Old Man

                        .."i used to be able to goof around so much because i knew Superman had my back. now all i've got is his example -- and that's gonna have to be enough."

                        Comment


                        • #13
                          Thx, Leo--Sen. Mark Dayton is no longer in office. I am working on his predecessor, Sen. Amy Klobuchar.
                          Please submit your photo and story of hope:

                          http://bridges2hope.unite2fightparalysis.org/


                          http://unite2fightparalysis.org/

                          Comment


                          • #14
                            bump, mods can we maybe have this as a sticky
                            http://justadollarplease.org/

                            2010 SCINet Clinical Trial Support Squad Member

                            "You kids and your cures, why back when I was injured they gave us a wheelchair and that's the way it was and we liked it!" Grumpy Old Man

                            .."i used to be able to goof around so much because i knew Superman had my back. now all i've got is his example -- and that's gonna have to be enough."

                            Comment


                            • #15
                              Co-sponsors-Latest Update

                              Excellent progress, here is the latest co-sponsor lists:

                              House Co-Sponsors of the Christopher and Dana Reeve Paralysis Act (H.R.1727)
                              40 Co-Sponsors


                              Representative Tammy Baldwin (D-WI) Representative Gus Bilirakis (R-FL)
                              Representative Mary Bono (R-CA) Representative G.K. Butterfield (D-NC)
                              Representative Michael Capuano (D-MA) Representative Diana DeGette (D-CO)
                              Representative William Delahunt (D-MA) Representative Charles Dent (R-PA)
                              Representative Jo Ann Emerson (R-MO) Representative Anna Eshoo (D-CA)
                              Representative Barney Frank (D-MA) Representative Wayne Gilchrest (R-MD)
                              Representative Gene Green (D-TX) Representative Raul Grijalva (D-MD)
                              Representative Tim Holden (D-PA) Representative Michael Honda (D-CA)
                              Representative Patrick Kennedy (D-RI) Representative Nick Lampson (D-TX)
                              Representative Jim Langevin (D-RI) Representative Edward Markey (D-MA)
                              Representative James McGovern (D-MA) Representative John McHugh (R-NY)
                              Representative Michael McNulty (D-NY) Representative Martin Meehan (D-MA)
                              Representative James Moran (D-VA) Representative Donald Payne (D-NJ)
                              Representative Jim Ramstad (R-MN) Representative Charles Rangel (D-NY)
                              Representative Janice Schakowsky (D-IL) Representative Pete Fortney Stark (D-CA)
                              Representative Betty Sutton (D-OH) Representative Lee Terry (R-NE)
                              Representative John Tierney (D-MA) Representative Greg Walden (R-OR)
                              Representative Timothy Walz (D-MN) Representative Henry Waxman (D-CA)
                              Representative Peter Welch (D-VT) Representative Robert Wexler (D-FL)
                              Representative Albert Russell Wynn (D-MD) Representative John Yarmuth (D-KY)

                              Senate Co-Sponsors of the Christopher & Dana Reeve Paralysis Act, S. 1183
                              24 Co-Sponsors

                              Senator Jeff Bingaman (D-NM) Senator Barbara Boxer (D-CA)
                              Senator Sherrod Brown (D-OH) Senator Richard Burr (R-NC)
                              Senator Hillary Clinton (D-NY) Senator Thad Cochran (R-MS)
                              Senator Norm Coleman (R-MN) Senator Richard Durbin (D-IL)
                              Senator Lindsey Graham (R-SC) Senator Tom Harkin (D-IA)
                              Senator Daniel Inouye (D-HI) Senator Tim Johnson (D-SD)
                              Senator Edward Kennedy (D-MA) Senator John F. Kerry (D-MA)
                              Senator Frank Lautenberg (D-NJ) Senator Patrick Leahy (D-VT)
                              Senator Carl Levin (D-MI) Senator Robert Menendez (D-NJ)
                              Senator Barbara Mikulski (D-MD) Senator Patty Murray (D-WA)
                              Senator Jack Reed (D-RI) Senator Charles Schumer (D-NY)
                              Senator Gordon Smith (R-OR) Senator Sheldon Whitehouse (D-RI)
                              Please submit your photo and story of hope:

                              http://bridges2hope.unite2fightparalysis.org/


                              http://unite2fightparalysis.org/

                              Comment

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