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When in DC: Save the Babies by advocating ESCR to your Legislators

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    When in DC: Save the Babies by advocating ESCR to your Legislators

    Don't be complicit in the unneccessay deaths of paralyzed babies.

    Kerr can save the SMA babies with ESC's

    All he needs is 10 good ESC lines. Read the article:
    http://biology.plosjournals.org/perl...l.pbio.0050032

    You will be complicit in the unnecessary deaths of these babies if you remain silent about ESCR to the anti-ESCR legislators.

    You will be enabling these unnecessary deaths by not fighting for ESCR when you are face to face with them!!!

    #2
    Offensive

    I find this post telling people that they will be
    Faye:You will be complicit in the unnecessary deaths of these babies if you remain silent about ESCR to the anti-ESCR legislators.

    You will be enabling these unnecessary deaths by not fighting for ESCR when you are face to face with them!!!
    How much more offensive can you get Faye? How do you like it when others say you are Killing Babies?

    You just lost me with your mud slinging, in your face negative tactics.

    And please, don't even pretend to "know" what and how I advocate.
    Every day I wake up is a good one

    Comment


      #3
      Cheese, you and I both know that when the anti-ESCR crowd calls pro-ESCR people baby killers, they are talking about symbolic babies.

      But when Pro-ESCR people do not speak up to anti-ESCR legislators they definitely are complicit in the early demise and deaths of REAL sma babies, especially knowing how close one scientists is to having an ESC curative treatment ready.

      AND you are right it IS pretty offensive to not work to save these sma babies, when the technology itself can even be used to cure SCI.

      It is enabling the anti-ESCR legislators to stay with their anti-ESCR position.......

      "wheelers came through my office and they didn't even ask for more federal funding of ESCR"

      "So I guess it's not that important to them after all...."
      Last edited by Faye; 1 Mar 2007, 12:07 PM.

      Comment


        #4
        imagine telling them that you wouldn't do everything in your power to save them......

        America today is full of blind men and Lazaruses, millions of whom stand to benefit from stem-cell research. Let me paint these people as characters in modern-day parables.

        After a tragic car accident, Stephen is paralyzed from the neck down, unable to move any muscle in his body except for his face, eyes and mouth. He gasps out his words, since the ventilator on which he depends only gives him 14 breaths per minute.

        Debbie has just been diagnosed with adult diabetes. During college, Debbie struggled through the untimely death of her father, who also had diabetes. Now she wonders if she, too, will die at the age of 50, never able to know her grandchildren.

        Susan is in her final months of a five-year battle with Lou Gehrig's disease. Except it hasn't been a battle. Facing a degenerative disease with no cure, Susan knew from the minute she received her diagnosis that she had no hope. She lost movement first in her legs, then in her arms. Now, Susan cannot speak. She will die soon.

        Each new day with Parkinson's disease stiffens Peter's body. His hands tremble, his muscles twitch and his legs lock, so he can no longer toss a football with his grandson. He can barely claw his way out of bed in the morning.

        Stephen, Debbie, Susan and Peter, along with cancer patients, multiple sclerosis patients and others, are the blind men and women and the Lazaruses of today. In stem-cell research, we have a tool to heal these people. And yet we risk turning our backs on them.
        I think that all of us -- ordinary Americans, legislators and you, Mr. President -- might learn from a simple exercise: Read the stories above but replace Stephen, Debbie, Susan and Peter with the names of the four people in your life that you most love. And then imagine telling those people that you wouldn't do everything in your power to save them.
        http://www.post-gazette.com/pg/07035/759002-109.stm

        Comment


          #5
          I also found this offensive. I think theer are other, better ways to frame your argument. If you must fall back on the old killing babys scenarios, you have allready lost the argument. I know you are a mom and you want the best for your child. So do I but alienating the rest of the world from your position because of the way you frame your argument is not helpful.

          Comment


            #6
            I will be complicit in keeping us all in these chairs if I try to fight for ESC research when I meet with Senator Tom Coburn, unfortunately. I don't think that makes me complicit in the death of SMA babies. He may be, but apparently that is okay with him.

            Same old thing, year after year. Everybody should always advocate as they believe to be best.
            Blog:
            Does This Wheelchair Make My Ass Look Fat?

            Comment


              #7
              Offensive As Can Be

              This is vile. RUDE.

              On top of that suspiciously seasonal.
              1FineSpineRN

              Comment


                #8
                Originally posted by Duramater
                This is vile. RUDE.

                On top of that suspiciously seasonal.
                It is vile and rude NOT to advocate for ESCR, and giving the impression that it's alright with you that they oppose ESCR.

                Certainly is seasonal, with the Stem Cell Research Enhancement Act up for a vote in the Senate next week.

                Comment


                  #9
                  That is funny Faye, that you would think that me seeing YOUR choice of posting tactics as vile and rude, would somehow give ANYONE of any importance in my world the impression that I do not advocate for stem cell research. Not only do my legislators know what I request of them, locally and further on up, but so do my employers and employees. My family is aware and so are most of my friends, even the ones that think I am a baby killer.

                  Don't think I am going to like you calling me one too because I am supportive of others developing their ability to speak up for themselves no matter what they choose to believe. I am still proud to be an American who embraces freedom of speech and the right to believe in whatever one chooses to believe.

                  I am going to be in DC in APRIL for the W2W Rally supporting the participants. It is their time to shine in the way THEY deem fit for themselves. SCREA has nothing to do with that.
                  1FineSpineRN

                  Comment


                    #10
                    Save the babies! Free the stem cells! Cure SCI/D.
                    Daniel

                    Comment


                      #11
                      Originally posted by Faye
                      It is vile and rude NOT to advocate for ESCR, and giving the impression that it's alright with you that they oppose ESCR.
                      no one [here] is opposing escr advocacy faye. if you believe this is the case, please point out specifically where.

                      so a different bill than the screa was advocated for. it had its merits and would've helped everyone, including your kid.

                      btw, escr was discussed in the midst of crpa discussion as well... at least w/ my legislators... and i know i wasn't the only one.

                      Comment


                        #12
                        Also, so I won't be construed as a "Faye basher" although some people think she has it coming, I do look at CPN site and find some of it well written and useful to me. Oddly the tactics seem more legitimate there. It is this agenda I do not enjoy one bit.
                        1FineSpineRN

                        Comment


                          #13
                          Faye, I try to stay away, from getting involved in threads like this, but unfortunately I compelled to speak up. First, I want to applaud you for your passion, dedication, and the time you spend on pushing the cure forward. I am just as frustrated as you are, with the pace at which this country is moving in.

                          I need to make a suggestion though, about the different means available for going about change while advocating. The focus needs to be directly addressed at the goal in mind, which you are fighting for. Unfortunately, I have to strongly disagree with the "Save the Babies" strategy. I believe it is a distracting tangent that takes away from your overall goal and message. Yes, it grabs people's attention and it pulls people in but that's not the overall goal. The overall goal is to effectively grab people's attention and to make a statement that is powerful yet productive and at the same time promoting change.

                          I wish there were tens of thousands of more people like you with that sparky energy and fire within towards the cure. But unfortunately, that's not the case. Because our numbers are small, it is important that we join together strategically. And direct our full energy in a productive manner, together.
                          Josh Basile

                          www.determined2heal.org

                          "Hope is the drug that keeps me steady"

                          Comment


                            #14
                            SMA is so close to cure... Our kids live on borrowed time.. My son wasnt expected to turn 2, he is 3 now, but dont know how many more days/months he can hold strong.. It is hard to watch him lose every movement in his body and get frustrated that he cant even move his finger sometimes to hold a piece of paper which has an Elmo or Nemo picture.. All he can do is watch tv and listen to stories all day and at night be hooked to a breathing machine and sleep. He cant eat, he needs to be fed by a g tube..he cant move any part of his body without help other than his eyes, his speech is going away,... I know we are so close to a cure and I dont know how many more SMA babies we need to lose before the cure becomes a reality and I wonder if my son would be able to hold on till then...Our babies do need to be saved
                            Last edited by KBK; 2 Mar 2007, 12:43 AM.

                            Comment


                              #15
                              Originally posted by determined2heal
                              Because our numbers are small, it is important that we join together strategically. And direct our full energy in a productive manner, together.
                              The small socially conservative (read: Religious Right) are able to make a huge impact. We might have small numbers, but through grassroots efforts, we too can make a huge impact.
                              Daniel

                              Comment

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