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Spinal Cord Injury Advocacy, Resource, and Information Sites

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  • Spinal Cord Injury Advocacy, Resource, and Information Sites

    There are hundreds of excellent spinal cord injury advocacy and information web sites. I obviously cannot review all of them but I thought that I might start the topic and other people add their favorite sites:

    http://www.spinal-research.org/
    Based in Surrey, England. This well-kept and up-to-date site report many events that have raised money or awareness of spinal cord injury research, particularly in England.

    http://fscip.org/
    The Foundation for Spinal Cord Injury Preventation, Care, and Cure. It gives many useful links to information sites.

    http://www.centerforscirecovery.org/
    This is the web site of the Rehabilitation Institute of Michigan (RIM). It includes a video of a lecture by Stephen Davies.

    http://www.neurosurgerytoday.org/wha...t_e/spinal.asp
    This is a site put up by the American Association of Neurological Surgeons. It contains a succinct summary of many of the statistics and other information about spinal cord injury, including complications.

    http://www.campaignforcure.org/
    The International Campaign for Cures of spinal cord injury Paralysis (ICCP) that represents a consortium of spinal cord injury advocacy and fundraising organizations, including Christopher Reeve Foundation**, French Institute for Spinal Cord Research (Institute Pour la Recherche sur la Moelle Epinièrè)
    Japan Spinal Cord Foundation, The Miami Project to Cure Paralysis**
    Paralyzed Veterans of America**, Rick Hansen Man in Motion Foundation**
    Spinal Cure Australia (formerly known as Australasian Spinal Research Trust**), Spinal Treatment Australia, Spinal Research (International Spinal Research Trust)**, and Wings for Life. (** indicates founding member).

    http://www.spinalcord.org/
    The National Spinal Cord Injury Association (NSCIA) holds a summit meeting every year and also the SCI Hall of Fame.

    http://calder.med.miami.edu/pointis/index.html
    This is the PoinTIS web site developed by the Miami Project to Cure Paralysis. They provide a searchable handbook and manual of spinal cord injury and brain injury care and rehabilitation.

    http://www.sci-info-pages.com/
    This site gives a great deal of information about spinal cord injury, clinical trials, and other resources.

    http://www.christopherreeve.org/site....CC03/Home.htm
    The Christopher Reeve Foundation. Come here to find out about the latest activities of this foundation.

    http://www.spinalcord.uab.edu/show.a...1&return=22508
    Spinal Cord Injury Information Network. This is the University of Alabama webs ite that contains a wealth of information about spinal cord injury, the official site of the Model SCI Systems, all the materials for that group and much more.

    http://www.missouricures.com/rel_050106.php
    The Missouri Coalition for Lifesaving Cure is a stem cell advocacy site but it contains much information and an example of a well-run advocacy site. Of course, it is supported by and supports spinal cord injury research.

    http://www.makoa.org/index.htm
    disABILITY Information and Resources. This is one of the oldest sites that provide information about disability products, maintained by James Lubin who is a C2 ventilator dependent quadriplegic who types by sip and puff. Jim is a web designer who has created many other useful sites (see http://www.makoa.org/jlubin/closeup.htm for list)

    http://www.naric.com/
    National Rehabilitation Information Network (NARIC). Funded by NIDRR, NARIC is the ultimate resource center for people with disabilities. It is a little dated but nonetheless useful.

    http://www.americanrhetoric.com/spee...eve1996dnc.htm
    This is the text of one of Christopher Reeve's first major speeches after he was injured, to the 1996 Democratic National Convention.

    Wise.
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