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Spinal Cord Injury Advocacy, Resource, and Information Sites

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  • Spinal Cord Injury Advocacy, Resource, and Information Sites

    There are hundreds of excellent spinal cord injury advocacy and information web sites. I obviously cannot review all of them but I thought that I might start the topic and other people add their favorite sites:
    Based in Surrey, England. This well-kept and up-to-date site report many events that have raised money or awareness of spinal cord injury research, particularly in England.
    The Foundation for Spinal Cord Injury Preventation, Care, and Cure. It gives many useful links to information sites.
    This is the web site of the Rehabilitation Institute of Michigan (RIM). It includes a video of a lecture by Stephen Davies.
    This is a site put up by the American Association of Neurological Surgeons. It contains a succinct summary of many of the statistics and other information about spinal cord injury, including complications.
    The International Campaign for Cures of spinal cord injury Paralysis (ICCP) that represents a consortium of spinal cord injury advocacy and fundraising organizations, including Christopher Reeve Foundation**, French Institute for Spinal Cord Research (Institute Pour la Recherche sur la Moelle Epinièrè)
    Japan Spinal Cord Foundation, The Miami Project to Cure Paralysis**
    Paralyzed Veterans of America**, Rick Hansen Man in Motion Foundation**
    Spinal Cure Australia (formerly known as Australasian Spinal Research Trust**), Spinal Treatment Australia, Spinal Research (International Spinal Research Trust)**, and Wings for Life. (** indicates founding member).
    The National Spinal Cord Injury Association (NSCIA) holds a summit meeting every year and also the SCI Hall of Fame.
    This is the PoinTIS web site developed by the Miami Project to Cure Paralysis. They provide a searchable handbook and manual of spinal cord injury and brain injury care and rehabilitation.
    This site gives a great deal of information about spinal cord injury, clinical trials, and other resources.
    The Christopher Reeve Foundation. Come here to find out about the latest activities of this foundation.
    Spinal Cord Injury Information Network. This is the University of Alabama webs ite that contains a wealth of information about spinal cord injury, the official site of the Model SCI Systems, all the materials for that group and much more.
    The Missouri Coalition for Lifesaving Cure is a stem cell advocacy site but it contains much information and an example of a well-run advocacy site. Of course, it is supported by and supports spinal cord injury research.
    disABILITY Information and Resources. This is one of the oldest sites that provide information about disability products, maintained by James Lubin who is a C2 ventilator dependent quadriplegic who types by sip and puff. Jim is a web designer who has created many other useful sites (see for list)
    National Rehabilitation Information Network (NARIC). Funded by NIDRR, NARIC is the ultimate resource center for people with disabilities. It is a little dated but nonetheless useful.
    This is the text of one of Christopher Reeve's first major speeches after he was injured, to the 1996 Democratic National Convention.