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Conceivable Scripts for Legislator Visits

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    Conceivable Scripts for Legislator Visits

    Though I am well aware that the CRF will provide their preferred scripts at legislator visits, Dr. Young's brainstorming on how to handle a conversation with some legislators, both ESCR opponents and proponents, got me thinking how other groups might be handling similar situations.

    As we all know they usually have a mini-menu of:
    1. The Stem Cell Research Enhancement act
    2. Their medical condition specific research funding
    3. Their medical condition quality of Life measure

    For SCI 2. and 3. are covered by CRPA.

    Given an etremely changed political landscape with many republicans wanting to distance themselves from GWB, this is a very opportune time to ask our legislators to support the SCREA.

    With an ESCR opponent, a possible scenario could be:

    As you know the majority of americans support federal funding for embryonic stem cell research and we do too. Though the SCREA is unfunded it will still be an important measure to scientists and patients alike in that it will be easier for those scientists to secure private funding.

    We are aware that you have expressed reservations about supporting the Stem Cell Research Enhancement Act, so maybe you can still help us by becoming a co-sponsor of the CRPA..........( explain what the CRPA is about).

    This way you've clarified that you are yourself a supporter of the Stem Cell Research Enhancement Act, AND you've given them an opportunity to help you in a different way.

    In essence you are killing two birds with one stone:

    1. You are letting them know the the majority in the SCI community favors the SCREA

    2. You are inviting/embarrassing them into supporting you on a different piece of legislation that supports SCI research: the CRPA

    #2
    Faye, I suggest that this be done on an individual legislator basis. Wise.

    Comment


      #3
      Well, that would mean over 500 different scenarios.

      I think we can simplify it down to maybe five different options.

      1. Democrat - Pro-SCREA, will likely be pro-CRPA

      2. Democrat - Anti-SCREA, for religious or political reasons will likely be pro-CRPA

      3. Republican - Pro-SCREA, will likely be pro-CRPA

      4. Republican - Anti-SCREA for political reasons, will likely be pro-CRPA

      5. Republican - Anti-SCREA for religious reasons, may be anti-CRPA because it is associated with Christopher Reeve's pro=ESCR advocacy.


      Avoiding talk about the Stem Cell Research Enhancement Act for 1. through 4., makes absolutely no sense.

      Even with 5., if presented sensitively, the Stem Cell Research Enhancement Act can be brought up by simply stating:

      Like most representatives of Patient Groups, we are in favor of the Stem Cell Research Emhancement Act.
      Though we already know you are not supportive of the Stem Cell Research Enhancement Act, you can really help us by co-sponsoring the CRPA...........and then spend time explaining the CRPA.

      Most of the time we will be meeting with an Aide and it really is VERY unnecessary to avoid the Stem Cell Research Enhancement Act.

      For example my representative John Mica's aide Mike Cosio, is very supportive of ESCR using cells that will be discarded anyway at the IVF clinics.

      Comment


        #4
        Originally posted by Faye
        In essence you are killing two birds with one stone:

        1. You are letting them know the the majority in the SCI community favors the SCREA

        2. You are inviting/embarrassing them into supporting you on a different piece of legislation that supports SCI research: the CRPA
        I agree that this is a reasonable thought process Faye, but there's nothing to back up the statement that the majority favors the SCREA. When looking at the numbers of how many people live with SCI, where's the data demonstrating majority support?

        On another note, I'd be careful about stepping into a position w/ this event that isn't yours to take.

        Comment


          #5
          Faye, may I suggest that you start by focussing on the 22 representatives and senators from your own state? Details are important.

          Wise.

          Comment


            #6
            Faye~
            You totally missed my representative, Pro ESC but anti-CRPA because he does not support disease/group specific policy.

            Please let each of us figure out the best approach for those who represent us in our home districts. They do have to answer to us and our wishes.
            Every day I wake up is a good one

            Comment


              #7
              Originally posted by cheesecake
              Faye~
              You totally missed my representative, Pro ESC but anti-CRPA because he does not support disease/group specific policy.

              Please let each of us figure out the best approach for those who represent us in our home districts. They do have to answer to us and our wishes.
              Thank you for pointing out a sixth option.

              Many won't really know their representative's position ahead of time, but how you talk about the CRPA probably won't vary by legislator.

              Yet how you talk about the Stem Cell Research Enhancement Act probably will vary.

              Only in the case of situation 5. sensitivity and brevity will be important, so as not to compromise their possible support for the CRPA.

              Comment


                #8
                Many won't really know their representative's position ahead of time, but how you talk about the CRPA probably won't vary by legislator.
                I beg to differ Faye, many if not all who are making the journey, have written, callled and talked to their Senators and Congressmen before.

                In all cases, keeping it brief, to the point and the issues focused is important. Let them know what your passion is, what you are looking for, but most importantly how it impacts you, your life and your family.

                Act as if your life depends on it! It does......
                Every day I wake up is a good one

                Comment


                  #9
                  Originally posted by cheesecake
                  I beg to differ Faye, many if not all who are making the journey, have written, callled and talked to their Senators and Congressmen before.

                  In all cases, keeping it brief, to the point and the issues focused is important. Let them know what your passion is, what you are looking for, but most importantly how it impacts you, your life and your family.

                  Act as if your life depends on it! It does......
                  Dear cheesecake, you may write, call and talk to your legislators all you want, if they are undecided, you may not know why..........

                  Many will keep telling you they'll look into it.........., just string you along.

                  Dr. Young, forget about redirecting me to "my" 22 legislators in FL. Last year when I called Billirakis, I was told I shouldn't have, even though he is one of my FL representatives.

                  Somehow I must have been clairvoyant according to one of your moderators, because I called just as Dana Reeve walked into his office..............., a real boo boo on my part.
                  Last edited by Faye; 17 Apr 2006, 10:35 AM.

                  Comment


                    #10
                    I differ with your assessment of the issue last year Faye. If you had been on top of things last year, you would have already known that Billarikis was a CRPA sponsor and was anti-ESC.

                    You almost cost the CRPA a bi-partisan sponsor. Having been on last years committee, you should have known he sponsored the CRPA. I believe you called regarding Stem Cell issues? even though you had a face to face appt?

                    Don't play innocent. This is one case that being a non-team player almost had devestating consequences!

                    Guess this year you don't have to worry about calling when Dana is in the office
                    Every day I wake up is a good one

                    Comment


                      #11
                      Originally posted by cheesecake
                      I differ with your assessment of the issue last year Faye. If you had been on top of things last year, you would have already known that Billarikis was a CRPA sponsor and was anti-ESC.

                      You almost cost the CRPA a bi-partisan sponsor. Having been on last years committee, you should have known he sponsored the CRPA. I believe you called regarding Stem Cell issues? even though you had a face to face appt?

                      Don't play innocent. This is one case that being a non-team player almost had devestating consequences!

                      Guess this year you don't have to worry about calling when Dana is in the office
                      Oh my God, you are making some major assumptions.

                      I never called about ESCR, just to invite him to speak at the Cure Paralysis No Spring Into Action Rally. Remember I was the one who invited the speakers to the rally last year?!?!?!

                      Nice try!

                      You are giving me far too much power.

                      Comment


                        #12
                        edited, reply not worth the effort to type.
                        Last edited by cheesecake; 17 Apr 2006, 10:50 AM.
                        Every day I wake up is a good one

                        Comment


                          #13
                          Huh. I thought Faye made that phone call to get the list of CRPA co-sponsors from Bilarakis' office, because Bruce Downey wanted her to.

                          Oh well, doesn't matter now.
                          Blog:
                          Does This Wheelchair Make My Ass Look Fat?

                          Comment


                            #14
                            Originally posted by Faye

                            Dr. Young, forget about redirecting me to "my" 22 legislators in FL. Last year when I called Billirakis, I was told I shouldn't have, even though he is one of my FL representatives.

                            Somehow I must have been clairvoyant according to one of your moderators, because I called just as Dana Reeve walked into his office..............., a real boo boo on my part.
                            Faye, will you read what I have written, please? Have you looked into the positions of your senators and representatives? A lot of groundwork needs to be done.

                            Please, it is not true that you cannot find out their positions. For example, over 430 representatives voted on both SCREA and the Weldon bill in the last two years. You can look up their votes and sponsorship of each of the bills, including the so-called "Respect for Life..." bill sponsored by Bartlett. Every senator and most representatives have a list of their votes and positions on their web site. Wikipedia has detailed descriptions of their positions and votes. You can look up their speeches. If you really can't find out, which would be very rare, a phone call often can get the information. If the person truly doesn't have a position, that is important to know.

                            I have done so for all the people that I intend to visit. Have you?

                            Wise.

                            Comment


                              #15
                              Dr. Young, I haven't decided I will travel to Washington this year. I might just use the money I would have spent to make a donation to Dr. McDonald's NTT project.

                              Also I need to save up for the Empowering the Pro-Cures Coalition Summit, which is taking place at Stanford University, June 9-11.

                              http://www.genpol.org/summit.htm


                              I have been quite involved in politics and know how to look up votes and co-sponsorships on Thomas, so don't worry about me..........., my long time accomplishments in advocacy speak for themself.

                              Comment

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