Announcement

Collapse
No announcement yet.

Working 2 Walk 2010 - Phoenix

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

    #61
    I'm looking forward to these few days together.

    On an aside note, why is this very important SCI event not also sponsored by the Christopher Dana Reeve Foundation? To me it seems like Unite 2 Fight/W2W is a hugely significant event on the SCI/SCI research calendar, and as CDRF has undoubtedly the broadest public profile anywhere for a SCI group it is strange that they don't support this. I don't see them listed as sponsor and I don't see them listed on the programme, so am presuming that they are not involved. Is this correct?

    Comment


      #62
      I think CDRF is more concerned with feel good stories and independent living stuff these days. Check out their facebook pages.

      Comment


        #63
        Originally posted by Leif View Post
        I think CDRF is more concerned with feel good stories and independent living stuff these days. Check out their facebook pages.
        Exactly my observation too, which is why I asked. They still fund research projects but any of that effort seems to be hidden behind all the anecdotal stuff.

        Comment


          #64
          Thanks for your kind words Barbara. I appreciated reading what you wrote.

          We've enjoyed the support of the CDRF and participation in the past and look forward to working with them in the future. Our focus is bringing the SCI community into activism and advocacy on our own behalf; we believe it complements very nicely the work of CDRF. We do like to mix up our agenda with new offerings from year to year so it has variety and timely research presentations.

          I’m excited about our schedule this year and the remarkable advocates from all over the globe who are attending. Substantial contributions towards a cure have been made as a result of the efforts of many who are attending W2W this year. We hope their contributions inspire many more to join their efforts and help advance curative therapies. Recovery can’t come fast enough for those who have a personal connection to paralysis!
          "Our lives begin to end the day
          we become silent about things that matter."
          - Martin Luther King Jr

          Comment


            #65
            Join us in our efforts to advance a cure!

            We're getting close to W2W! All the speakers have been confirmed and people are joining us from many parts of this country and four other countries. Kudos to everyone who invests their time, energies and financial resources to show their support for research and make a commitment to work towards advancing it.

            We've provided meeting space, leading researchers presenting current research strategies, superstar advocates sharing their experiences and successes, wellness presentations, great food, awesome conversation and hopefully some warm Arizona sunshine. The movement to advance promising therapies is calling YOU! It's not enough to talk about what others are doing to find a cure. Every person in this community has an opportunity to contribute in their own way.

            Other communities have had an impact on advancing therapies to treat diseases and conditions and I think it's possible for us to increase our impact and move this research forward quicker. Are you part of the solution? Or, are you part the problem? We share a common goal, but we definitely need more people working towards it. Commit to helping and join us at Working 2 Walk.


            Presentations include –

            From Here to Tomorrow: Individuals as a United Voice of Change
            - Mark Smith, Author, Founding Editor – WheelchairJunkie.com,
            Consumer Research Mgr. – Pride Mobility

            SCI 101 – An Overview of Spinal Cord Injuries and
            The Case for Umbilical Cord Blood Mononuclear Cell Transplants & Lithium
            - Wise Young, MD, PhD, Director Keck Center – Rutgers University

            Panel Discussion Participant
            - Anthony Caggiano, M.D., PhD., VP, Preclinical Development at Acorda

            Preclinical & Phase l of Oligodendrocyte Progenitor Cells Derived From Human Embryonic Stem Cells for the Treatment of Spinal Cord Injury
            - Ed Wirth, MD, PhD, Medical Dir., Regenerative Medicine at Geron Corp.

            Induced Pluripotent Stem Cells: Promise & Challenges for Personalized Therapy to Repair the Injured Spinal Cord
            - Phil Horner, PhD, Assoc. Professor – University of Washington

            Overcoming Inhibitors and Making the Right Kinds of Astrocytes for SCI Repair
            - Stephen Davies, PhD, Assoc. Professor – University of Colorado, Denver

            Personal SCI Experience - InVivo’s Novel Technology & Promising Preliminary Results
            - Frank Reynolds – Chairman of the Board & CEO, InVivo Therapeutics

            Advocacy Workshops -

            - Legislative – Rachel Hammerman , Unite 2 Fight Paralysis
            - Media – Sabrina Cohen, Sabrina Cohen Foundation
            - Community Fundraising – Karen Miner & JenJen, Research for Cure
            - Corporate & Micro Fundraising – Martin Codyre – The Martin Codyre Fund

            Wellness Presentations -

            Introduction
            Lindsay Huisman – Restorative Therapies
            Nutritional Consideration of Chronic SCI
            Susan L. Testa,MS, RD, LDN, Testa Nutrition
            Research Outcomes -Benefits of an Intense Physical Therapy Program
            Cathy Larson PT, PhD, Research Coordinator, Rehab Institute of MI
            Adaptive Yoga
            Jo Zukovich, Iyengar Yoga
            Activity Based Restoration Therapy: Physical, Functional, Neurological Recovery
            John McDonald, MD, PhD, Dir. ICSCI, Kennedy Krieger & Johns Hopkins
            Last edited by t8burst; 5 Jun 2011, 12:51 PM. Reason: privacy
            "Our lives begin to end the day
            we become silent about things that matter."
            - Martin Luther King Jr

            Comment


              #66
              Phoenix in November . . . . woo hoo!!

              Comment


                #67
                How's the weather/temp there?
                Don't ask what clinical trials can do for you, ask what you can do for clinical trials.

                Fenexy: Proyecto Volver a Caminar

                http://www.fenexy.org (soon in english too)

                Comment


                  #68
                  Today it was cooler than normal because of a little rain, in the 70s. By this Friday we will be in the low 80s. November I'm guessing low 80s depending.

                  Comment


                    #69
                    Originally posted by gcblarsen View Post
                    Today it was cooler than normal because of a little rain, in the 70s. By this Friday we will be in the low 80s. November I'm guessing low 80s depending.
                    can't wait.

                    Comment


                      #70
                      Originally posted by gcblarsen View Post
                      Today it was cooler than normal because of a little rain, in the 70s. By this Friday we will be in the low 80s. November I'm guessing low 80s depending.
                      Ok 26ºC
                      Don't ask what clinical trials can do for you, ask what you can do for clinical trials.

                      Fenexy: Proyecto Volver a Caminar

                      http://www.fenexy.org (soon in english too)

                      Comment


                        #71
                        I'm really looking forward to meeting so many new people and reconnecting with a lot of others. A lot of fierce advocates out there.
                        Please submit your photo and story of hope:

                        http://bridges2hope.unite2fightparalysis.org/


                        http://unite2fightparalysis.org/

                        Comment


                          #72
                          has anyone flown with hydrophillic caths in their carry on before and did you have any problems with TSA? This is the first time I'm traveling with them. thanks.
                          Embrace uncertainty. Hard problems rarely have easy solutions. Jonah Lehrer

                          Comment


                            #73
                            We should set up a place where we can all meet. I live pretty far away from that area so I'm not sure exactly where would be a good spot but maybe someone who knows the area does.
                            C-5/6, 7-9-2000
                            Scottsdale, AZ

                            Make the best out of today because yesterday is gone and tomorrow may never come. Nobody knows that better than those of us that have almost died from spinal cord injury.

                            Comment


                              #74
                              It has been in the 90s the last couple of days, but it is expected to be 77 this Tuesday.

                              My husband can't attend one of the days he is signed up for. Can I take someone in his place? My daughter might be interested who is a para, but she is only 12. How would I find out?

                              Comment


                                #75
                                Not a problem having your daughter attend in place of your husband. Send me a note with her name and we'll make sure she has a nametag.
                                Send it to donna@unite2fightparalysis.org

                                Look forward to seeing you there!

                                ONE MORE WEEK!
                                "Our lives begin to end the day
                                we become silent about things that matter."
                                - Martin Luther King Jr

                                Comment

                                Working...
                                X