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    Looking for Family Members of SCI individuals

    We are looking for spouses, parents or siblings of spinal cord injured individuals to participate in a survey that we are conducting. This information will be used for a thesis that will be used to help and assist other SCI individuals. Please reply to this thread and your help is greatly appreciated.
    Last edited by Bobo1974; 5 Feb 2007, 4:37 PM.
    Injured 08-09-98
    C4-6


    -I have learned that people will forget what you said, people will forget what you did, but people will never forget how you made them feel.

    #2
    bobo, could you give us some idea who you are, what your survey entails, and why you're doing it?

    Comment


      #3
      Hi Kate,

      This is bobo's mother. My son was in a diving accident 8 years ago and has a level C-4,5,6 injury. I am currently attending the Graduate Institute in Milford, CT pursuing a Masters Degree in Experiential Health & Healing. (Integrative Medicine) I am doing my thesis on the needs of family members following spinal cord injury. My goal is to see what needs are most important to family members, what needs do not seem to be met--short term & long term, and what family members have done in order to have their needs met and achieve wellness. I will be creating a questionnaire and will need participants to help answer these questions. Following my studies, I plan to work at a rehabilitation hospital working with family members of SCI patients helping them to adapt to the situation. Thanks so much for your help.
      Injured 08-09-98
      C4-6


      -I have learned that people will forget what you said, people will forget what you did, but people will never forget how you made them feel.

      Comment


        #4
        Sure, I'm in - how do you want to handle getting me the questionaire?
        _____________

        Comment


          #5
          I'm in too

          Comment


            #6
            I will particpate as well.
            Kitti

            Comment


              #7
              I will participate.

              Comment


                #8
                Originally posted by Bobo1974
                My goal is to see what needs are most important to family members, what needs do not seem to be met--short term & long term, and what family members have done in order to have their needs met and achieve wellness. I will be creating a questionnaire and will need participants to help answer these questions.
                Excellent topic. I'm sure a few people in my family would be happy to participate.

                C.

                Comment


                  #9
                  Wow! Thank you all for responding. My mom is finishing the questionaire and I will try to find the easiest way to get the questionaire out to you. It may be as an attachment or maybe I can post it on here. I haven't figured that out yet but thank you all so much. This really is wonderful.
                  Injured 08-09-98
                  C4-6


                  -I have learned that people will forget what you said, people will forget what you did, but people will never forget how you made them feel.

                  Comment


                    #10
                    You are not interested in adult children of those with SCI? Many are active caregivers.

                    (KLD)
                    The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

                    Comment


                      #11
                      KLD: I don't see where an age of either the caregivers or the patient was mentioned. Just family members of sci's, not necessarily even acting as "caregivers", though most family members fit into that catagory somewhere, at sometime.

                      BoBo: If you post your survey, I'm sure you'll get lots of responses. Just be sure to make it so that it is anonymous.
                      BeeBee

                      Comment


                        #12
                        You are right. I'm trying to figure that out as we speak...
                        Injured 08-09-98
                        C4-6


                        -I have learned that people will forget what you said, people will forget what you did, but people will never forget how you made them feel.

                        Comment


                          #13
                          I will participate.
                          I suggest that you fill out your profile so we know who we're talking to a little better.
                          - Richard

                          Comment


                            #14
                            bobo, I'd be glad to participate . . . and I agree with kld that you might also invite those who are adult children of parents with sci.

                            if you don't get enough responses from this forum, consider posting your information in the Life forum . . . many people visit it regularly. Also of course the Caregivers forum is designed to be a gathering place for the very population you want to engage.

                            And btw, I'd like to participate.

                            Comment


                              #15
                              BeeBee, this was who was included in the subject list:

                              We are looking for spouses, parents or siblings of spinal cord injured individuals
                              That means only husbands or wives (no mention of live-ins), parents and sisters or brothers. Children are excluded, regardless of age.

                              (KLD)
                              The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

                              Comment

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