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ATTN: C5/C6 quads

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  • ATTN: C5/C6 quads

    First off, I'm starting this thread because I'm at a point where I need to decide whether or not to go forward with a tendon transfer surgery. The way the therapist and Dr. I talked to at Craig Hospital made it sound, the procedure could potentially give me the equivalent of nearly full wrist extensors.
    Right now I'm nearly one half years post and I do have trace extensors, and at this point it seems that's about all it will amount to. I'm really wanting to do this so I can start doing more on my own (driving, cathing, preparing meals, and pick up my own house for once).
    I guess I should get to the point... how many quads functioning at a C5/C6 level are able to go throughout a day and function completely independently? fuentejps is really the only one I know of at this point. I know quartermile transfers and drives on his own (my main goal), but I was curious who else out there is mostly independent.
    "All of us are all too stuck strapped to a chair watching our lives blow up..."

  • #2
    I met my Dr. as a c5/c6 incomplete and as she put it I moved up to a C6 most of my paralysis is on my right side and I am far from being completely independent if ever but I try like hell to do what I can..I think that with this baclofen pump I will get better function of my foot, my hand is already showing improvement..but I don't think I'll ever get rid of my chair..or gain full use of my hands..but it will make things a little easier..Idon't think that I'll ever drive again either but that is me...

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    • #3
      i considered this last year....i compromised and got a colostomy instead......
      Last edited by justadildo; 11-06-2007, 07:51 PM.

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      • #4
        Jbinny

        You need to read this thread by Chris Chappell (what a shame he doesn't post anymore) on that very subject. There's a long debate and a description of Chris' surgery, recovery and gains.

        /forum/showthread.php?t=5767
        C5/6 incomplete

        "I assume you all have guns and crack....."

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        • #5
          i'm far from independent now (also due to the fact that the apt. i rent isn't ideal), but my short-term goals in order to improve my quality of life is to get my driver's license (i've been taking lessons but i have to wait to take the test for bureaucratic reasons) and to get a mitrofanoff and bladder augmentation so that hopefully i'll be able to cath myself. who knows, maybe tendon transfer after that?
          if i recall correctly 2JazzyJeff did the tendon transfer too

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          • #6
            I was looking at that thread that rehabrhino pulled up. it looks very interesting..I think that I will read through it to night..just for learning purposes..now this does not do any thing for the spasms right?

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            • #7
              jbinny,

              I have a dear friend on this site who's had this done. If you want, PM me and I'll give you his screen name here. You two could perhaps talk by phone. I'd really want you to be fully informed and talk to others who've had this done before doing something so drastic. I know that it didn't do too much for my friend.

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              • #8
                I live alone, and am mostly independent, meaning I do my own transfers, drive a modified van, and toilet independently. I have every gadget out there to help with hand stuff because I have no strength or grip. If it doens't have a humongous handle I can't use it, and nothing having to do with eating or food prep is in my kitchen unless it has passed the bounce test. If it falls on the floor and doesn't shatter, then it is usable. I don't really cook, but I do put stuff in the microwave, if that counts.

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                • #9
                  Duh, I forgot to say that I have not had a tendon transfer. A friend of mine did, and it wasn't terrific for him.

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                  • #10
                    i wouldnt do it. return will come for many years bro. lift, eat, push and transfer youll get it
                    Bike-on.com rep
                    John@bike-on.com
                    c4/5 inc funtioning c6. 28 yrs post.
                    sponsored handcycle racer

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                    • #11
                      i'm just frustrated because i have to rely on other people for so much. 1.5 years of 'could you empty my leg bag, hand me the remote, get my wrist brace, hold that cup up?'
                      i just want to be able to spend a full day w/o asking someone to do this stuff... it gets old. i'm pretty confident that pushing everywhere, transfers, and driving will come in time, but i'm pretty sure that cathing, cooking, etc. will be next to impossible w/o some significant hand/wrist function
                      "All of us are all too stuck strapped to a chair watching our lives blow up..."

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                      • #12
                        Do a search on tendon transfers here. I've written a ton and Chappell wrote a novel. Being a C5/6 complete, I have had both done. LOVE MINE!!! Wouldn't trade not doing it for anything... within reason. Easier to drive, pick up food like chips and wings. No more cuffs for utensils, typing or writing. Draining my bag is easier, picking up the phone, grabbing a remote, holding a cup with a handle, holding bottled water.. I could go on and on. Oh yeah, it's reversible too, except for your thumb.. If you decide to do it, only do your dominate hand. If you like it, then do your other.





                        Life isn't like a bowl of cherries or peaches. It's more like a jar of jalapenos--What you do today might burn your ass tomorrow.

                        If you ain't laughing, you ain't living, baby. Carlos Mencia

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                        • #13
                          Then do the surgery, what do you got to loose?
                          Say what you mean and mean what you say because those who mind dont matter and those who matter dont mind.

                          My Myspace


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                          • #14
                            Jeff, maybe you could make a video to demonstrate and the MOD could sticky it. Just a thought...
                            Say what you mean and mean what you say because those who mind dont matter and those who matter dont mind.

                            My Myspace


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                            • #15
                              Originally posted by GoTWHeeLs
                              Jeff, maybe you could make a video to demonstrate and the MOD could sticky it. Just a thought...
                              i seriously was about to ask him to do the same thing
                              "All of us are all too stuck strapped to a chair watching our lives blow up..."

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