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    Experimental Treatments for Spinal Cord Injuries

    If your considering participating in a SCI clinical trial, you need to check this info out at The Miami Project.

    http://www.themiamiproject.org/Page.aspx?pid=428

    From the website:

    EXPERIMENTAL TREATMENTS FOR SPINAL CORD INJURIES:
    WHAT YOU SHOULD KNOW IF YOU ARE CONSIDERING PARTICIPATION IN A CLINICAL TRIAL



    Increasingly, advances in spinal cord injury (SCI) research are finding their way into clinical practice. Many of these experimental therapies are currently undergoing clinical trials or are preparing to enter the clinical trial phase of their development. However, a number of experimental therapies, such as cellular transplants, are being introduced into clinical practice without a valid clinical trial program being completed, leaving their safety and efficacy untested. This is a great concern to researchers, clinicians, and most importantly people with SCI.

    For people with SCI, their families, friends and caregivers, the decision to receive an experimental treatment or enter a clinical trial is a challenging one. To establish a set of guidelines for the design and conduct of valid clinical trials for SCI, an expert panel of researchers and doctors with extensive scientific and clinical experience in SCI was formed in 2004. The panel, supported through the ICCP (International Campaign for Cures for spinal cord injury Paralysis), developed a set of 4 papers outlining the guidelines for the conduct of SCI clinical trials, which were published in the Nature journal, Spinal Cord (see below). In addition to these peer-reviewed publications, the panel summarized these guidelines in an easy-to-read booklet.


    For people with spinal cord injury, their families, friends and caregivers:

    Documents now available for download:
    Experimental Treatments for Spinal Cord Injuries: What you should know if you are considering participation in a clinical trial



    Last edited by Mike C; 4 Nov 2009, 12:37 PM.
    "So I have stayed as I am, without regret, seperated from the normal human condition." Guy Sajer

    #2
    How can I get fampridine SR ?

    fusun

    Comment


      #3
      as far as i know about exercise it is manual activity that develops or maintains physical fitness and overall health. It is often practiced to strengthen muscles. When most adults think about exercise, they imagine working out in the gym on a treadmill or lifting weights. But for children, exercise means playing. i think all of you will agree with me.

      Comment


        #4
        non of the links work.
        "Always look at the bright side of life...."

        Comment


          #5
          Links updated. Thanks ChinaDoll.
          "So I have stayed as I am, without regret, seperated from the normal human condition." Guy Sajer

          Comment


            #6
            Yup!links are working..

            Comment


              #7
              well exercise is not all about the body, it is great for our mind too... When people are having medical or any other problems it is great to do some exercise and get burdain off our chest.

              As it for spinal cord injury...i bellive we should try all axperimental methods

              Comment


                #8
                Thanks Deanbenson123 (I say this to others daily: exercise is not all about the body, it is great for our mind too...

                Comment


                  #9
                  We are trying laser for my sons SCI. He is 7 weeks out he had a concussion & fracture of T5&T6 incomplete, playing Jr hocky and went head first in to the boards. The laser is experimental as goes deeper than traditional ones. The Dr takes at least an hour to laser him. He then has hydrotherapy and some adjustments. Not to his back. Hips, knees (as his gait he was going duck foot & had not prior to his SCI). and neck (whiplash) . He also has PT 3xs a week for an hour and pool therapy. He is able to walk in the home and to the car (short distance) otherwise he uses a wheel chair as he still tires fast.

                  Comment


                    #10
                    Dear Mom15,
                    Can you tell me about this laser treatment?

                    Comment


                      #11
                      Daily treatment for 15 days. High Intenisty Laser Therapy (HILT). to help heal the spinal cord, fracture and decrease pain, inflammation and scar tissue formation associated with the acute injutry. Specialized moblization to the neck, low back, pelvis and hips. Pool therapy and 30 minutes of neurostimulation at 7.83 Hz daily to keep the nervous system communicating. We also purchased a ReBuilder for at home to continue treatments. The treatment by Gold Medal Motion and FDA approved this is not covered by insurance. There clcass IV medical grade laser is more powerful than any other healing lasers in the field. Currently only Clas I and Class II cold lasers have a CPT code for insurance purposes. Hopefully Mamadavid this helps with your questions.

                      Comment


                        #12
                        My First Post

                        Mom15 what type of pool exercises does your son do? My son was injured almost 6 weeks ago and looking to get him pool therapy. He leaves inpatient rehab this Saturday. Also interested in more info on HILT and neurostimulation. I am in California. His injury is C6 incomplete.

                        Comment


                          #13
                          DomsMom
                          The pool exercises he does on his own he learned at inpatient rehab at Sister Kenny in MN. My son was T5 T6 incomplete so I am not sure if your son would be able to go in the pool without help. Ezra uses a walker in to the pool as far as he can then he holds on to the side. He mostly walks back and forth, does lunges and then uses a noodle to do leg lifts.
                          The laser therapy and stimulator is only here in WI with Dr Draeger. He has the only HILT in the country. He has been talking of opening a clinic in CA however at this time only the talking stage. Dr Draeger will only take patients he feels he can help. You can go on line "gold medal motion" in Antigo WI for his information. Hope this helps.

                          Comment


                            #14
                            Thank you

                            Thank you for the reply Mom15. I called the local Y and they are willing to work with him. I'll post more info after we meet with the staff there.

                            Comment


                              #15
                              Originally posted by fusun View Post
                              How can I get fampridine SR ?

                              fusun
                              Just ask your doctor for a script.

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