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  • #16
    Originally posted by Mgirl52178
    Susan M-Thx, Mgirl, great post. Congrats to all of you on the great progress. Has Rob seen any wrist/hand functional recovery?

    Yes, he has gotten his wrists back, though they are weak. His hands each have some use (more gross motor than fine but he can open and close them and make a fist, he type a little but can't open bottles or zip or button things), his right is stronger than the left. He uses an EMPI estim machine at home which he thinks has helped w/recovery.

    Mgirl,

    I just learned last week word of mouth that Dr. John McDonald recommends placing electrodes two on the top of the forearm and two on the bottom of the forearm for 30 minutes each day to force the hand to clinch into a fist. I understand this is one of the best, most effective motor neuron patterns that someone can do. Is this what Rob is doing?

    Thanks,
    Susan

    PS (my apologies to Dr. McDonald if this is a false statement, but the information came from a very reliable source, so I wanted to ensure that Dr. McDonald was given due credit)
    Please submit your photo and story of hope:

    http://bridges2hope.unite2fightparalysis.org/


    http://unite2fightparalysis.org/

    Comment


    • #17
      Originally posted by Susan M
      Mgirl,

      I just learned last week word of mouth that Dr. John McDonald recommends placing electrodes two on the top of the forearm and two on the bottom of the forearm for 30 minutes each day to force the hand to clinch into a fist. I understand this is one of the best, most effective motor neuron patterns that someone can do. Is this what Rob is doing?

      Thanks,
      Susan

      PS (my apologies to Dr. McDonald if this is a false statement, but the information came from a very reliable source, so I wanted to ensure that Dr. McDonald was given due credit)
      I had that done in rehab by a therapist who worked for the last twenty years, she was the only good one I thought. Tho my fingers aren't working it helped with learning tenodesis/strength. My left hand it didn't work as the muscles were too atrofied even in the beginning. similar?

      Comment


      • #18
        Originally posted by Lizbv
        I had that done in rehab by a therapist who worked for the last twenty years, she was the only good one I thought. Tho my fingers aren't working it helped with learning tenodesis/strength. My left hand it didn't work as the muscles were too atrofied even in the beginning. similar?
        It's really strange, Betsy. I have trace movement in my wrists and fingers and have significant buzzing/tingling in my hands. However, they are not atrophied at all. Do you remember seeing my hands? Everyone thinks I have full use of them. I don't know -- I'm hoping this new technique will help me regain at least some wrist function. It's worth a try, anyway. We shall see -- for some reason, in the past month, I have seen dramatic changes in my ability to raise my arms and move them around. I can even touch my face with my left hand if I really work at it. It is so cool. I have also had significant increase in the buzzing/electricity shooting through all of my limbs within the past month. I'm not sure what's going on, but, I'll take it.

        Sue
        Please submit your photo and story of hope:

        http://bridges2hope.unite2fightparalysis.org/


        http://unite2fightparalysis.org/

        Comment


        • #19
          Originally posted by Susan M
          It's really strange, Betsy. I'm not sure what's going on, but, I'll take it.
          Sue
          wow, sounds good Susan. I think I remember your fingers loose, whereas mine are bent on my right hand. the stim should help you, I think. crank it up grrl put it on your deltoids, biceps, etc. lol for the first 7 years I think I found little return/feeling in various places. p.s. Harris is in D.C, working on Sekemia at DeWine and other at Voino's club HQ. then we are going to columbus and Imhopeful from here is joining us to raise heck- we are getting our guns out lol. ok, back to thread. (sorry mgirl)

          Comment


          • #20
            Originally posted by Lizbv
            wow, sounds good Susan. p.s. Harris is in D.C, working on Sekemia at DeWine and other at Voino's club HQ. then we are going to columbus and Imhopeful from here is joining us to raise heck- we are getting our guns out lol. ok, back to thread. (sorry mgirl)
            Dang--that's awesome. I knew Harris was up to something good, I heard from him last week. Getting Sen. DeWine on board as co-sponsor of the CRPA would be huge. Please let me know if I can help in any way.

            Sorry, Eric, et al, for digressing.
            Please submit your photo and story of hope:

            http://bridges2hope.unite2fightparalysis.org/


            http://unite2fightparalysis.org/

            Comment


            • #21
              Originally posted by SuzyQisforquad
              Has anyone explained to you why your hands/arms didnt atrophy? I am just wondering because although my right hand is already quite atrophied and my right forearm looks downright caved in, my left hand/forearm still looks completely normal. I don't have any use of either wrist or hand. I have asked the physio and doctor why but neither of them had a good answer.
              No, I can't answer that. I've never asked. I kept waiting or them to atrophy, but, they never did. Since about six weeks post injury, my forearms and hands have felt like they have been shot with novacaine that is gradually (very gradually--I'm 6 years post) wearing off.

              Does anyone else know? Now, I'm curious, too.
              Please submit your photo and story of hope:

              http://bridges2hope.unite2fightparalysis.org/


              http://unite2fightparalysis.org/

              Comment


              • #22
                Originally posted by Susan M
                No, I can't answer that. I've never asked. I kept waiting or them to atrophy, but, they never did. Since about six weeks post injury, my forearms and hands have felt like they have been shot with novacaine that is gradually (very gradually--I'm 6 years post) wearing off.

                Does anyone else know? Now, I'm curious, too.
                I am T12 and my feet never atrophied either. They just feel numb except for occaisional jolts of nerve pain. I can feel pressure even tingling when something happens that should have hurt. I seem to be getting a more normal feeling as time goes on. Without a better way to explain it, the numbness seems to get less numb over the years if that makes sense. If I try to move my feet, I get jerky movements in my lower legs and feet. I dont know if this makes a lick of sense or not. It is so hard to explain. They are not completely dead but not alive either (my feet) LOL...
                T12-L2; Burst fracture L1: Incomplete walking with AFO's and cane since 1989

                My goal in life is to be as good of a person my dog already thinks I am. ~Author Unknown

                Comment


                • #23
                  Same here darkeyed dasiy, if i try to move my left foot my whole left leg will spasim and then it will move the part of the foot i was trying to trigger in the first place. Its like the signal gets down there but it hits evey other muscle on the way down.
                  Injured:10-16-04
                  C7/C8, T1 incomplete;


                  For stalkers convenience:
                  Blog:
                  http://www.ordealsonwheels.com/
                  Facebook:
                  http://www.facebook.com/#!/coryssanchez
                  Progress:
                  http://photobucket.com/albums/b290/swooty/
                  My drawings:
                  http://kanvases.com/sites/corysanchez/home

                  Comment


                  • #24
                    Atrophy
                    My left hand seems like its always been this way, from day one. My last two fingers are kuputzz. First two knuckles are no good either. My left side suffered a lot of trauma from my accident. I couldn't move anything on that side for a lot of years. and, so much shoulder painm, it has subsided a lil.

                    Comment


                    • #25
                      I hired eric to come to my house and give me a evaluation. He drove 1 hour to my house in P.A. What a wonderful guy not only a great physical trainer he showed my dad so many new stretches to do. I got the workout of my life aches for 2 days but worth it. He gave us so many new ideas to do with my workouts. When he opens his place in New Jersey I will be waiting to join up for some more therapy. Hands on therapy is so important for stretches. I have been doing therapy in P.A. on and off for 5 years at rehabs and I never met someone like eric. He knows his stuff. thank you again eric. anty
                      Be always determined in Life and Love

                      Comment


                      • #26
                        ?

                        Interesting...Project walk hasn't been very hospitable to me.

                        I asked a few simple questions, via email:

                        What kind of exercise programs are available? "can you move out west?" Of course not, my home and my career is here.

                        What publications or books have you published on your methods?...No reply.

                        Do you have any Project Walk team members and therapists who themselves have spinal injuries? ... No Response.

                        What is your home therapy program? Hoiw much does it cost? ... again, no reply.
                        Eric Texley

                        Comment


                        • #27
                          Originally posted by bob clark
                          Hello Snowman and Trainer Eric,

                          Thanks for the free commercial advertisement in the Exercise & Recovery Forum. The next time I'm in Northern New Jersey with a wad of cash in my pocket I'll be sure to look up Trainer Eric.

                          I too am proud to announce that I'm a Specialist in Training but in the field of computer repair. This means that I've spent extensive hours screwing around with computers (using the Bob Clark Method™) but unlike Eric, I can usually fix them and get them "up and running". And like Eric, I will always give your computer a good workout here at Project Board Slap®. Of course there's no guarantee that I'll improve the performance of your computer and again, like Eric, I'll expect to get paid well for my time no matter what the results.

                          I'm now accepting customers and if all goes well and when I really learn what the hell I'm doing I'll be a Level I Certified Computer Repair Specialist (CCRS) and in July of 2007 I too hope to open up a storefront operation and hire a staff and all that fun stuff.

                          I also specialize in the field of selling outdated useless computer and wheelchair parts. Cheap prices. Call 1-555-CRZ-EBOB. Sorry for any inconvenience but my website is still under construction.
                          Why so negative? If it helps some1, it should be posted. After all, that's why we are here to learn the little secrets out there from each other. Sometimes i'm scared to post because I feel i'm gonna get the negative attack.
                          AstrO

                          Comment


                          • #28
                            Originally posted by etexley
                            Interesting...Project walk hasn't been very hospitable to me.

                            I asked a few simple questions, via email:

                            What kind of exercise programs are available? "can you move out west?" Of course not, my home and my career is here.

                            What publications or books have you published on your methods?...No reply.

                            Do you have any Project Walk team members and therapists who themselves have spinal injuries? ... No Response.

                            What is your home therapy program? Hoiw much does it cost? ... again, no reply.

                            When and who did you email? I haven't recieved anything.

                            Let me answer your questions here:

                            1) Look at this link: http://www.projectwalk.org/portal_program.htm
                            It should answer your questions about our program options. All of them do require you to come out to the facility for at least a week. However, with Eric now on the East Coast you can contact him as well.

                            2) We have not published any books on our program. I am currently working with UC Irvine on a comprehensive study of our program. Should be completed in the next 6 months and hopefully published sometime thereafter. Details can be found here: http://www.projectwalk.org/pw_inst_s...arch_news.html

                            3) No.

                            4) Details of our home based program can be found here: http://www.projectwalk.org/pw_program/home.html
                            It costs ~ $1800

                            Hope this helps!


                            Eric Harness, CSCS
                            Founder/President
                            Neuro Ex, Inc
                            Adaptive Performance and Neuro Recovery

                            Comment


                            • #29
                              Hi NetoAnAstro,

                              Originally posted by NetoAnAstro
                              Why so negative?
                              Compared to my last joust with Project Walk, that still freely, shamelessly and IMO sneakily advertise their expensive services here at the CC forums, my post you refer to was tame. And I thought my sarcasm was even a bit funny.... well maybe not ha ha funny.... but a bit amusing.

                              Project Walk, up until recently, was a "for-profit" commercial business and it's against the rules for them to advertise in here. And even though they have a loyal and vocal following here I still feel compelled, even at my own peril, to expose their posts for what they are and what they do here and that's rule breaking advertising guised in the form of threads such as this. Created by Snowman aka Eric Harness, CSCS, who is the Director of Research and Development at Project Walk. They have recently gone "nonprofit" and I'll need to wait until 2007, at which time they'll be forced by law to, upon request, release their Federal IRS Form 990 (financial statement) to the public. And by California law post it on that state's website. And if they're proud of what they do and of their new nonprofit status, should be proud to post it on the first page of their website. I hope that answers your question.

                              However, according to the California Secretary of State and the Attorney General's Registrar of Charitable Trusts, Project Walk, Inc. is still not registered with their office so considers them a for-profit organization, located in San Marcos, CA. Their corporation number is C2424796. They have two addresses in CA so it gets confusing for a layman like myself to grasp the legal implications. Since their physical location is in Carlsbad, CA I'll just have to wait for their Form 990 to be publicly published and go from there. I hope their IRS Form 990 will show the salaries of the owners and the top executives so we'll know how much interest they put into helping SCIs recover and how much interest they put into helping enrich themselves.

                              If my facts are wrong then I hope the Snowman will set me straight.

                              Originally posted by NetoAnAstro
                              After all, that's why we are here to learn the little secrets out there from each other.
                              You are so right. From each other, the Nurses who post here and of course Dr. Wise Young.... not from "for-profit" commercial businesses and even nonprofit businesses who unabashedly break the rules and advertise here.

                              The lines are now blurred, at least for me, when it comes to nonprofit organizations touting their services here because even though an organization is nonprofit does it mean that the owners and top executives aren't receiving huge salaries and are sucking off the teats of their nonprofit organizations. In the case of Project Walk we'll just have to wait and hopefully see.

                              For example:

                              Marsha J. Evans, President and CEO of the American Red Cross... salary for year ending 06/30/03 was $651,957 plus expenses.

                              Brian Gallagher, President of the United Way receives a $375,000 base salary, plus numerous expense benefits.

                              In contrast to:

                              The Salvation Army's Commissioner Todd Bassett receives a salary of only $13,000 per year (plus housing) for managing this $2 billion dollar organization.
                              There is no way in hell that I would donate a hard to come by $100 bill to the Red Cross when their CEO is raking in a huge $651,957 yearly salarly (that was 3 years ago... I imagine it's more now) plus expenses! I don't know Marsha J. Evans personal financial status but it's not uncommon for the past CEOs of the Red Cross to be a multi-millionaires in their own rights and still accept a salary of that size. It's a charitable organization for God's sake. I think those "blessed" with multiples of millions of dollars in personal assets should "give back" to the community and work for free or for $1.00 a year (as many of them do) and not soak those who can barely get by financially, using Madison Avenue tactics and advertising techniques to do it.

                              I think it would be a good idea for those "for-profit" and even the "nonprofit" organizations who advertise here at CC (and whose owners, CEOs and top execs recieve a hefty salary) to have a special title under their name. We now have titles such as "Member", "Senior Member" and "Moderator". They could have a title such as "Nonprofit Donor" or "For-Profit Donor" indicating they've donated a few bucks to CC helping out Dr. Wise Young operate this website. I understand that Johnson & Johnson pays (and without any advertising here whatsoever) for the bulk of the expense now. And good for them. In the past month I've bought 4 boxes of their extra large Band-Aid brand "Tough-Strips" (pressure sore on my damn foot!) because of their unsolicited and generous support here at CC. I could have saved a few bucks and bought the store brand but would rather buy from companies that support endeavors such as this, and with little to no fanfare.

                              Originally posted by NetoAnAstro
                              Sometimes i'm scared to post because I feel i'm gonna get the negative attack.
                              Don't ever fear posting anything in here because you feel you may be challenged for your beliefs. If you're right (subjective term) then most people will come to your aid and support you. If you're in the wrong (subjective term) perhaps you'll deserve a little debate or argument until the issue gets resolved. Or the thread locked! After all, this is a "Dicussion Board" so discussion should take place. Sometimes it gets a little hot and heavy but if everyone thought and believed alike then there would be no need for a forum like this and it would get very stale in here awfully fast!

                              Post away NetoAnAstro.

                              And have a good day.
                              "Be kind, for everyone you meet is fighting a great battle." - Philo of Alexandria

                              Comment


                              • #30
                                Bob,

                                I welcome input from vendors of products and services being discussed by CC members. This input should not take the form of advertisements or solicitations ( ). I understand that there are gray areas, but hey, life's not B&W. Who would object to Jimmy Mack letting us know about his sandwich shop?

                                I like your idea of a special designation for posters with a vested interest, but the donation idea strikes me as a shakedown or ad fee. Think that donations under these circumstances are a slippery slope that could compromise objectivity. Or, create the spectre of compromised objectivity.

                                Has CC ever held chat style conferences for vendors? Like maybe TiLite might provide a product specialist to answer CC questions on a new release. This would be an announced event of limited duration.

                                Also, does Florida require 501c3 corporations to post IRS 990 on the home page of websites? Are there allowed exceptions, like posting the annual report as a substitute?
                                Last edited by Foolish Old; 09-06-2006, 10:39 AM.
                                Foolish

                                "We have met the enemy and he is us."-POGO.

                                "I have great faith in fools; self-confidence my friends call it."~Edgar Allan Poe

                                "Dream big, you might never wake up!"- Snoop Dogg

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