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    #46
    My son was injured 9/20/03, diagnosed complete, t7-8 (rods from c-5 to
    t-10, 10 broken vertebrat, c-7 small bruise) We are now at SCI-STEP and I believe he will be able to walk someday. He is using a walker with assistance now and just got cast for AFO braces. I believe there is hope for recovery from spinal cord injury, it takes a lot of time and patience and help from folks who know. Before we came to SCI-Step(we got here 1/24/06) he was sitting in his wheelchair at home with the ability to stand, but not take any steps or pedal, which he can do now. For whatever it is worth and inmy opinion only, exercise, cranial sacral and laser therapy helped make a difference in his recovery.

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      #47
      I am a walking para. I burst t12 (incomplete) in 1982. I have the ability with any walking aid and afo braces after my first year of rehab. I was never able to feel very comfortable walking all the time because my harrington rods (T11-L2) interferred with the natural curve of my back and it would not allow me to get my pelvis under me for long term stability plus it was painful...lots of back spasms until I stopped straining to stand straight. My quality of life has been better using a chair.

      I do stand up and shuffle along while holding onto a countertop and it is heaven sent for reaching those high cubbards at home and just good stretching. I have always felt very lucky.

      T

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        #48
        4 month update

        Originally posted by dan_nc
        My neurosurgeon's diagnosis was "incomplete paraplegia" but I'm not sure if that incomplete meant I have some use of my legs, or if I might get some returns. I am getting back sensory and motor post-injury (I'm now 2 months post-injury).

        And I've made it from wheelchair to rolling-walker and yesterday was able to start practicing with 2 wide-based canes (did about 40+ feet...slowly).

        I'm not sure what bent meant in terms of 100% impossible, cuz I fully intend on walking again.
        What a quick couple months it's been ...

        When I first answered this post, I wasn't even sure if I'd be considered a "walking para" since I was mostly walking with my arms (using the walker). I totally destroyed my glide brakes by grinding them into the ground. I struggled with the AFOs, since my ankles were too weak and I didn't have enough proprioception to walk without them.

        I'm now 4.5 months post-injury and I'm amazed at the difference a few months makes. I haven't used my wheelchair in weeks (well ... will probably continue to use for long distances like the mall, airport, museums, etc.) ... and have put the walker and the AFOs in the closet.

        My ankles are still weak, but I'm a lot more careful with them and I'm okay as long as my shoes are on.

        Recovery is pretty much my full time job. I'm still doing a fairly intense therapy schedule (five 45 min sessions of therapy per week ... 3 land, 2 aquatic), acupuncture (3x/week), home exercises (30 min-45 min per day), and work with my mom for my exercises in the pool at least once or twice a week for about an hour. I walk into grocery stores, hardware stores, barber shops, banks, doctor's offices. I only use the wheelchair when I need to go to the hospital and when I went to the airport. If I have enough time, I attempt to walk the distance and just take breaks when I need.

        At home, I have been able to walk around the room (up to 10 feet) with no assistive devices (very ugly ... can't even call it walking ... maybe staggering ?? I go until I reach an object to lean on) ... I walk around the house with a single quad cane (including walking my driveway to check the mail) ... I walk around the neighborhood with two quad canes. I haven't really measured it, but I'm sure I can now walk in excess of 1000 feet without taking a break. I'm hoping to become one of those full-time walking paras someday and working hard toward that goal.

        Yes, it's frustrating because day to day it seems like there's so little progress but then I realize the improvements in a few short months. I hope to be able to go to one of those intense recovery centers in the coming months to continue this recovery from SCI.
        Last edited by dan_nc; 5 Mar 2006, 2:18 AM.
        Daniel

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          #49
          Originally posted by Curt Leatherbee
          From my experience, walking Para's are quite rare, walking quads are more common, however still rare.
          Curt,

          I see from some of your posts you are a bit pessimistic.

          I think that now through restorative therapy there are a lot more walking para's and quad's.

          I have friends that went to KK and what Dr. McDonald is doing there is amazing. I think he's a top doctor/scientist/researcher that is on the cutting edge.

          Please more walking para's and quad's speak up. Don't be shy.

          **Give us newly injured more faith.
          Birds Fly in Flocks, but Eagles Fly Alone...

          Comment


            #50
            Originally posted by dan_nc
            What a quick couple months it's been ...

            When I first answered this post, I wasn't even sure if I'd be considered a "walking para" since I was mostly walking with my arms (using the walker). I totally destroyed my glide brakes by grinding them into the ground. I struggled with the AFOs, since my ankles were too weak and I didn't have enough proprioception to walk without them.

            I'm now 4.5 months post-injury and I'm amazed at the difference a few months makes. I haven't used my wheelchair in weeks (well ... will probably continue to use for long distances like the mall, airport, museums, etc.) ... and have put the walker and the AFOs in the closet.

            My ankles are still weak, but I'm a lot more careful with them and I'm okay as long as my shoes are on.

            Recovery is pretty much my full time job. I'm still doing a fairly intense therapy schedule (five 45 min sessions of therapy per week ... 3 land, 2 aquatic), acupuncture (3x/week), home exercises (30 min-45 min per day), and work with my mom for my exercises in the pool at least once or twice a week for about an hour. I walk into grocery stores, hardware stores, barber shops, banks, doctor's offices. I only use the wheelchair when I need to go to the hospital and when I went to the airport. If I have enough time, I attempt to walk the distance and just take breaks when I need.

            At home, I have been able to walk around the room (up to 10 feet) with no assistive devices (very ugly ... can't even call it walking ... maybe staggering ?? I go until I reach an object to lean on) ... I walk around the house with a single quad cane (including walking my driveway to check the mail) ... I walk around the neighborhood with two quad canes. I haven't really measured it, but I'm sure I can now walk in excess of 1000 feet without taking a break. I'm hoping to become one of those full-time walking paras someday and working hard toward that goal.

            Yes, it's frustrating because day to day it seems like there's so little progress but then I realize the improvements in a few short months. I hope to be able to go to one of those intense recovery centers in the coming months to continue this recovery from SCI.
            Wow!!! Way cool Dan~ this is awesome news for just a few months into things. Keep at it!
            "I want to make a difference! However small it may be~ as long as it's a positive one, then this is what my life will have been about and I will go knowing I did my best.~ T.

            Comment


              #51
              Burst L#1.(incomplete) May 20, 2004. Took 8 months with a walker to get my core strengthened for balance. No problem there now.

              Then used 4 prong cane for two weeks, kept getting my feet tangled in it so I started with just the cane at 9th month.

              Got shoe inserts 9th month, which helped the heel pain. Walk around the
              house using nothing now, lift my toes as high as I can get them so now I've got the heel to ball of foot... balance back.

              Toes now flat on right foot and wearing hammertoe thingie on left foot
              so they are now getting flat as well, plus my usual toe stretching exercises. Doing side to side lunges to strengthen my ankles.

              I walk slow but gait is really improving. Hoping by spring my heel to toe
              action will greatly improve as well.
              Your life is what you make it, and only you have that choice!

              Comment


                #52
                queen those exercise you mailed me rock. Starting to be able to do them somewhat. keepin' it up though. ur my inspiration!
                Daniel

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                  #53
                  when my son was in rehab in Billings, Montana, 10/10/03, I got a letter form a 65 year old retired rodeo clown. He told me he was in the same hospital in 1957 after a bull riding accident, of course they told him he would be in a wheel chair the rest of his life. Three years later he was running as a clown in a rodeo. He was a lower t injury as I recall. He had some ropes on the ceiling his Dad made and used those to move his legs. Then he was given a mule and says riding the mule helped him to walk again. He is a wonderful man who helped me keep hope.

                  Comment


                    #54
                    Originally posted by Meredith Tate
                    Then he was given a mule and says riding the mule helped him to walk again.
                    i'm all for unorthodox methods, but this is really odd.

                    Comment


                      #55
                      I have heard that the motion and energy of horse back or mule back riding transfers to the body riding and helps to promote recovery. I would imagine balance is also achieved. This is what he told me and back then you were more or less on your own. Then as now all doctors tell you you will be in a wheelchair for the rest of your life, you make the difference.

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                        #56
                        I am a walking para, 15 years post. Now I am a quad as secondary degeneration to the initial injury. I have central cord, but am still walking. Use platform cane, bilaterally. My balance is terrible.
                        Every day I wake up is a good one

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                          #57
                          Hey CapnGimp...

                          I'm a little late to this thread, but did something you are thinking of trying, 'walking' with braces. I'm T6 complete, so thats pretty much like you. I have some braces and a walker, but havent really used them much. The big problem for guys like us is the lack of abs and hip flexors, when standing your body is not straght, and doesnt want to be either. Seems I look like a bananna when standing (hips forward, legs dragged back), walking with that walker, well, I never did that, just standing. I am thinking that if I had some sort of connection brace made between my chest and the leg braces this would be very helpful, then I imagine you could hop yourself around using your arms to lift on the walker. Oh well, I got the braces I wanted, but the whole concept is so goofy now they sit in the closet. Maybe I will play with them sometime later if I get that urge again.

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                            #58
                            Yepper, that's what I was thinking EXACTLY.
                            I only got to try braces to the thighs on each leg without a connector between the braces at crotch level to keep the legs 'straight'. They have those now.
                            I watched in the mirror at rehab and had the bananna look too,lol. That was when I discovered I no longer had a butt, don't remember it falling off anywhere either
                            If I were you, I'd fab me a chest support and try them again sometime and see how that works. Heck, we just need to get a refrigerator box and fiberglass it, cut it to fit and put some wheels on the bottom

                            BTW, I only used paralell bars, the pt's were busy enough catching my legs which went every direction when I lifted them off the ground. I found it quite humorous, they tired off me quickly. I hadda try tho. There was a T12 there that did fair with leg braces and crutches, when he would fall, I'd cringe, looked rough. That's what gave me the idea to attempt it.
                            Last edited by CapnGimp; 11 Mar 2006, 9:02 PM.

                            https://www.facebook.com/john.baxter.1213986

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                              #59
                              walking para

                              I am up and walking with a walker after a year and a half in a wheel chair. I use the chair in the house so i can have my hands free, but i am able to walk down the road, we take the walker to malls restaurants, etc. I was finally able to walk a entire mile 2 days ago. I don't have calves and can't wiggle my toes, but am still able to walk with the hamstrings, quads and gluts i have regained. So, i pray the endurance and strength will continue. i have come a LONG way and know i have a LONG way to go. i say, just don't give up or set timelines.

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                                #60
                                I just added a post to Cali's thread "what's your experience/opinion (KAFOs)" referencing this thread

                                Cheers!
                                Han Tacoma

                                ~ Artificial Intelligence is better than none! ~

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