Announcement

Collapse
No announcement yet.

Has anyone here visited project walk?

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

    #16
    Does anyone know

    what are the credentials of the "therapists" working at Project Walk? What is their experience working with SCI patients?

    Comment


      #17
      Mad Producer aka iguess

      So since no one on New Mobility will listen to your ranting your going to bring it over here to a board devoted to civilized and intellectual discussions about possible cures and new therapies. Sad.

      I really hope Foster and his son never meet you in person... it could get real ugly.

      To all others

      Here is a list of our most recent visitors and their email addresses:

      Fred Nader, frnad@aol.com
      Fred's daughter, Erica, C6, started the program on June 17. They are from Michigan.

      Roni Taylor, ronijan@hotmail.com
      Roni's son, Cas, C4/5 is currently visiting from Texas.

      Foster Ashman, fsrca@hotmail.com
      Roster's son, Ryan, T7, will start as soon as they can make financial arrangements for Ryan to come out from Philadelphia

      Able Dominguez came from Texas to observe our program and is now bringing his daughter, Laura C6, for a trial workout visit. Laura2738@aol.com

      Brent Key is a T12 also from Texas. Check out his website HERE you'll find some pictures of him at our new facility.



      Thank you for your interest in Project Walk and I hope to see a lot of you soon.

      Eric Harness,CSCS
      Project Walk


      Eric Harness, CSCS
      Founder/President
      Neuro Ex, Inc
      Adaptive Performance and Neuro Recovery

      Comment


        #18
        vgrafen

        Well as far as being complete.....yes at one time I suppose I was. Since the very beginning of my ordeal 22 months ago I have been busting butt with a lot of different things. I started out a complete ASIA "A"
        Now things are different, I have some voluntary movement and feeling in my right leg and toes. I hate ASIA. Maybe ASIA would still consider me complete. I don't know and I don't care. It's an inadequate testing method. In any event PW didn't express their concern to me about "complete vs. incomplete" maybe because I shared with them all I've been doing thus far. We'll see!

        Comment


          #19
          uh...

          I was addressing the moderator, Chris, he of the spoked wheel. Did I miss something, or...?

          vgrafen
          vgrafen

          My book, 'Scouring the globe for a cure: a disabled man's experiences with stem cell treatment' is available at Booklocker at the following address:

          www.booklocker.com/books/2857.html

          A percentage of every sale goes to CareCure.

          Comment


            #20
            Vgraf, Sorry for the delay in response.

            My injury is C6-7. I am sensory incomplete, motor complete. Basically, I can feel touch, hot/cold on my feet and have general light touch sensation up to my knees. Above my knees (top of quads) I have spotty sensation. Also light touch in my abdomen. Probably more than you want to know but I also have genital and sacral sensation. What's weird is that my butt and the back of my legs from hips to heels I have better sensation (hence the burning) than the fronts or sides of my legs.

            Motor wise I'd say I'm complete. I can move a toe or two but nothing to write home about.

            What I'm hopeful for and excited about is the plasticity capacity of the spinal cord. You know this already but I don't think many understand the concept of plasticity and what potential it may unlock. And the reason I think that many don't understand it is that we're conditioned, not unlike rats, to sit all the time and not use our limbs enough. No wonder our bodies function through learned non-use. What choice does it have? And I don't believe that even the best run "model center" sci hospitals and rehab centers utilize PT correctly. Does your pt know about plasticity? Mine, I can assure you, do not. They're just preachin the same stuff. Why? money, personnel and equipment issues. It takes a big commitment on the part of a hospital or rehab center to take on a "complete" injury. And for how long will they carry someone without seeing improvement / results?

            What PW is doing, imo so far, is nothing new in terms of advanced pt concepts. The difference, I think, is in the intensity and more importantly the time/ repetition that they commit.

            If you've or anyone read the entire site they clearly state that you probably will not see real results for at least six months. How many facilities would commit six months to my rehab? None that I have found. Even with enough money and insurance even the best sci hospitals (Craig) can't devote the manpower or equipment necessary.

            Like you and probably many others I have and can get or make the same equipment that they're probably using at PW. But if I'm honest with myself I have come to the conclusion that I'm not going to work out 5hrs a day 5 days a week for two years. Now, is that worth $2000 or $3,000 a month? I don't know. However I think its worth a shot before someone opens up my back and...?

            What's the downside? I learn, get in as good a shape as possible while waiting for medical science to catch up. And for $70,000 I think its relatively cheap for the potential opportunity to walk again.

            I'm a realist. Nothing in my life has been easy. Why would I even begin to think that the road to sci recovery won't be the steepest and deepest challenge I've ever faced. I only know hard work will achieve results in some way, shape or form.

            And for anyone else I will just offer that if you read Lance Armstrong's "Its Not About The Bike" you may have a better understanding of my approach to this problem. Out work everybody.


            Peace.

            Onward and Upward!

            Comment


              #21
              Chris, sounds like you're an ideal condidate for PW: motivated and prepared, body and mind. However, if you've got some toe movement, you IS motor incomplete, man, and that's good, and I'm envious, and you stand a damn good chance of employing spinal plasticity to regain some function. Go get 'em, boy, and please report what happens, good and bad.

              You also raise a good point about rehab clinics and how long they'll be willing to hang in there with completes. I am the only complete in Nor Cal doing any treadmill walking, that I have encountered, I should add, and from what Davis, Enloe and Santa Clara tell me. Why? 'Cause nobody believes it'll do any good; clearly the word isn't out, so nobody asks for it and nobody prescribes it. I am anticipating the day when my PT says, 'v, we're not getting anywhere here, medi-care won't continue paying, and I'm not sure we're getting positive results, it's time to cut you off.' I hope toi god I have something tangible by then to show, but I may not, so I'll have to have something going at home, maybe FES. Still, it's a crapshoot and yeah, maybe it ain't fair, but it's the only game in town, and I'm in.

              vgrafen
              vgrafen

              My book, 'Scouring the globe for a cure: a disabled man's experiences with stem cell treatment' is available at Booklocker at the following address:

              www.booklocker.com/books/2857.html

              A percentage of every sale goes to CareCure.

              Comment


                #22
                Vgraf, Thanks.

                And I think from your post below and from your thread about your recovery you have pinpointed the problem. Belief, or the lack of it from most of the sci community. And attitude towards recovery.

                Hope and hard work.

                I wonder why more (this community not withstanding) are not inspired to pursue these paths?

                Onward and Upward!

                Comment


                  #23
                  Chris, why do you consider yourself motor complete? If you can move a toe, then there has to be some existing connections left and what you describe sounds very incomplete to me. I would be willing to bet that with the kind of function you describe, you will be at least standing on your own in a few months after intense therapy.

                  Comment


                    #24
                    I see little reason to doubt that treadmill training would benefit some people, I went on a 3 month course 8 years that employed the Dikoul methods and learnt quite a lot. I knew before I went that I had muscles below the level of the break (c5/6) as I could feel pulsing when I tried to move them,the therapists there seemed to know where these muscles were and worked on them accordingly. This differed from the therapy I received after my injury in rehab because there they only worked on muscles they knew I had eg:shoulders biceps. The biggest improvement I got from the course was to my stomach muscles which went from a 28kg assisted sit up down to 4kg when I left.One of the other things that happened was that I could make my legs raise when I induced spasm and I also had a degree of control in that I could lift either my left or right leg on command (or both) but no control over how high they would lift, this is why I find projectwalks work interesting.
                    The downside for me was that as the muscles strenghened so did the spasm and when I got home it was hard to find people to help with these exercises and gradually my workrate tailed off though I often wonder where I would be today had I been able to continue. If you have the time and the means these kind of exercises can pay dividends though I speak as somebody with an incomplete injury.

                    Comment


                      #25
                      Carl, thanks.

                      You and Vgraf may be right in terms of incomplete but personally unless I'm able to voluntarily lift a leg, bend an ankle or bring my knees together the innervation to the muscles that require walking are, at this time, complete. Hopefully with therapy this will change.

                      I wish there was such a place/therapy like PW for my hands though. Is anything more frustrating than quad hands?

                      Onward and Upward!

                      Comment


                        #26
                        Coordination dynamic therapy?

                        Has anybody tried this???

                        http://www.spinabifida-online.com/etreatment01.htm

                        Eric Texley
                        Eric Texley

                        Comment


                          #27
                          interesting

                          I find all this fascinating, but I have a question. For a lower level quad, say c-5 to c7, don't you use your hands as much as possible already? I mean in everyday life, don't you use what you can of your hands, thumb, and fingers? I'm asking because while I can understand the concept of 'learned non-use' regarding legs, I wonder how this claim could be made to the upper extremities? I mean, you'll do everything your hands and fingers can provide so how can they have 'learned' to not be used?


                          If you have the time and money I agree that the worst that will happen is that you may be healthier from the exercise. I think most people bristle at this concept because of the implication that if they'd have worked harder, they wouldn't still be in a wheelchair. We all know what bullsh*t that is. If sheer will and determination could make someone walk after SCI, Chris Reeve and Mike Utley would be dancing circles around their doctors by now. But it's surprising how much of the AB world believes it.

                          Comment


                            #28
                            I think the same rules apply to your hands as the rest of your body, you tend to work around the deficiencies, I know I do and you do it unconciously. As I`m typing just now I`m not trying to use my fingers properly, I`m working around it. I remember when I left hospital they told me I could have a tendon transfer and I`m so glad that I never went ahead with it because I can manage most things with my hands the way they are using wrist flexion.

                            Comment


                              #29
                              Tara,

                              I'm sorry I missed your request. Sometimes I'm a little sporatic in my visits to Care/Cure. I just visited the New Mobility link to their Project Walk discussion, and it appears that Project Walk cost $2,000 a month and they like to train you if possible for a year. Or at least that's the impression I got from their self-description. I can give you Ted's email address if you like. Also, if you ever post me a question or a comment that I don't respond to, please email me at olddrooler@hcnews.com and I'll get right back to you.

                              James Kelly
                              James Kelly

                              Comment


                                #30
                                . . . Based on my economics training at Mississippi State

                                Celtic, from my understanding you can actually retrain the locomotive center in the spinal cord to be able to walk and that it does not necessarily require signals from the brain. Hand function, I believe will require signals from the brain and some sort of regeneration across the injury site to communicate with the hand and fingers for it to work.

                                I believe this is correct. . . Maybe someone else or Dr. Young can confirm.

                                Comment

                                Working...
                                X