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Need advice on preventing pressure sores on handcycle

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    Need advice on preventing pressure sores on handcycle

    I just got done healing a very stubborn pressure sore, that took almost a year and a half to completely heal. Needless to say, I want to avoid getting another one. I was using a roho on my handcycle (Top End Force G), with a stationary roller that allows me to bike at home and not on the move. The bike has a rocking motion where I think contributed to my butt rubbing and causing the skin to sheer off. My feet are not sitting on the feet hooks but rather I set it on the ground and strap my waist with the velcro strap. I've noticed my butt does a rocking motion in this position. Please any advice?? I live in Las Vegas, NV and if anyone is in the same zip code with experience in handcycle, it would be great to meet up.

    #2
    I've rode since around 2004...to get BACK my health while having a bad pressure sore and staying in bed for months, per doctor's advice. Got fed up with laying around which IS NOT good for your health. I used a roho from the start, WHILE having said pressure sore. My health rapidly improved FAST as I began to ride farther each day. Felt better than I had in years and the wound began healing faster. This went on until wound healed and then I began using/trying different cushions. Went back to roho as I am a bag of bones Use it still, no problem. I would take that bike outside and ride instead of on a trainer...I could never get 'set' on a trainer, legs belong on the straps.

    https://www.facebook.com/john.baxter.1213986

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      #3
      If you are suspended properly in a roho, you can't shear the skin, I think they are the best/safest cushion out there.

      https://www.facebook.com/john.baxter.1213986

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        #4
        That is great advice. What inch cushion is your roho? Not a special one correct, just a regular roho?

        do you use the same roho for your chair as your cushion? I am a t12 complete. I am assuming your sore was on your sit bone like mine. How did you prevent your sore from further getting worse while starting up Handcycle again?

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          #5
          I use a 4 inch one, I am skin and bones. I ground out on anything less. Regular roho, now it's the 4 way one. Same cushions in my manual and power chairs as the handcycle. I use a 2 inch foam one in the truck for less than a few hours driving. And a 4 inch roho for long trips.
          My sore was on the right side, tunneled upward, after laying around in bed for a handful of months, two failed flap surgeries. I took charge and started getting up and riding, and got healthier, the wound healed from the outside, Dr didn't diagnose osteomyelitis-kept it from healing, eventually went to a wound doc get the diagnoses of osteo, he removed the bad bone and sewed it up. I was out of the horsepital 7 days later, stayed down except for eating, bathroom and bathing for a couple of weeks while doing iv antibiotics, then started sitting up regular again. No problems since. Loong story, well documented with pictures here, back before 2008.
          BTW, I started riding the handcycle BECAUSE of my wound. Borrowed the money from my sister to get it. Dr will kill ya with that "lay in bed" stuff.

          https://www.facebook.com/john.baxter.1213986

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            #6
            I am skin and bones as well, I am pretty glad to hear you have been handcycling since 04. It's only been 5 years since my injury and am glad to hear your still exercising 17 years and going on strong with a similar injury level as mine. How do you prevent your butt from sliding forward in the handcycle as we both have no glutes? I can't seem to secure myself without adjusting myself every few minutes on a roho.

            Have you done anything to reduce osteoporosis of your lower half?

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              #7
              I have an XLTpro, you sit upright, and I use the velcro lapbelt. I never feel totally seated in a chair or hand cycle, like I do in an automobile seat. I am often trying to reposition myself when riding. You cant do anything to prevent osteo when you are paralyzed, at least I can't. BUT, when I DO beak a bone, it heals fast, like before paralysis. So I quit getting excited about it years ago.

              https://www.facebook.com/john.baxter.1213986

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