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Anyone Standing without proprioception?

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  • Anyone Standing without proprioception?

    I've begun to try to stand on my AFO's again after several rounds of hope and failure. Having no sense of where my feet are (although I feel tingling) and very little with my legs its hard to tell if I'm in the right position unless I look in a mirror or straight down at them while I'm standing (which works against good posture).

    Does anyone else stand or walk with AFO's and a walker with very little proprioception?

    http://laughwithmecrywithme.com/trying-to-stand-again/
    http://www.laughwithmecrywithme.com
    my website & blog

  • #2
    I have no sensation nor proprioception in either feet. I have motor in one. I use only one AFO. I use forearm crutches. One has to rely on vision to make up for lack of sensation/proprioception. Glad you are trying. The worst that can happen is you fall or fail....

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    • #3
      That's good to know & you're right better to try & fail than not try. The way I do it now with being "spotted" I don't think I'll fall.
      http://www.laughwithmecrywithme.com
      my website & blog

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      • #4
        I am kind of like Arndog. My left is no bueno and I use an AFO for that foot. I am trying very hard to over come my lack of sensation in my left foot, but it is a challenge. I watch mt feet all the time. The crazy thing is my lack of sensation and proprioception in the left cause funky over compensation in my right. That is the bigger challenge to over come I think.

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        • #5
          Don't turn out the lights, I win every time, errr,,,, I'm the first to hit the floor!

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          • #6
            Amazing you guys can walk with that limitation. This sci is some crazy mix of "stuff"
            http://www.laughwithmecrywithme.com
            my website & blog

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            • #7
              To clarify- I DO NOT walk well at all without a cane or crutches yet. I know that I will though. My left abductors and glutes are still learning to stabilize me. I stumble around a bit unassisted, but I would never go anywhere without my gimpliments.
              It is improving but my inability to walk is not related to my lack of proprioception. It is mostly weakness or lack of return in the muscles that stabilize my left hip. Since I am improving I hope that it is the former. I can get stronger. But I realize it could very well be the latter, in which case all the training in the world won't solve it.
              I do alot of balance/strength exercises designed to both strengthen those muscles and teach my brain to how to properly compensate for my lack of proprioception at the same time.

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              • #8
                Check this out - this guy got a virus that erased all his proprioception overnight - only a few cases have ever been diagnosed, and he is the only one to walk.
                Fascinating watch.......
                http://www.youtube.com/watch?v=AvLRwRAAoww

                I will add that as you somewhat allude to the only way I know where my right foot is is generally through nerve pain, and I can walk with crutches.
                Steve Garro. www.coconinocycles.blogspot.com

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                • #9
                  When I try to walk with arm crutches I also use two AFOs. And yes I can not feel where my feet are. But I try to get in a rhythm and not think about it, after all if one pulls with the same little thigh muscles the same way, the foot will most likely land in about the same place. This works fine on smooth ground, and I can look up some of the time and not at my feet, but if I walk on anything that is ruff, then its back to looking at the ground all the time. I have a very good since of balance, but no proprioception. Any of you guys tried to walk with your eyes closed, its very spooky to say the least, my record is about six steps. Walking with your eyes closed is a lesson in muscle memory, and using the water balance in your head, but still damn weired.
                  Last edited by flying; 02-07-2013, 11:24 AM.
                  T12L1 Incomplete Still here This is the place to be 58 years old

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                  • #10
                    I too can with the use of forearm crutches and walls in the house. lights must be on for sure. Like Steve i can identifie the location of my feet a little with the Nero pain but the biggest help I think has been my past before SCI. I had great balance as a Trials rider and moving cattle on horse back as a boy.

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                    • #11
                      Hello Darlagee, I am 3 and a half years with tm got most all back except my ankels and toes , i wear afo on both ankels. i walk with a walker and my feet kinda turn out as i walk to find where my balence is. i have strengh but my propreception is just not all there either. does any one know how to get it back? will it come back ? i can walk all day with the walker but only in the bed rom with the cane . but will not give up.

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                      • #12
                        Add me to the list.

                        I feel the tingling and more like a pressure sensation.

                        Like Alhavel...turn out the lights and hello floor. Been that way for 23 years and never used a chair after rehab.

                        You can do it but you won't ever if you don't try.
                        T12-L2; Burst fracture L1: Incomplete walking with AFO's and cane since 1989

                        My goal in life is to be as good of a person my dog already thinks I am. ~Author Unknown

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                        • #13
                          I have very little sensation in my feet. I can sense some pressure but it's not very defined. I walk with hiking poles and somewhat unaided at home (it ain't pretty). I feel fortunate to have come this far. For me, it was a matter of relearning and trying to throw away my previous expectations of how the ground feels. I believe in repetition. Repeat a motion and keep repeating. Be a student of it. Keep an open mind to using the motion differently. So, yes, stand. Keep standing as long as it is comfortable for you. Concentrate on it and read the ground as best you can. I don't expect my foot sensation to return but, with more time, I hope to find ways to adapt.

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                          • #14
                            Yea I think that figuring a way to teach the brain to trust your feet is the answer. My sensation (or lack there of) is the only thing that has not changed one iota since maybe a week after my injury.
                            I too am not holding my breath for it to return.
                            Garro- That video was very cool. Thanks for posting. Man. To think 14 months ago I had absolutely no idea what proprioception even was. The things our bodies just do without our being aware of it really is amazing.

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                            • #15
                              Yup. My father has no proprioception in his toes, although he does have a little in his ankles (he can feel when you move his ankles up and down...). He is L3 ASIA C and walks with forearm crutches and bilateral AFOs.

                              To stand erect and balance, you have to have 2 out of 3 systems working well.... vision, proprioception (the ability to know where your limbs/joints are in space), and your inner ear balance system (vestibular system).

                              So just loosing proprioception is not going to prevent you from standing and maintaining balance. But if you close your eyes once you stand, then you are done for! Then you have lost 2 out of 3 of the systems.

                              Also, by walking with crutches, the crutch itself becomes almost like another leg/foot that you can "feel" and will also help with balance.

                              But I still wouldn't close your eyes!

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