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  • Re-evaluation

    After 3 years, I'm going back to Craig for a re-evaluation. Has anyone done something similar either there or somewhere else? I'm not really sure what to expect from this aside from hoping to get measured for a new chair and hopefully a prescription for a standing frame. Anybody have advice about what I should talk to them about or things they could help with.

    I'm 23 and have yet to graduate from college and haven't had a job since I was hurt. I also recently moved from Iowa to Colorado so I have yet to become involved in the community. Would now be the time to bring stuff like that up?

    I tried to get involved with Craig earlier in the fall but they seemed hesitant to offer any sort of assistance if I wasn't actively a patient. Even though i was so close. I was hoping they would have a better community reintegration program then what has been demonstrated so far I guess.

    Any way. Long story short. What do I ask? What should I expect? What experiences have others seen in similar programs? How do I optimize my experience?


  • #2
    A nurse will call you a few weeks before your re-eval to talk over your needs. You'll see a nurse practitioner that will give you a full physical and go over problems/meds.

    PT/OT will take up most of your time as they need to make sure you're sitting in your wc correctly and posture is ok. Range of motion is ok.Things change over the years and you may not notice potential problems but they usually can spot them a mile away. Do you have any pain? The therapists will address this especially upper-limb pain and direct you with exercises to reduce/avoid it.

    Do you get yearly urological exams? If not this is the perfect time to get them done as the uros there deal with neurogenic bladders and sci daily. They get you in/out and are so great to work with. I know there is a dietician if you are over or underweight.

    Btw, I know there are other specialtists that come through Craig or Swedish if you need them. Gyn, podiatrist, GI to name a few.

    As far as activities...ask to see the rec therapists. There are so many things you can do, especially living in Colorado! Maybe even call the rec therapists in advance and see if there are any activities going on during your re-eval you may be interested in. Your evenings will be free so explore the area and have fun.

    The last day of your re-eval all of your doctors, nurses, pt, ot, social worker will meet and you will have a final conference over what all happened throughout the week and any suggestions made.

    Do you need any wc repairs? If so you must let them know when the nurse calls to go over your week in advance. The wc repair people are only there Monday I believe and if you aren't on their schedule or miss them it's tough luck!

    Also, follow-up services can help with room and meal costs I believe if you qualify. You will need to take care of this in advance. During your re-eval you will meet with them too. They are like your own personal social worker so hopefully they can help get you on the road of going back to school or work. Have you ever met with Vocational Rehab?

    Make sure that you have your apt room booked as soon as possible as they fill up fast. Let them know the exact equipment you need as well. I've regretted the last two times I didn't bring my own shower chair because the one they had for me wasn't what I was use to or I had to physically take it apart so the armrest was on the correct side. It was stressful not knowing how I was going to take a shower by myself for a week until the situation was resolved.

    If you can, I suggest taking a family member or friend to help out.

    Any questions, feel free to ask or PM me.
    Aerodynamically, the bumble bee shouldn't be able to fly, but the bumble bee doesn't know that, so it goes on flying anyways--Mary Kay Ash


    • #3
      November's advice is excellent.
      My husband returned to Craig over 2 years ago for a re eval while we still had private insurance and travel funds.
      I let them know in advance about everything that was wrong with his power chair so they could take it for 2 days and work on it. No one in our area could fix it and turned out to be a common flaw during the time the chairs were made.
      They brought in a specialist ENT from a Denver voice clinic that fit him with the type of trach that no one here used. It made a huge difference in his comfort and ability to speak after months with no voice.
      He left Craig originally without a trach tube but later complications made it necessary.
      He saw a podiatrist-literally looked at from head to toe!
      The nurse that called made sure we had a hoyer lift and quad commode chair at the on site apartment unit.
      If there is ANYTHING you need let them know.
      Good luck!


      • #4
        Thanks November and Linda. That was great all round advice it seems like I should be in for an intense week. Both of you spoke about staying on site there, is that common? Since I live in the area they assumed that I could get there myself and could stay at my apartment. I'd like to stay there because both of my roommates work during the day so I wouldn't be able to get there on my own. I would be required to get up extremely early and I wouldn't want to disrupt my program in order to catch a ride....



        • #5
          Yes, if you DON'T live in the area you can stay in the outpatient apartments and most people do [sorry]. I have friends that live in the Denver area and couldn't get an apt though like you stated. I think it would have to be very extreme circumstances that it's allowed. I guess you have to remember there are people from all over the country as in and outpatient at Craig as well as their family...most without transportation etc. Those are the one's that truly need a place to stay on-site. You could ask the apt people to let you know if their is a cancellation/opening. Try calling follow-up services. They should provide you with resources regarding transportation...maybe paratransit that your insurance would even cover. If you qualify (on ssi/ssdi?), still ask about getting a meal ticket as well to help cover your lunch costs. At least the food is super good there.
          Aerodynamically, the bumble bee shouldn't be able to fly, but the bumble bee doesn't know that, so it goes on flying anyways--Mary Kay Ash


          • #6
            double post
            Aerodynamically, the bumble bee shouldn't be able to fly, but the bumble bee doesn't know that, so it goes on flying anyways--Mary Kay Ash