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  • #61
    zevobru - sounds like your son has potential! Congrats on being so supportive and motivating
    Being able to move while laying down is VERY different than standing - gravity is a lot heavier than we realize when we're strong. Also, holding up body weight is quite challenging. I would suggest strengthening the muscle groups laying down and sitting up, and build up to walking more and more.
    If the baclofen was reduced, are his spasms much better? A pump is generally used for significant spasticity...
    Pushing to walk won't do damage, but build up so it's successful.

    For everyone ready, I run an online service that can develop custom exercise programs for anyone who is interested, feel free to visit my website or email me.
    Disclaimer: Answers, suggestions, and/or comments do not constitute medical advice expressed or implied. Please consult your attending physician for medical advise and treatment. In the event of a medical emergency please call 911.

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    • #62
      Dear Scitotalfitness,
      I have a quick question for you: I have a tens unit and was instructed that I could use it every 4-6 hours for 20 minutes. Do you know why you can only use it for 20 minutes??

      Thank you!
      ACDF C5/C6, C6/C7 9/2011& Central Cord Syndrome

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      • #63
        Hi,
        My ankles/feet are rolling out. I'm 18 years post injury and would like to reverse the rolling and prevent it from happening more. Is there a brace or process that I can begin to correct this. My feet no longer sit flat on my foot plate and my legs do not stay together as much as I would like them to while sitting in my chair.
        DFW TEXAS- T-10 since March 20th, 1994

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        • #64
          Thanks a lot stf. No, no problems with blood clots or circulation. BP is 120/72. I have a baclofen pump for severe spasticity.

          Appreciate your help!
          Originally posted by scitotalfitness View Post
          Bobby - I have put people on standing frames after years of injury without issue, the majority of fractures I've heard about involved impact. But I think there are some things to consider:
          First, do you have an IVC filter? Have you ever had a problem with clots? It's worth checking out if you have any possibility of having a DVT. If you have a lot of spasms, that likely helps your circulation, but you can never be too careful.
          Second, the way the standing frame lifts you should be safe even for weak bones because there isn't any impact, and the force goes straight up the long bones. You could raise slowly so you aren't overloading the system if it makes you feel more comfortable.
          Hope that helps!
          Please donate a dollar a day at http://justadollarplease.org.
          Copy and paste this message to the bottom of your signature.

          Thanks!

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          • #65
            rdf - sounds like you'll do well. Your spasms help your bones, so people who don't have spasms would have to be more concerned. Enjoy standing! It has so many benefits

            faceplant - I have no idea why the 20 minute limit was put on your TENS... do you use the unit for pain? If it is for pain, you can use it for hours. TENS can also be used for wound healing, and that benefit is 30-60min on, then 2 hours off.
            However, if you are using an estim unit to assist with strengthening, so you are working with the contractions (NMES, not TENS) then you need to fatigue the muscle then let the muscle rest. This could be done in less than 20 minutes.
            Disclaimer: Answers, suggestions, and/or comments do not constitute medical advice expressed or implied. Please consult your attending physician for medical advise and treatment. In the event of a medical emergency please call 911.

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            • #66
              offroaderswife - rolling out... hmm. So your feet are sitting more on the outsides, which is causing your knees to bow, correct? I am guessing your ankles are getting tight??
              Can you get your ankles into the neutral position where they should sit? Depending on how tight your ankles are, you can stretch them with a strap or sheet daily. Do you stand at all? Standing gives a fantastic stretch, however, if your ankles are super tight, be sure to support your feet so the stretch isn't too drastic. And you could decrease the support as you stretch more.
              Do you have spasms?
              There are splints and orthotics that could be used for positioning, but that would have to be assessed by a professional. They may not be beneficial, and could cause skin problems.
              Disclaimer: Answers, suggestions, and/or comments do not constitute medical advice expressed or implied. Please consult your attending physician for medical advise and treatment. In the event of a medical emergency please call 911.

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              • #67
                nurse--

                for now i can see a very small flicker in my ankle, moving up and down, however, not even up to flat foot. when the nerve regenerates more, will i be able to move the ankle up more?? will i be able to move my toes once that nerve regenerates??
                Life is what happens to you while you're busy making other plans. -- John Lennon

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                • #68
                  LIP26 - I'm guessing this one is for me. If you have a flicker, you should be able to see some additional movement in time. You can practice while laying on your side, which takes away the challenge of gravity. The toes are part of a different nerve track, so unfortunately the ankle movement isn't necessary a guarantee that your toes will come back. The ankle is from L4 and the toes are L5. But keep working and time will tell!
                  Disclaimer: Answers, suggestions, and/or comments do not constitute medical advice expressed or implied. Please consult your attending physician for medical advise and treatment. In the event of a medical emergency please call 911.

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                  • #69
                    Hey there scitotalfitness...

                    I have a complete C5 injury, 18 years post. I'm in a relatively good condition but I feel like I need to get a lot of strength back. I do range of motion exercises every morning and so I have no problems in contraction or anything like that. My shoulders are okay but they are in constant pain, especially shoulder blades and above. My biceps are also okay, triceps are there buy very weak.

                    I was wondering what kind of exercised do you recommend for a person in my condition? I want to strengthen my shoulders, biceps and triceps. I also want to work on my abdomen.
                    Is there anything in specific that I should do?

                    Thanks so much

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                    • #70
                      Scitotalfitness, first of all, thanks so much for your contributions to this thread. I see a lot of helpful answers here.

                      I have an L1 and L5 injury and operate at the L5 level. In a year-and-a-half, I've recovered pretty well and can walk with hiking poles and do lots of exercises.

                      The insides of my legs are stronger than the outsides and this causes my feet to make a weird half-circle inward motion each time I take a step. I started out with AFOs on both legs because of drop foot but I can pull my feet up fine now and haven't used the AFO's in 10 months and walk fine without tripping myself.

                      Is there anything I can do to encourage my feet to stop swooping inwards? It really is quite annoying even though it's not causing me any problems with mobility.

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                      • #71
                        sam - you would definitely benefit from a strengthening program! It may help your pain. I'm adding a link of a YouTube video - if you have elastic bands at home, or access to a pulley system, these would be a great start. Doing some exercises with wrist weights is good. You could use a small medicine ball (weighted ball) and hold it between your wrist and bring it side to side - this simple exercise will help your shoulders and your core.

                        http://www.youtube.com/watch?v=TfnO5...ure=plpp_video

                        You could also check out my website for online exercise classes to follow along with - there are 2 new workouts every week. Hope all that is a good place to start!
                        Disclaimer: Answers, suggestions, and/or comments do not constitute medical advice expressed or implied. Please consult your attending physician for medical advise and treatment. In the event of a medical emergency please call 911.

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                        • #72
                          truly - it sounds like you should try some exercises for your hip abductors! They are smaller muscles compared to you adductors, so they are frequently weak. Here are a couple:
                          - laying on your back, bring your out leg to the side and back in, lead with the heel, keep the toes up - don't let them point out to the side. Do 15-20 3x. As this gets easy, try doing it on your side, lifting your top leg up to the ceiling, heel first. Try to keep the leg going backwards too - kicking forward is easy and it is your bigger muscles "cheating." When this gets easier, add some ankle weights or a elastic band around your ankles

                          - try standing on one leg and keeping your pelvis level. You may want to do this in front of a mirror to make sure you aren't tilting. Try a minute at a time

                          - sideways lunges

                          - sideways step ups onto a small step

                          Do those seem doable? Let me know if they help
                          Disclaimer: Answers, suggestions, and/or comments do not constitute medical advice expressed or implied. Please consult your attending physician for medical advise and treatment. In the event of a medical emergency please call 911.

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                          • #73
                            Thanks for the reply! My previous physio had advised me about the hip muscles and they're a problem for me, not only because of SCI but also because of the way I was injured. I hadn't connected the foot problem to the hip problem, though. This helps enormously because I am concentrating on the hips and that may take care of other things. Thanks so much for the advice!

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                            • #74
                              My PT has ended so im getting a pass to the gym to continue doing those exercises ive learned are good to. All my doctors have said ill be fine, that it just takes time..to do extensive physical therapy but to make sure to rest. do u have any other recommendations? And the resting I have to do...how much?..and how..do nothing but sit on my butt and read a book?!

                              Thanks :0)
                              Life is what happens to you while you're busy making other plans. -- John Lennon

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                              • #75
                                It's fantastic that you're going to continue working out! You really are still early in your recovery.
                                How much rest... I would suggest a couple of things. I would give any muscle group at least a day of rest between workouts. When you strengthen, you're actually damaging the tissue so that it heals stronger. This is why you need rest - you need the healing. If you are sore, you may need a second day. Listen to your body.
                                You're daily activities should be able to be completed without interfering with "rest." If you notice that you are tired all the time, or sore, or you plateau for awhile, then you may need to back off a little on the intensity of your workouts and add more rest.
                                Keep up the hard work!
                                Disclaimer: Answers, suggestions, and/or comments do not constitute medical advice expressed or implied. Please consult your attending physician for medical advise and treatment. In the event of a medical emergency please call 911.

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