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If you can walk, how much do you walk?

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    #61
    7 months post "worst burst fracture (l-1)" spinal surgeon had seen in 10 years. Cord almost completely severed and cadaverous humerous bone recipient/two separate stabilizing surgeries. Walking unassisted and carrying/lifting things normally as the most recent upward developing trend. Walking at normal pace, stairs, slight limp on left leg (lock it purposely to avoid buckling). Lucky SOB who busted his ass in impatient PT literally fighting the PT's to let stand up 4 days post surgery. Advocate, insist, and demand to walk again in there's any chance....falling is just a part of it all.
    Last edited by AllyandNeil; 26 Sep 2011, 12:03 AM. Reason: Typo

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      #62
      No one can tell or determine how far any of us can go. I am now running full stride, still fall, legs still give out, still in pain every day, but dammit I'm doing what they told me I couldn't do.Docs now tell me to go until I feel pain or when it hurts stop, other than that they can't tell me a damn thing, but wow, you are the most active patient we have. So, all that docs are, are learned and educated men/women. People are wrong everyday. So, I say get out there and prove them wrong and have fun doing it. Life is way too short. 6 yrs post, c7, t6 sci.

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        #63
        i'm L3-L5 on my left side functionwise and L1-L5 on the right, function wise (L1 damage wise, i had other movements but they were mostly spasm related, and the virus in my spinal cord spread until the doctors FINALLY were able to diagnose it properly the other week, originally they thought the damage was far less). i'm pretty young and was incredibly athletic before my SCI, i teach kid's skiing and had just finished running college track nationally. but i haven't been able to walk.

        for a little bit when i regained some control on my left leg (before then i had no movement below my hips) i got up on forearm crutches and was able to walk about 10 feet max, my right leg completely useless except for swinging and it can't bare any weight. i still use the crutches around the my mom's house but that was the only improvement i've made. i've kept up my strength and flexibility but cannot do anything with my right leg still and my left is hit or miss. i swim daily, do PT and do other sports so i'm active. i was feeling great that i was able to finally get out of my chair but now feel some what discouraged that most other people with my level of injury are eons ahead of me. my neurologist said not to be too disappointed, in addition to the spinal cord virus i had a bacterial infection and severe blood clots that did damage to other nerves and muscles. i'll keep it up with the PT and exercise, i just hope i'm not doing anything wrong for having to be in my chair 95-99% of the time. :-/

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          #64
          35 minutes everyday.. my hip still gives me problems sometime but my spinal injury is pretty much recovered. It still hurts when I sit for too long, but I think it's important to exercise if you can. Pain is sometimes a good thing! It lets me know how I'm recovering.
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            #65
            Not sure if I replied yet, but I probably walk .25-.5 miles a day. I am slow, and feel more crippy walking than I do in the chair. Wet hard floors suck, so I avoid those all together.

            c6/7 with ankle turning and I think I hyper-extend my on knee.

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              #66
              Originally posted by Human View Post
              Not sure if I replied yet, but I probably walk .25-.5 miles a day. I am slow, and feel more crippy walking than I do in the chair. Wet hard floors suck, so I avoid those all together.

              c6/7 with ankle turning and I think I hyper-extend my on knee.
              Yeah, I agree, wet floors suck; but walking on grass is a real challenge.

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                #67
                Is anyone using forearm crutches without grip/quad hands? My right hand is fine, but my left has no strength or dexterity, so I use either a walker or a regular cane with my right hand. Will I be able to use a forearm crutch with my left hand?

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                  #68
                  Has anyone figured out how to get rid of a hyper sensitive foot? has anyone tried acupuncture for it. I noticed TMAZ has the same problem I have. It's just so sensitive, any kind of stimulation and it goes haywire. thing is, walking in itself is stimulation : picard :

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                    #69
                    AFO's and walking poles help me on uneven ground. I hope someone replies about how to help the hyper-sensitive foot issue. I haven't found anything that helps.

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                      #70
                      I have a C5/6 incomp. 3 1/2 years post injury. I walk without a cane for about.5mi. I walk further with the a cane but I feel it is a mind thing. I use the cane more for a emergency, just in case I lose my balance. i feel I am getting my legs stronger without the cane. So I try not to use it much. Therapy is everyday for us..if we don't use it, we will lose it!!

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                        #71
                        . On Monday I went to a pain management Doctor and she had already went thru all my files from my neurosurgeon. She was wonderful and gave me a glimmer of hope that I needed. I told her I can't wear shoes and my knee is super sensative. She gave me Lidocaine ointment usp.5% and told me to put on my knee and my feet. I was thinking a little tube of oinment is going to take the burning, stabbing, and sensory pain. I am serious as a heart beat it has really helped. She also said to start wearing shoes a little thru day instead of flip flops. I still have some nerve pain, but the sensory pain on feet and knee are numb. It was expensive $100.00 for 5 tubes, but I was at the point I did not care. My question is ok I was hurt almost a year ago had two surgeries a painful incision and no other Doctor even mentioned this medication. She also put me on Lyrica after Gabapentin did not seem to do anything. I am worried about the weight gain, so I will have to watch my diet.
                        I don't expect miracles, but she spent one whole hour with me and answered my big list of questions, like when will the pain go away?

                        This is a process I understand I wish I could have found her many months ago.

                        Maybe this would help some of you....
                        JeAnNE L1Burst Fracture inc. 11/5/10

                        Live Well--Laugh often

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                          #72
                          Jeanne, so awesome that you've found some help! What a relief that must be. I hope it helps you get further with your walking. I wear shoes almost all the time. They just help hold my feet in position better and walking is easier. Maybe you'll be able to get into your shoes again soon!

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                            #73
                            That's about the only thing I haven't tried lidocaine, I'm going to ask for it next time, because that's what I have, burning and pain. I wear welding shoes, no joke, and I definitely don't walk like an Egyptian, more like Herman Munster. LOL!!!!

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                              #74
                              Thanks Truly, I am working my way to shoes hopefully before the snow starts!!My girlfriend came over for coffee and 5 months ago had a full knee replacement and put some of the ointment on today and she could not believe how it numbed her knee. I put it on my feet today and wore my shoes for 2 hours. Next I will have to wear socks and graduate to a better shoe. I am not saying it is a magic cure, but if it is even 1/2 better I will take that.
                              Best wishes to all.
                              JeAnNE L1Burst Fracture inc. 11/5/10

                              Live Well--Laugh often

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                                #75
                                absolutely!

                                Originally posted by jorge m. View Post
                                I have a C5/6 incomp. 3 1/2 years post injury. I walk without a cane for about.5mi. I walk further with the a cane but I feel it is a mind thing. I use the cane more for a emergency, just in case I lose my balance. i feel I am getting my legs stronger without the cane. So I try not to use it much. Therapy is everyday for us..if we don't use it, we will lose it!!
                                This is the truest statement here! It's hard some days, but every day is a new day. I have to pay for it when I get a chill. Walking, for me is a tradeoff with the pain. Many of the medications can cause function loss (for me at least) the trade off (for me) isn't worth it. Is rather stick the pain in a box, grab my cane and go. There are chair days, and I've been told this winter may be bad....whatevs! I don't plan to stop doing what I want to do until I can't....then I'll find another way....

                                Above all, walkers keep walking or you just may lose it.
                                CCS/Walker C6...it's a long story

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